Hi Jane

There is no point SE is all the same medical team,I know this team well after 2. 1/2. Years I might have my moments with the consultant,but most are the same,when they get that high up, I did think may be general treatment at another hospital might be quicker but I think overall the unit has improved I will let you know if I am…[Read more]

Hi Tom

Your local club must have had there takings hit. Lol you know I sympathise with you,not having to go to work,you poor thing!!!its a hard life. I hope it clears up and you are soon back on your feet,missed you on Facebook. Love Eve

Slim sends you his best wishers.

Hi jean

Ask for the reports on Skelton ex ray and MRI scan you are entitled to both ,if you find them difficult to understand ask them to explain them if you have no response take them to your doctor or find some one who can break down the medical jargon,

Has he had any ex rays done from time he started myeloma to now ???
They do not…[Read more]

Hi Jean

I did try again to day,but I was met with same explanation which is PET SCAN WILL NOT TELL YOU WHAT IS GOING ON IN THE BONES. I said I know that but it will show if it in the soft tissue,fell on deaf ears.we know its 10 percent in bones,no extra damage shows on MRI or exrays.. He has another BMB on the 7 of May blood taken for…[Read more]

Hi jean

Looks if your post,slipped down,and you had no reply.

I am sorry Mike has to start treatment after 5years. I take it he has come out of remission !?!!

Velcade did work for Slim,and managed to get to SCT,but he only got 6months before it came back. Asa drug Slim did not have many side effects,in some places they do it subcutaneous…[Read more]

Hi Dai

Just a quick note,I think Janet would benefit from this site,cannot get Slim on it,says its my thing, but as time goes on he wants to know more and has started to watch the info videos on here.

I have been trying to get the Myeloma team to consider a PET scan for Slim,but falls on deaf ears,say they do not do PET scans for…[Read more]

Hi Tanya

I remember your posting,All parts of the past,and future,with lots of painful memory's and your dad more or less choosing to ignor his ill ness for the sake of alcohol .

This will be a sad time for you as so many issues not resolved,but you can only do so much,you cannot change your dads future,be kind to yourself,for give…[Read more]

Hi Jo

Nice to know you still with us,you have been in my thoughts,Keith Marie and you all went quiet,we know Keith's in hospital and at last you have posted.

You are going to have to teach your husband to post,tell him we were getting worried!!

It,s a long haul getting yourself. Fit after Pnuemonia , it is just a blip,make sure you get…[Read more]

Hi Rob

My husband is 69 years young this year has had Myeloma for 2 1/2 years CDT did nothing Velcade got him in a position for SCT he has had only 6. Months remission,but he is ready for the next treatment which we think will be Revidimide .he is in a good frame of mind which helps.

My husband has looked very ill at times weighing 60 k…[Read more]

Hi Rob

I was going to say a warm welcome to the site,but running out of options,is not welcome

You do need some of the more experienced people to tell you if there are any more option s or Ring the myeloma nurse she might be able to help.

You do not say what age your mum is and I do think it might have some bearing on her position and…[Read more]

Hi Dai
I can understand you being angry,

You know you have to keep your eyes wide open,not giving Zometa early is an example.

Why wait?? Ring up speak to someone about the injections,this gives them time to have a talk,before they see you again.Eve

Hi Gill

Yes, what a lovely picture. Stephen obviously had a lovely friend in his dog!

I was mentioning about talking to a photo, in an earlier post, this would be a lovely picture to "talk" to.

Take care and continue to be kind to yourself.

Love Mavis x

Hi San

Sorry your Mum is having such a hard time. Does your Mum have any arthritis by any chance as my Pain Nurse says the morphine type drugs don't help that pain so I am taking anti-inflamitories as well.

I have also begun to have some physio at home and the exercises are certainly helping my back by strengthening my muscles.

Do keep…[Read more]

Hi Wendy

It is the only way to do it

Remain positive and get out and do as much as you can!,
Have bought new Motorhome scaled to a small one,we always said we would do the UK when we were older,but it looks if Slims health has bought UK near.
A moterhome. Floats are boat,not one for hotels unless its some were like St Lucia.
So glad…[Read more]

Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of…[Read more]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith,…[Read more]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your…[Read more]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for…[Read more]