Hi Tina

I wonder if losss of appititite is one of the longterm efffects of CDT as I haven't has a SCT, but still have no real appitite. I feel sorry for Gordon who cooks for me.

The only up-side of it for me is I have lost some weight and kept it off. However, I find not eating a balanced diet doesn't help the constipation!

Do take care…[Read more]

Dear Andy

Just to say all the best with the continued treatment. Do hope you are both ablt to enjoy your planned breaks.

Best wishes.

Mavis

Dear Pheobe,

Like the others, I would like to thank you for your inspirational story and to wish you and your husband many more years free from full blown MM.
All these stories of infections are so scary. It is interesting that the Government is now taking the subject so seriously that they are encouraging the development of new antibiotics.…[Read more]

Hi Min

I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]

Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.

Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]

Hi Paul

Hang in there it is going to be worth it,the fact your still working is a lot,tiredness is one of the symptoms my husband had,but not the moon face he did have a rare side effect painful scrotum .very rare!!!

At least having your treatment subcutaneous saves time.

Jo nice to hear from you take it you are ding fine.??? Love Eve

Hi. Bev

How are things going .i am just boosting this up,as people might have missed ir.Eve

Hi Trish

Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve

Hi Rebecca

You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem

My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]

Hi Louise

I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]

Hi Bev

Sorry to hear about you situation ,you do not say how old your father is or how old you are??.

It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!

You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]

Hi :Dai

Who would have put odds on you getting through round three, a few months ago! I admire your determination.

I go back on Zometa tomoorow, after four months off for dental work. Like you, my veins can be very difficult, but I am travelling in hope!! I only had shivers on the first cycle, nothing since, and as mt last back X-ray…[Read more]

Hi Jackie

Just wanted to welcome you and your Mum. Sorry you've had to join us. It does all sound so grim at diagnosis, but at least they are on your Mum's case. I'm sure she will do well. The important thing is to stay positive – there is lots they can do.

Best wishes to all the family.

Mavis

Hi Babs

Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve

Hi Rebecca

Are you on dialysis ?..,

I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

There are people on here who have had SCT…[Read more]

Hi Daniel

You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .

Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]

Hi Jean

Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve

Hi Daniel

Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]

Hi Everybody

It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]

Hi Trish
The program was Saints and Scrounges I tend to have the TV on rather than the radio as I am deaf so need subtitles,I was not paying a great deal of attention I do not know what the lady claimed but she was showing dogs and they filmed her,she had said she could not walk more than 50 yards without pain,and her answer was she had dosed…[Read more]