Hi Tom
I just say it as I see it,and people should not ask questions if they do not want answers. I think coming from Liverpool is the reason people seem to be more blunt and take bad news and turn it into a lighter thing,it helps people to talk to you about it.
I do find my sense of humour does get me in to trouble down south,as I have aged,I…[Read more]

Hi Babs

Slim had a letter ages ago just a general letter from pensions office,he gets attendance allowance ,right in the middle of the letter it actually says you must inform them if you have a SCT or any other change. I am glad I looked through mail,what I do is quickly look at things,keep them,then when I have a pile if I am going to keep…[Read more]

Hi Jane

Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.

I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know…[Read more]

Lots of love Sue

Will keep you in my thoughts and prayers. You must have been very proud of Charlotte. Aren't we lucky to have a daughter. I love mine to bits, even if she and the family are about to go and live in Luxembourg.

Take care, be patient with yourself, you are on a long, sad journey.

Mavis xxxx

Hi Sandra

I'd forgotten that I had shingles while on CDT and it was very painful – round my middle. Still get a tightness, but nothing to worry about.

Take care.

Mavis x

Hi Paul

Sorry to hear your news. Keep fighting.

Best wishes.

Mavis

Hi Jane

Sorry to have to welcome you. How wakeful for your daughter to be having to cope with the dreaded MM twice – unbelievable.

No one has said much about the side effects of CDT so I thought I.'d add a bit.

I had six rounds. I had no side effects from Dex, but did find food tasted really strange. I found I preferred things with…[Read more]

Hi Sue

I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.

There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find…[Read more]

Hi Tom

Well I think you should try again,and if you are refused appeal,you are supposed to fill the form in and put you worse day down!!!

Tom what can they only NO so you have nothing to loose,all this money you are paying for a pension you might not see.as for the small private pension,if you explain the circumstances and the fact you will…[Read more]

Hi Keith

Well they are working hard on you,so at this present hospital seems the place for you,how is your wife managing with all this,she must be very worried about you.??

Once they find the infection,they should be able to treat it,as for going commando style, what was the nurse doing ,I do not think that's the answer Keith,I no Slim…[Read more]

Hi Maureen

How are things going,Ian must be feeling low,if he is anything like my husband he will not be voicing his fears,because he will be worried about you,plus the Dex confuse s them,when Slim was like that for some reason he got it into his head,that I wanted to stop coming,I was just getting so worn out, I would ring him in the…[Read more]

Hi Ann and Peter

He is having a hard time,when Slim was like that,the nurses said as long as he was on a drip and trying to get fluid down not to worry about food,I would suggest old clothiers that can be thrown away,it is an emotional time for them,as there not use to being so helpless .

It will soon be over,cold milk seemed to help…[Read more]

Hi Maureen

I use to just draw the curtains and get on with it,I cannot tell you how many times I went in ai 8am and he had been ringing for a commode,I use to go out to the sluice room disinfect the commode help him,then took it out cleaned and disinfected it again,then a nurse would pop her head round and ask what he wanted half a hour…[Read more]

Hi Jane
Nice to hear from you,take it your under fifty to introduce your self on there,people might miss it,you might like to go to newcomers,people are more likely to see it.

Helps if you tell a bit about yourself as some actually meet in hospitals and might be of use to you if you are worried about anything. Eve

Hi Keith
You sound a bit down,let's not think about what the doctor said,lets just think I am going to jump the hurdle, if its any help to you when Slim was being taken to ITU a young doctor,said we're taking you to ITU I cannot promise you will not die,he had not even asked,luckly he cannot remember .

They do not know everything Keith,what…[Read more]

Hi Helen

I thought something might be up,as no postings,I find I miss things if I do not look in daily

I am sorry,are you not tempted to start treatment while its low !!! The reason I ask this is the was an article about people who had CDT then Velcade having better remission time might not mean anything though.
It,s a strange place to be…[Read more]

Hi Everyone

Mavis you are allowed to be cantankerous when you are over 65 I cannot wait,I am practising now,what,s this about Helen which Helen is out of remission.????

When I said about chances of Tom not reaching 67 I was talking about betting odds,would you not call it a sure bet,but saying that 2 years ago when Slims Myeloma was in…[Read more]

Hi Tom

What's all this talk of not living till 67! I am counting on you still being around then to keep us all smiling!
We all need to travel hopefully don't we.

Re DLA, I got it for very severe arthritis, before I even knew what MM was (happy days!") also, am now over 65 . It was a struggle to get it then, but has been a life-line to…[Read more]

Hi Jean And Frank,

I will not tell you not to worry,because you will,but if you are unsure of anything ask the nurses or if you think about something once you come home,ask on here,there are enough people on here,who have all gone down that path.

Remember Jean,after about six days,old clothes you can throw away,tell him not to get…[Read more]