Hi Tom

We have it in for shelted accommodation as we decided the same thing,Slim surprised me,as it was his surges ten ,we found the council did not want to know own you own property you do not get many points,so the more you have worked and looked after yourself the less you get, a friend suggested Sanctury Housing,they do not mind if you…[Read more]

Hi Maureen

You must find it hard with working,have a word with husband,and tell him to make sure they turn him over,and ask can the physo massage his pressure points,or when you go in give him a massage,it,s good for circulation plus relaxing and in general will make him feel better.

When Slim was in hospital an I pad with Skype on it…[Read more]

Hi Sue

Well I was up at 5am this morning and I took 2 tablets,had to get up with frozen shoulder and bad leg,a cup of tea and a piece of toast,so I could take pain killers and I am only the carer. Lol, I have gone down hill,as Slim is getting better,I think the whole 2 years hit me in one go,so may be sleeping tablets are not the…[Read more]

Hi Tom

I do not know what you situation is Tom,Dai is right in what he says about the physical side of claiming,but they can not discriminate between physical and the mental ability of the person although they have tried for years,because they do not like paying for a person,eg with early dementia or mental issues.

Tom as you say your…[Read more]

Hi Maureen

It makes me angry when I. Hear people having bed sores,the NHS have ripple beds and if he was given the nursing he should of had,a man of his age should not be in this position,I could under stand it if he was frail,as it is very hard to avoid bed sores.

I can only tell you all the time my husband was in hospital,I bed bathed him…[Read more]

Hi Liz

It is so good to keep getting good news. Trust Kevin's light chain readings continue to fall fast!

Keep at the fight.

Very best wishes.

Mavis

Hi David
Hospital 500 yards,you lucky devil,no problems for you.blood test morning,phone you. Up,and pop over for injection .

Slim had 6 cycles which surprised me as,he had just completed 6 cycles of CDT,only to find after BMB the Myeloma had increased in bone. Marrow but was showing on Kapper Light Chains as in remission,that is why BMB for…[Read more]

Hi Tom

All the best for your second cycle. Will enjoy looking at blog.

Very best wishes.

Mavis

Hi Both of you!

Do revel in such marvellous news!! May it last for ever. Well, we can always hope and pray!

Love Mavis x

Hi Maureen

I am a real believer in Physio. If you have a good therapist they can work miracles provided Ian is willing to put in the work and i am sure he will.

I have returned to mobility six times so I know it is possible!

Lots of love Mavis x

Dear Sue

My thoughts and prayers continue to be with you.

I am relieved to know that Michael is at last free from pain and at peace, but I appreciate just how empty and low you will be feeling. Your grief will be harder to bear, as you have been carrying such a heavy burden these past couple of years, as you have valiantly fought this…[Read more]

Hi David

Velcade is good although you have to go to hospital a lot more,Slim had less side effects,we did the hospital bit twice in one day two times a week,blood in the morning infusion afternoon,tablets once a month,you look forward to the week you do not take anything.
Lets hope MRI scan is clear,it's the damage it causes,I think is more…[Read more]

Hi Sue

I hope you are feeling at peace with yourself and when you go to bed have a good nights sleep,you did your best for Michael,no one can ask more.

My best wishes to you and your girls,I am sure Michael was very proud of you all.Love Eve

Hi Marina

Sorry you are in this situation ,but it will help you with future dealings if you end up in A&E again.

I can tell you during the fourth cycle of CDT my husband was admitted to ITU and was in hospital for 23 days they stopped the chemo ,said that came secondary to Pnuemonia ,all together he was 6weeks no treatment ,then went back…[Read more]

Hi Lorry

You do not say how old you are!!!

Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.

No one would pick up on it as it is just the odd thing for…[Read more]

Hi Keith

Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!

You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]

Vicky and Colin

This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve

Hi Nicki

So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]

Dear Sue,

It's strange, I came on Site to send a message to you, as I was thinking of you and Michael this afternoon, as I was enjoying the sun and a bonus day out. I felt sad that you and Michael wouldn't be enjoying it. I didn't realise quite how grim things were, although I knew they would be pretty bad. I do feel for the really tough…[Read more]

Hi Sandie,

Glad others have put you right about the infusion being every four weeks, not four times a week!! I find it much better than the time contstraints with the tablets.

When I have a Consultant's appointment they always arrange the two things together. Mind you, if yor Mum is reliant on ambulances for transport, as I am, she may…[Read more]