Hi Susannah and Michael

Just to let you know that i am still rooting for you. Do hope the antibiotics are beginning to do their job and that Michael can be home soon – there is no where like it.

I guess all of us MMers think about our end, from time to time and wonder which way we will go. I am sure we all hope and pray for a gentle…[Read more]

Hiya!

Crept into under 50s group to read your post.

Sorry things aren't going so well for Melvin – ion fact it sound pretty horrible.

Do hope that pain is beginning to be got under control. I am also a great one for recommending asking to see the specialist pain team if you haven't already.

Lots of love to you both.

Mavis x

Hi Lizzy

Welcome from me too. Sorry your Mum has had such a bad time to begin her MM journey with. I do hope she is coming out of the dark tunnel.

The one good thing about the treatment of MM is that there are so many paths to try. Many of us have found CDT, a more traditional treatment, very successful, so don't despair that your Mum…[Read more]

Hi Jo,

Just postine here as it may go straight to your email list to say, look at Dia's posting if you haven't already done so!

Lots of love and all blessings.

Mavis xxx

Hi Everyone

Thank you so much for all your good wishes. It is good that we can share joys and soorows here. Good too that there are a good number of us in remission. It must encourage our newer members just when they are really bowled over by the diagnosis.

Lots of love to all my cyber friends – get well and keep well.

Mavis xxx

Hi Jo

I'm glad that DAi spotted too that things aren't all well for you. I had noticed it in your posting to me and was going to respond. I have always been so encouraged by your postings.

Do hope the new treatment works very quickly so there is no more kidney damage. Also hope the side effects aren't too bad. Are you still able to…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Debbie

Welcome to you and your Dad. Sorry you have had to join us and that your Dad has now to start treatment. I would deffinitely advise a holiday before treatment starts because I found my appitite was seriously affected, also, as others as said, even if he does well, there will be "off" days.

As to driving, I started driving again,…[Read more]

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)

We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]

Dear Sue and Michael

Just wanted to let you know that you will both be in my thoughts and prayers at this very difficult time. I am sure you will feel better after you have seen the Pallative Care Team. They will really want to take your thoughts and wishes into account aand make things as easy as possible.

No one can predict how long a…[Read more]

Dear Gill

I'm sorry that you have people around who obviously have no idea what it is like to lose someone so close. Two months is no time at all for healing even to begin to happen. YOU be kind to yourself, and don't expect too much from yourself, even if other people are insensitive.

Do keep in touch here.

Lots of love.

Mavis xxx

Hi Pat

Sorry you are having trouble with your silver rings. I wear a lot of silver, but not rings, and I haven't had any trouble!

This is a funny disease. We all react so differently and these seemingly "little" things can tip the balance in making us feel depressed.

Do take care.

Mavis x

Hi Tina

You know I'd admire you for following the CDT with the Transplant. I know, from reading what others have experienced, that it won't be an easy time, but, if like with CDT, you mark off the weeks, I know you are going to come fine. What was your PP reading pre SCT?

I know one of the worse things with all this treatment is how food…[Read more]