Hi Tom

I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

Thank you for your message Jo. People always say that I am coping really well and sometimes I agree. It may be the false smiles and 'I'm fine thanks' that I often reply when asked how I am. The way I see it – I have to cope, I have no choice. Who else is going to look after everything..Melvin and the children? Just sometimes, like now – I just…[Read more]

Thank you for your message Andy. It's very tough for all isn't it? Life completely changes when something like this sets up residence in your life and future. We have been referred to a Counselor individually and as a family, so our three children and myself and Melv can go. However..we haven't been yet as the Counselor cancelled the past two…[Read more]

Thank you Helen..what a day I had yesterday! I do feel a little better today, although my moods are all over the place. Our twin boys, who are 11 years old have gone off for a little break with my mum. Suddenly my shoulders seemed to drop. We have a daughter who is 16 and she is still home with us but she is so independent. She is revising for her…[Read more]

Hi Sarah Jane..

It is my partner Melvin who has MM. He is 39 years old and like you had SMM and then one day went to the hospital to find PP levels had increased and he started Myeloma XI and also is on RCD.

Melvin is at the end of cycle 2 and I think he has coped quite well so far. Unfortunately he isn't working due to his L3/L4 vertebrae…[Read more]

Hi Sarah
They will not use radiotherapy on your spine unless you have compression of the spine and cannot bear the pain,chemo will do the job just as well.

Just concentrate on your tablet regime,it helps to do a board with the days and times you have to take them,as it is easy to forget what day you are on,some hospitals provide a chart worth…[Read more]

Hi Eve – thank you for your message. I agree with you – I am grieving and I think going through each stage slowly. Today and right now I feel angry…the denial has been with me since 2010 when Melvin was diagnosed.

I hope you are well – take care and thank you again. xxx

Hi Vicky – thank you so much for your message. reading what you wrote was like I was telling the story…just how I feel. I have also thought about using all of this in a positive way, maybe volunteering somewhere or studying maybe?! Who knows.

I hope that Colin is OK at the moment – how are you doing?

Take care xxx

Hiya Tom – thank you for your message. We have something else in common..In May 2007 I was diagnosed with Fibrosarcoma, cancer of the soft tissue and I finally went into remission in June 2010 ..as Melvin was diagnosed with MM in the December. I have to agree with you regarding the comparison of feelings – I felt more in control when I was the…[Read more]

Hi Chris

All sounds good,ask your wife to bring your favourite mug in,it helps with the drinking,rather than have hospital mugs.

It all takes a few days to kick in,do not worry,nurses have seen it all before,you should be able to have a walk round when it is quiet.You will not see them much as they keep away only do what is needed,because of…[Read more]

Hi Kerry

I think Tom has summed it up,you are just feeling what we have all felt at one time or another,you will work your way through this,but find some space just for yourself,instead of being a task to walk the dog,make it a pleasure,your own space.
The only time you have to worry is when you are bawling at strangers,or crying in front of…[Read more]

Hi Lorna..

My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x

Hello Angelina,

I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]