Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi Vicki and Colin!

I've not been on here recently so missed the whole saga but am glad that Colin finally managed to produce over 2 million of those pesky litle cells!

Wishing you a good relaxing week while you are waiting for SCT day!

Love
Eliz
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Hi Chris!

I've not logged on for a while so only just noticed you are due to start your procedure tomorrow!

Wishing you an uneventful stay with all going to plan.

Love
Eliz
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Hi Kevin
Just come on to say good luck with your SCT,it is hard going but like most things you will feel better just takes some time.Eve

Tina, I have been missing from the forum for a month or so, and so did not see this thread till today.

I hope that all has gone well with your procedure.

I imagine you are now around day 11/12 after receiving your cells back and hopefully seeing those neutrophils starting to rise, so I hope you are not too far from getting a "release…[Read more]

Dear Vicky

So sorry your Dad has lost his battle againgst the terrible MM. MY sympathy to you, your Mum and all the family.

Lots of love.

Mavis x

Dear Ann

Just wanted to add my sympathy at your loss of John. What a blow for you and the family. You would have every right to be feeling very angry at the unfairness of it all. I just hope you can hold on to all the great memories you must have of your time together.

Much love.

Mavis x

Hi Helen

Just caught up with this thread. Sorry you have been feeling so under the weather. I'm not surprised. I remember when my daughter, then three, had whooping cough, we were up nights on end boiling kettles for steam to help her breathe! Youn ARE a tough cooky to have been working through it all. I hope your employers appreciate what…[Read more]

It was such a shock to read your post today after having taken a "break" from this forum recently, Rachel.

Paul was such a positive and supportive poster and he will be missed by us all.

My heartfelt condolences to you and your family at this sad time.

Eliz
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Welcome to the family, Mika, and thank you for your positive post.

It is terrific to hear from someone who has lived with this pesky disease for so long and is so full of optimism

And your English was very clear and easy to understand too!!

Eliz
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I am so sorry to read that your beloved John has passed away, Ann.

My heartfelt condolences to you and your family at this difficult time.

Eliz
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Hi Sarah Jane

Welcome from me. I am not on a Trial, but have just has basic CDT, but wanted to write and say that I didn't have any bad response to Dex so obviously some of us get lucky. I have had other problems, but that's MM for you!

All best wishes as you adjust to this progressive diagnosis – hope the drugs do the trick for you as…[Read more]

Hi Lorna

Hope you are feeling more up than down,this illness brings you down to earth,big time,but saying that it does make you appreciate what you have,in your case how lucky you are to find the man you love.
Some one once said to me life is like a card game,you have been dealt your hand and it is how you play it that counts.
I feel down at…[Read more]

Hi Pat

Glad you managed to sought you pain out,pain can drag you down,and it is the last thing you need.Tramadol is effective but again not a slow release,your own doctor will not like you having a controlled drug,plus they are addictive so watch out for side effects.

Going once a week will take away some of the strain,when Slim was very ill…[Read more]

Hi Everyone
I do not think I ever felt angry with are situation,sorry we had put off doing many things,wish we had not put them off to a later date,but that,s life,you take your chances.

In fact I felt lucky,we do not have much money but we have not waited for retirement to do lots of things,I just looked at people,s lives around me.So anger…[Read more]

Hi Keith
When you feel well the last thing you want to do is spend time in hospital,it was always a fight to get Slim there when I thought he needed to be checked over,you tend to think you know what is best,but I know from Slim there is a fine line between being well and being confused and he crossed it many a time.

The platelets below 20 is…[Read more]

Hi Helen
Well you must be feeling rotten ,I asked should Slim have all his childhood injections again,and was told,only needed them if he had donor cells,sounds if there might be a case for having boosters.

At least you now know what it is,which must give you some peace of mind,are you having to have a lot of time off work,this cannot go down…[Read more]

Hi Sarah Jane

It,s all a bit mind blowing at first,and naturally you are worried about your child.Try to take one day at a time,and get help to sought out your problems,the easiest way to do it,is contact the Mac Millan Nurses.

They can help you with all forms,get things in place now because you will not feel like doing it later,blue…[Read more]

Hi Charlie and Mary

Glad to hear Charlie,s at home,not a bad thing to start on Velcade. I think it it is about time they used it as a first line drug,rather than second.
We all know everyone is different with all the drugs ,so I can only speak for Slim,Velcade worked,less side effects plus felt much better in himself,unable to sleep much,but…[Read more]