Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

I just wanted to say thanks again for all your kind words. I have been looking regularly at this discussion forum and it warms my heart to know that Paul was thought of so highly by so many people. Thanks especially to Steve: you will be pleased to know that on the day Paul was admitted to hospital this last time we'd been out for a 5 mile walk…[Read more]

Hi Etta

Glad you have got through your 100 days post SCT so well. It must be difficult for you to contemplate going back on treatment again. I hope that what folk have contributed is helpful. Are you going to go ahead with it? Presunably you get to give your view.

Best wishes and love.

Mavis x

Hi Keith

So glad you are feeling well in yourself, in spite of the low blood results. This is what is important isn't it!

Keep well. Best wishes for next week's readings.

Mavis

Dear Rachel

I was devastated by the news of Paul's death and my heart goes out to you. I had missed it because I don't usually visit the under 50's!

I always felt Paul was a near fellow traveller as we spent 33yrs of our married life in Calderdale. We only moved to Bradford to get adapted housing. As others have said, Paul was always so…[Read more]

Hi Emma

Welcome from me! You have had so much good advice from the others that there is not more than I can add, but wanted to say hello. I can sympathise with where you are coming from. I am 67yrs, diagnosed two years ago, and have one daughter and two young grandsons. Kate worries so much about them not knowing me as they grow up. Me,…[Read more]

Thank you so much to everyone for your kind comments. It is warming to know that Paul was in touch with so many people and offered support to so many of you. That was Paul – always helpful and always on the look out for who needed rescuing. He was 'Our hero' to me and Chloe, the foster child we look after every few weeks.
With love to all of you.…[Read more]

Hi Kate

Glad to hear you are still battling on wothout needing any more treatment.
Good to hear from you again.

Love,

Mavis x

Dear Dai

I am so glad you have at last got through what has obviously been a most horendous episode in your battle. How is it that we can see the very best AND the very worst of the NHS! You wonder if the Policy Makers really appreciate what it is like on the ground. If only we had the collective emotional energy and clout to do something…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Mike

Just wanted to welcome you to the site which none of us wanted to know about!!

All best wishes for the Trial. Glad you have so much faith in your Dr. it does help.

Look forward to hearing good progress.

Mavis

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]

Dear David

I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve

Dear Rachel

I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.

I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]