Gill
There never will be enough time,life and death goes on,but when you are in your situation,you just want the world to stop you will cope with Stephens death,Be brave save those tears for after.
I thought you might like this.

If there is a tomorrow when we are not together
There is something you must always remember
You are braver than…[Read more]

Hi Jacqui
I would like to make a comment about sugar in general concerning MM.
I know Slim has never taken sweeteners but enjoys white sugar in his tea,which I consider is bad.
During his treatment he developed a taste for puddings after dinner,normally he would not dream of eating anything sweet,he would drink wine with all its sugar.Now he…[Read more]

Hi,
My name is Eve I am a carer.Welcome to the site.
You ask questions,and expect answers with very little information for anyone to give an answer.

From what you are saying the person concerned had severe bone damage which in it,s self brings it,s own problems,as you have an aunt who had Myeloma and is still alive,she should be your first…[Read more]

Gosh, Cathy, Ivan really has gone through the wringer.

I hope his feeling like eating something (even if he didn't manage to eat it) is the start of things getting better for him.

Love
Eliz
XX
X

Great news, David!!

Love
Eliz
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X

David
What great news!! i am so glad that treatment is lined up for you as well.Thats made my day:-)
cheers Paul

Hi Tina
Good to hear its all underway,keep us all posted.
cheers Paul

Hi jacqui
I to have Lightchain Myeloma and have been told a similar things to you,I to would go for the clinical trial.I am due for a "allo-graph" in December and also been offered a clinical trial for that.
take care Paul

Hi Wendy
Happy 1st Anniversary Immune system! enjoy the sunshine Wendy.
cheers paul

Hi Andy

Sorry your journey is proving a long one, but at least you are bashing those PPs down.

Keep up the good fight. We are all rooting with you.

Best wishes.

Mavis

Congratulations Wendy!

May this be the first of MANY MM free years! Thanky you for being ready to share your experiences.

Love Mavis x

Hi Andy
Stick with it mate because it has taken me 3 different sorts of treatment in 12 months to get me to and through the SCT.They will get you to a point where you are ready for SCT.
Enjoy the lakes and maybe a Guinness or two?
cheers paul

Hi Eve & Slim
Fantastic news! I bet a large weight has been lifted from both your shoulders.I hope you both have a fantastic holiday:-) 🙂
cheers Paul

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]

Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]

Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)

My husband is on…[Read more]

Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]

Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]

Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]

Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.

When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]