Hi David
What a bummer,I have thought for a long time,you were preparing yourself for something,but I did not think this!!!!,do you think there might be someone sitting up there looking down,saying well you are having things to easy,I,ll give you some thing to think about?????

Well you show them David,if you can get through the Myeloma,the…[Read more]

Hi Cathy
I had my SCT 30 days ago so still very fresh in mind.Your husband is in isolation(a single room) which is hard,nursing staff will be in checking but also keeping contact to a minimum.Try to see this as a good thing as it will help to keep infections brought in to a minimum in my opinion.My appetite took a noise dive after the…[Read more]

Hi Cathy

7 days into SCT,sickness is what you can expect,have they not given you books to read about the procedure????.
It is not very nice to watch,but your husband will come out of this ok.
The reason the nurses have little contact is they try to keep him and other patients germ free,going from one isolation room to another,brings its own…[Read more]

Hi Gill
I had radiotherapy to neck/spine area when first diagnosed,this came up looking like bad sunburn.Nursing staff did fore worn me and gave me some cream for it.It went fairly quickly but has left me with a brownish patch on my throat area (looks like a permanent tan!).
take care paul

Dear Pat

We all know whgat a horrible time it is waiting for diagnosis and, unfortunately, with Myeloma, it seems to go on and on!

Sorry you have had to join our group, but hope you find as much support from it as we all do. It is true, you do have to rely on your friends at this time. Aren't we lucky to have good friends and colleagues…[Read more]

Hi Ange

Like everyone else I am sorry you have had to join us. It is very confusing that MM is such an individual disease and it is sometimes particularly confusing if you have high para protein levels but still don't need treatment yet. This will be because you haven't any organ or bone damage. I do hope this situation lasts for a long…[Read more]

Dear Dai

I'm glad you have the emotional energy to take up your complaint this time. So many of us let it go because we can't face the effort needed.

I think some of the weakness inb the system, which allows things to be so dirty, is the division between nursing and cleaning staff, and the division between cleaning staff and staff who…[Read more]

Dear Gill

Like everyone else I am sending good wishes and prayers for you and Stephen. I am so sorry you are having such a difficult and distressing time. I do pray that you find some solution soon. Bless you for your courage.

Lots of love to you both.

Mavis x

Hi Dai

Do hope, that at last, you are really beginning to feel you are winning. I am so sorry that you have been fighting the staff as well as the condition. Why does it have to be so difficult. I often think we would be better organinsing our own meds!!

Best wishes and all my love.

Mavis x

Hi Tina

Have a lovely holiday – you deserve it. I do hope the weather is kind to you.

Lots of love as you prepare for the next stage of the journey.

Mavis xxx

I am glad that his numbers went up enough for things to get started, Vicki!

It was great that his appetite was improved, hopefully the first of many good meals to build him up before the SCT.

Sending you both my best wishes for an uneventful weekend.

Love
Eliz
XX
X

We havent got to the steamfair for a few years, and left it too late to hire the "all terrain" mobility scooters onsite for this year, otherwise I would have threatened to call in and say Hello, Tina!

I hope you have a good few days (fingers crossed for not too much rain) and are able to return refreshed and fighting fit for your procedure in…[Read more]

Sending my love and best wishes for an uneventful progress to you both, Etta and Craig.

Love
Eliz
XX
X

Like the others I am hoping that no news is good news, Dai, and that you are either snugly tucked up in bed, with the nursing staff sorting out your latest infection or back home recuperating..

Love
Eliz
XX
X

Dear Gill,I am so sorry to read that things have gone this way for Stephen and you to cope with.

I am thinking of you and your family and sending all the good cyberthoughts I can your way.

Love
Eliz
XX
X

I've only just logged on after a few days absence and am sorry to read about this latest developement, David!

What a good thing you discovered a forum where you can get some good advice about the new cancer. Though sometimes the interweb gives us too much incorrect or outdated info, it is a blessing when it allows us to contact others with…[Read more]

Hi David
Sorry to hear the recent news,you are such a strong person and have lots of character!;-) .Its time to deep deep again and Vasbyte my friend.
Paul

Hi Gill & Stephen
So sorry to hear about Stephens on going problems,just to say that I am sending lots of positive thoughts to the both of you.Take care with all the driving Gill.
love PaulX

Hi Chloe
My consultant began the process of looking for a match once we knew that this was the route i was to travel.I dont know how long it took really but it did not seem that long,sorry could not be more exact.
take care Paul