OutdoorsPaul replied to the topic Dad's SCT in the forum Treatment 12 years, 3 months ago
Hi Chloe
By meaning "mini SCT" and looking for a match I presume your dad is having what is called an Allo graph transplant.I am going forward for my allo graph within the next 6 months and an excellent match has been found for me.You should get an apt with the consultant heading the team to discuss the procedure and answer questions.My…[Read more]
mhnevill replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 3 months ago
Dear Vicki and Colin
All best wishes as Plan B looms.
Mavis x
mhnevill replied to the topic Bendamustine next in the forum Treatment 12 years, 3 months ago
Dear Scott
All the best as you go down this new route. I always feel grateful to those of you who are trialing new pathways before the rest of us.
All best wishes for all those trips to hospital!
Mavis
mhnevill replied to the topic Nearing the End? in the forum End of Life and Grief 12 years, 3 months ago
Dear Gill
Hope things continue to go better for you and Stephen.
Dear Eliz, thank you for information about hoist. I am now working on Gordon to give it serious consideration, but you know what men can be like!
Best wishes to all.
Mavis x
mhnevill replied to the topic getting ready for stem cell tranceplant in the forum Newcomers 12 years, 3 months ago
Hi Angela
Sorry you have had to join our "merry" band and that you are having to cope with a hip replacement as well as MM.
I have had four hip replacement operations! I had an infected hip so had to have one replacement in two stages!! It is a very straight forward operation. I had all mine by epidural which isn't half as frightenining…[Read more]
Elizellen replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 3 months ago
Keeping every thing crossed over here too for Friday, Vicki and Colin!
[img]http://thepoliticalcarnival.net/wp-content/uploads/2011/12/fingers-crossed.jpg[/img]
Love
Eliz
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Elizellen replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
So glad to hear she is home at last!
[img]http://www.avatar.co.nz/wp-content/uploads/images/blog/home-sweet-home.jpg[/img]
Love
Eliz
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Elizellen replied to the topic My Mum – outcome of Velcade treatment in the forum Treatment 12 years, 3 months ago
What great positive results, Jill!
Your mum is my hero to have gone through so much and come out on top!!
[img]http://2.bp.blogspot.com/-Ah1sAaOB0wc/T_DbcvPNBwI/AAAAAAAAA_g/PWFp3Qc3_RI/s640/wonder-woman.jpg[/img]
Love
Eliz
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Elizellen replied to the topic Revlimid in the forum Treatment 12 years, 3 months ago
Comngratulations on getting that attendance allowance!!
I am sure it will help make things a little easier for you both.
Love
Eliz
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Elizellen replied to the topic Nearing the End? in the forum End of Life and Grief 12 years, 3 months ago
Mavis. we had a hoist fitted into our Berlingo and now our current Kangoo, and it is very easy to get my mobility scooter out and in even when on my own.
Ours is a pretty basic hoist, where the controls only move it up and down and we have to manually move the arm out and into the back of the car. But when I was lookin on ebay it was the only…[Read more]
Elizellen replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
I am glad you both had a good time!
Keeping my fingers crossed that you get to the next stage.
:ove
Eliz
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eve replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 3 months ago
Hi
Found it.Eve
mhnevill replied to the topic Nearing the End? in the forum End of Life and Grief 12 years, 3 months ago
Hi Gill
I am so glad that things aren't so grim for Stephen as first feared and that the radiotherepy is offering some hope of considerable improvement.
I do hope Stephen is able to get back driving soon. I have jsut begun driving again after five months. It feel very liberating. I have got as far as 20 miles on one trip. Unfortunately I…[Read more]
mhnevill replied to the topic Withdrawal? in the forum Side-effects 12 years, 3 months ago
Hi Tina
I am just over a week over six rounds of CDT. I still feel very tired, especially in the evenings, but I'm glad to say I am sleeping OK, apart from toilet stops!!
At least my taste is coming back, but, unfortunately, I am having problems with my teeth! Have been to the Dentist twice. If things don't improve I am going to have to…[Read more]
mhnevill replied to the topic Worst week ever in the forum Side-effects 12 years, 3 months ago
Dear Keith
Sorry that you are having to cope with the glucose discrepancies as well as the MM. Diabetes is a horrible complication I do hope your specialist can offer some helpful suggestions. It is hard to keep our spirits up when things are so difficult. Difficult for those around us!
Hope things get better for you soon.
Mavis
eve replied to the topic mgus check up in the forum Newcomers 12 years, 3 months ago
Hi Sue
Nice to hear from you,glad you have settled down and are coping with your diagnoses,many people on here are still at this stage for many many years,so lets hope as time goes by,your check ups will seem a bit easier.Although i know you must worry when the time comes round to be checked.
I do not think this worry leaves any one even…[Read more]
Elizellen replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
That is great news, Ali!!
Keeping my fingers crossed that those neutrophils continue to rise and your Mum gets her discharge papers as planned today.
[img]http://images.zaazu.com/img/Fingers-crossed-fingers-crossed-goodluck-luckiness-smiley-emoticon-000674-facebook.gif[/img]
Love
Eliz
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eve replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Tom
Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.
Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]
Elizellen replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Best wishes, Tom!!
Have a great day there even if you don't get picked to participate in the show.
Love
Eliz
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eve replied to the topic Myeloma X: Relapse (Intensive) Trial in the forum Treatment 12 years, 3 months ago
Hi Deborah
it does sound strange that your mums consultant did not offer an opinion,but I suppose if the trials are on offer at this hospital,it could be seen to either not supporting the trials,against his own believe.So I think your mum has to be very careful here.
If you go to the home page there is MUKS three trials,plus if you type trials…[Read more]