Hi Mavis
Yes i read jets blog/post,she is truly an inspiration and provides insight into my next step.
cheers Paul

Hi Lynne

So sorry to hear of John's passing, but you must, at least, be glad, that, at last, all his suffering, so bravely borne. is over. Like others, I am so glad you had a special four weeks at the end.

Do be kind to yourself in these coming weeks. You have been a wonderfully supportive wife and now it is time to let family and friends…[Read more]

Hi Paul

So glad to hear the SCT is over and relitively trouble free. As everyone says, do keep free from other folk's germs and hang on there for that break in October.

All best wishes as you wait for your Alo transplant. I have been interested to hear of Jet's progress since hers. Do you read her posts? You are brave souls.

Mavis x

Hi Andy and Steph

I am glad that the second opinion led to a better feeling. At least you were listened to and have been given some options for the future. I'm really glad you got the reassurance about the pp levels as they can be a bit terrifying can't they.

Very best wishes.

Mavis

Hi Vicki

I have only just finished six rounds of CDT, this week, and am not going on to SCT. I am feeling tired and a bit sicky. but at least food tastes better. I just wish I diidn't have some problems with my teeth which IU am getting sorted out.

I also have some pain in my back – where my myeloma also started. (I had to have a tumour…[Read more]

Hi Pat

Welcome to the forum from me too. Waiting seems to be a regular feature of coping with Myeloma. I do hope that, after this next week, you at least know whether you are coping with myeloma or not. You will then be advised about appropriate treatment. This is when, if it is myeloma, friends on here will really be able to help with…[Read more]

Hi Rach

Welcome from me to the forum. I am 67 yrs ans haven't gone down the route of SCT, but have just finished six rounds of CDT. I was interested in your post because I also had cancer of the uterus, but again, with no conection with the subsequent development of myeloma. I am very impressed by your Mum's resislience and the fact she is…[Read more]

Hi Only me

I have been wondering how things were,take what ever is on offer to get you through your mums death,it is a sad thing to say,but you have a year ahead,of birthdays and lots of things knowing your mum is not there,everyone of us tread this path,and I hope knowing your mum is free from pain makes it a bit easier,it,s your Dad who now…[Read more]

Hi Ali

To me this is were the hard work begins,your mum is going to feel great about coming out,and if she is not careful will over do it.This is were she needs looking after,I found it easy to do a bit of a chart,she will be coming out with lots of tablets to take at different times,plus she needs food and drink put in front of her,does not…[Read more]

Nothing like a good manicure and dazzling nail colour to perk a woman up!!

I hope you are having a great weekend away to gather strength for the coming news.

And welcome to the club nobody asked to join, Pat – just rant away any time you feel the need, it does us good to get it out there!!

Love
Eliz
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I am so glad you had such a useful meeting with your new consultant, Andy and Steph!!

And as a bonus to be able to meet a fellow board member too. 🙂

Love
Eliz
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Wow – what an event you have organised, John!!

I only wish I lived nearer to you so we could visit and join you at your chippy!!

Love
Eliz
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Great job done, Paul!! 🙂

Wishing you a similarly uneventful (and germfree) recovery and a lovely holiday before loins need to be girded for the allo procedure in 3 months.

Love
Eliz
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I am glad you managed the herculean task of getting that pesky form filled out, Penny!

It sounds as if both of you have a great positive attitude which I am sure will help keep you going.

Eve mentioned the mini recording device lots of us use so we can "listen again" after a consultation to reinforce our memory for what was said, so I…[Read more]

Hoping that your Mum is still progressing "as expected", Ali. I imagine her neutrophils are right down by now and possibly starting to edge back up.

Sending you, her and all your family cyberhugs – it will all soon be a distant memory I hope!!

Love
Eliz
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My husband was diagnosed as type 2 diabetic when he turned 55 years, and has gradually moved up the "ladder" with his medications. However 10 years ago (when he was 70) I dropped all grains and sugars (lowcarb eating) and he ate the same things that I was to encourage me.

After a few months on Atkins his numbers dropped right down to the…[Read more]

Oh Lynne, I am so sorry to hear that John has finally lost the battle.

I can only echo what others have said so much more eloquently than I can, and say I will be thinking of you and your family and sending cyberhugs.

Love
Eliz
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How great for you and Stephen that your Wizard of Oz has found something that he can do something about, Gill.

I have everything crossed for you both to enjoy many "laidback journeys" in the Jag – whether it is you or Stephen driving.

Love
Eliz
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Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]