Hi Vicki

Slims is on the left,as he is often the passenger in the car,it did rub the line a lot when we did the 3 hr drive from London,It looked a bit red but not infected,the whole area goes red,plus hot with infection,Slim had a little pus on his,so took antibiotics just incase,if you catch it early,it saves a lot of problems,I kept spare…[Read more]

Hi Vicky
Sorry things have not gone to plan,at least you know he might be able to try the other injections so do not get to down.
As for the Hickman Line,Slims went in on the 23 April and its still in!!!!! originally they said it will not come out until his platelets are over 75,and they are only 50 odd.Its just the flushing through every week…[Read more]

Hi Charlie

I live not far from Dover and my husband is treated at local hospital,we are lucky that we have the trials in SE Kent.Slim had to go to Kings for his Stem Cell Transplant it is the nearest for us.
I can only tell you the care was excellent,they are very experienced,and have some of the top myeloma specialist it seems to me a good…[Read more]

Gill – what wonderful news!!

Well done you for beating the odds and achieving remission despite all the problems you have had to cope with.

[img]http://angedelaube.files.wordpress.com/2010/11/tigger_piglet_dance_animated.gif?w=272&h=276[/img]

I'm doing the "happy dance" for you along with Piglet and Tigger!

You really deserve that…[Read more]

Welcome to the family, Michele!

I have had my treatments across town in Bournemouth Hospital, though I did have one Radiotherapy session at Poole in the first few months – between CDT and my SCT.

I am about 18 months in front of you, as I had my stem cells returned on 28 August 2010.

I am glad all went well and you are now back on your…[Read more]

Hi Tom and Helen

I know people fall into different degree,s of MM and Slim started off in a very bad place,It still took time to get AA plus disabled badge,Which I thought at the time was bad.IT did eventually come through,and helped us in many ways not as an extra perk,but money spent making like a lot easier for Slim.

As a lot of you know…[Read more]

Hi Tom
Just a quick question do you get DLA.???
Were would we be without your cheerful face,I am sure you are going to be one of the lucky ones and still going down to your club until your 100 years,They might give you free drinks by then .Love Eve

Hi Michele

Welcome to the Forum! Your experieinces will be valuable to others. Thank you for being willing to share.

I'm glad that your treatment has been successful. I do hope that this period of remission will be a very long one. As you say, it takes a while to realise, that a diagnosis of Myeloma isn't an instant death threat. I am…[Read more]

Hi David and Charlie
may be i should have said you are entitled to apply for AA,but you have to make sure you fill the square boxes with square pegs not round ones,8-)

Attendance Allowance is what it says if you need someone to attend you because you can not do things for yourself,may be just in the day or during the night.there are 2…[Read more]

Hi Di
The person I was thinking of goes under Clucky,so if you find the posting it should tell you a bit more about his treatment,its his wife who does the posting Eve

Hi Paul
The smell is enough to put you off sweetcorn for life,the funny thing was Slim could not smell it.
Eat as much as you can as it will not take long for you,to go off food and drink:-(
Lots of under wear you can just through away,its just so much hassle trying to drag you drip to the loo,so if you can get enough fluid inside you,it will…[Read more]

Good to hear all is going to plan,Paul 🙂

Love
Eliz
XX
X

Hi all
Thanks for the kind words of support,well it happened yesterday as planned and the smell of sweet corn followed.
I am unsure if there is a second batch in cold storage at this moment in time ,they used 8 bags so I suspect I got it all back but I will ask.I am struggling with internet connection but will up date when I can:-D
cheers Paul

Hi Tina

Do hope you have a great holiday. All best wishes for your SCT. Do let us know how you get on.

You may remember that I am not going down the SCT route so have had six rounds of CDT. Just 13 days to go and i am finished. The treatment has worked its stuff and my bloods are normal, first time since diagnosis, and PP undetectable.…[Read more]

Hi Kevin

I am just finishing my first, successful CDT (six rounds!) Certainly, I concur with you, leave the bif stuff off for as long as possible, especially as first CDT obviously did good for you.

All best wishes. Let us know how you get on. I think it is so important that we run our treatment regime not our Consultants. Fortuately, I…[Read more]

Hi Paul

I haven't posted for a while either, but I am delighted to hear that, at last, you have made it to SCT. I do hope and pray all goes well and that it leads to a very long and healthy remission. Glad you got a break before the treatment.

All very best wishes.

Mavis x

Hi Gill
Have to reply this way as no E mail address,So glad things are as well as you can expect them to be.
Hope you manage,what you both have planned.
You were just constantly in my thoughts with not posting,and you often see on here people just fade away.
Due up at Kings on the 8th.Not looking forward to the journey.EVE

Hi Dai
I can only comment about when Slim was on CTD,then VCD.
No outward effect at all,never even put on weight,but as you know taking large doses did disguise infection,and made him think he new best,insisting he was going home,when he was on his way to ITU!!!
Once I new how they effected him,I was able to relieve some of his side effects,by…[Read more]

Hi Mike

Like everyone else I am sorry you have had to join us, but take encouragement from us "oldies" that as diagnosis isn't the end of the world.

It is interesting that, at the moment, a lot of folk seem to be being diagnosed because of back problems. Do take care. I am glad your boss is being sympathetic, especially as the majority…[Read more]

Hi Dee
Just popped in to say hello,and wish you well.

I cannot help you with this there are a few people on here who have had kidney problems,I think there is a chap in the west country,who plays in a band,I know he had SCT even though he was having treatment for kidneys,if i am right he went on to have a machine at home for his kidneys.So do…[Read more]