Thank you Helen and Ozzy
For your replies,
When Slim was in hospital at Kings he had 5 units of platelets,Then when he was taken in to Canterbury hospital he was given 3 units of blood and 1 unit of Platelets,He has been out 10 days and had 2 more units of platelets,and we go in this afternoon for another unit.
I asked the consultant in…[Read more]

Hi Ozzy
Getting Myeloma does make you question,how you manage the rest of your life,I think in that respect it is not a bad thing as you value things more.

Ozzy if I am correct everyone has a certain amount of these cells in the bone marrow its when it goes above 5 it becomes an issue might be worth ringing Ellen,to confirm.!!!!

Have a good…[Read more]

What an amazing story!

Congratulations to Ann on achieving so much – she is definitely an inspiration to us all!!

Eliz
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My thoughts and prayers to you and your family at this sad time, Siobhan.

Like many of us here I never met or even spoke to your Mum, but her inspirational kind postings, private messages and emails helped me immensely especially at the beginning of my MM journey.

I will miss her immensely and think of her with fondness especially when I…[Read more]

Hi Sarah
Sorry I cannot help you with the rash,Henry does sound if he is over doing it a bit,but that,s what men do,the desire to be back to normal is strong,Slim is the same.I do not know if this is any help to you,but Slim has used a product called POLYTAR from boots,its for people who have trouble with skin,I also rub him down with coco butter…[Read more]

Siobhan
Really sorry to hear about the passing of your mum,she was so helpful to me when I first came onto the site.
love Paul

Hi Siobhan

My name is Eve,I left a massage for you on your mums facebook page,I kept looking out for your mum posting,because no matter how ill she felt she would always take time to reply to new posting.

She was a special lady and will be missed,as you say she is now out of so much pain,I am so glad her passing was peaceful,and hope all the…[Read more]

Hi Rachael

Its such a shock to the system, In many way,s your just glad you no what it is,we have all been there,if you keep reading the back post I am sure you will find lots of answers to you questions.

Only advice I can give you write you questions down before you see consultant,They see this thing every day and are so used to it,they…[Read more]

Hi Jane

You will have to go out and buy yourself a big floppy hat and factor 50 sun cream,lol. My brother who lives on the Wirral told me you actually had some sunshine the other,but you know what these scousers are like,all talk.:-)

Slims eating better,so he has a little bit more energy,its hard work for him as he has no taste buds left,so…[Read more]

Hi Roy
One word sums it up "inspirational!"
cheers Paul

Hi Stephen
Slim had his SCT and came home on the 1st of June,since then its 2 trips to local hospital each week to check on bloods plus any extra trips for platelets,he also spent 3 days in local for fluids,plus blood and platelets,have been back to Kings who are happy with him,and want to see him in 2 months.
My own opinion is this is were the…[Read more]

Hi Jen

We all felt like that at the very start,medical jargon test results and wondering what is going on.

Some people get confused like your dad,my husband is the same,there is no way i could let him go for treatment on his own,after 18 months of chemo and treatment,he is not the person who started this treatment,it does not happen to every…[Read more]

Well i have to say Stephen,they sounded if they did a good job on you,Slims was very different.

We travelled 86 mile went to chemo out patients were he was given his chemo to help generate BMC out into blood and sent home with a five day course of injections.Travelling 86 mile back. Total 172 mile round trip to Kings London from the south…[Read more]

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve

Hi Ian

You must be feeling a bit down,all that treatment and mm taking hold once again.i hope the velcade does the trick again and would be interested in the result as Velcade worked well for my hubby first time round,and its good to know what is round the corner.

Some times I wish I could swear on this site,and i am too old for the under…[Read more]

Hi Sue

Welcome to the site
Glad to see you managed to get some help with your questions,you should find on here if people cannot answer your questions they will point you in the right direction.

Let us know how things go with hubby remember there are people who are here to help you.Eve

Hi Sherif
I have come on your post just to say hello,and say I hope you find what you need,and wish your mother well Eve