Hi David

Its all coming out now,its not that you could not sleep,its because you did not want to sleep:-) . Must admit I have done a few champagne breakfast after all nighters the only problem was I could never remember who came to breakfast,so never kept in touch.(mess 41 commando unit) bar would not dream of chucking you out.

Had 4 hrs…[Read more]

Hi Dia and Tom

Well Tom I know I said I am just the carer,but I forgot to mention everything else,but as it would take,all day I will just except your praise:-P lol

Yesterday I took Slim to Kings starting off at 10am,getting there for 1pm and then spending hours waiting for bloods,doctor,then prescriptions ,getting away at 5pm,and getting…[Read more]

Dia

My eyes have so much grit it them,through lack of sleep,and I am just the carer :-SEve

Hi Mavis
Thanks for your wishers.

No such luck on the bloods,came out of hospital on Saturday,went yesterday to check bloods,phoned he needs platelets so back in to day,then check bloods again Wednesday,Then 86 miles to Kings Thursday.
Tried ringing Kings yesterday as Canterbury could not answer a question about injections,still waiting a…[Read more]

Hi Jen
You could be talking about my husband,except he had tumour on back,plus lesions on skull and shoulders after first CTD his bone marrow went up to 80%,so started Velcade which took it down to 6%,it was still going down,then he had his SCT and has come home,but is having a few blips on the way.

Slim has a chemo brain,I drive most of the…[Read more]

HI Dsvid

You just keep beating the markers. Not just for yorself, but for all of us because you are a real inspiration. I find it is my daughter who finds it encouraging that folk are beating the printed prognosis. For myself, I keep saying they are just numbers and we are all individuals. But, we are all human as well so we can't help…[Read more]

Hi Andy

Like everyone else I am sorry your remission only lasted such a short time. I think you are right not to go for a second SCT at the mement. I do hope Velcade works well for you and that you manage to get it by injection fairly soon. If so, do you do it yourself, or do you still have to have it done in Hospital?

All best wishes.

Mavis x

Hi Keith

I'm also so sorry to hear your news. Enjoy your holiday and come back with a positive head on!!! As Dai says, there are so many good stories at the moment with new drugs coming on line. Hang on in there. I know your positive attitude will see you through.

All good wishes.

Mavis x

Dear Eve

Do hope Slim is now home. At least there will be someone enjoying all the football on TV. I am fed up with it and it hasn't even really begun yet!!! Nothing else good on TV either now all the Jubilee coverage is finished.

Hope all your round of infectins is finished witha nd tht the bllos counts settle down.

All best…[Read more]

Dear Jean

Do hope your husband has good response to the Rev and DEx. A lot of folk seem to. With this MM it seems to be a step at a time. It is really good that he hasn't had bad side effects from earlier treatments so lets hope it is the same with this.

All best wishes.

Mavis

Hi Helen

I know,its just he has been here before and it took a lot out of him then,I was told then,he may never get back to the man he was,and they were right then,but give Slim his due he is a fighter,so fingers crossed.
I think it,s just me feeling sorry for myself,have given myself a kick up the bum:-P and Tom cheered me up 🙂

Going to…[Read more]

Hi David
I would agree, it just makes me wish I had put a high value on are years together 30 years together and 1 year married,I ask myself why we need such a wake up call as Myeloma to value what we are loosing.
I am feeling sorry for myself better give myself a kick up the bum.Love Eve

thanks Tom

It just what I need at this moment,a lovely man cheering me up and making me smile:-) 🙂 🙂

No they did not chuck him out,i think they have done all they can for him,because of this 100 day rule we are officially under Kings which is 86 miles away,they will keep looking at his bloods to see how he responds!!!!

I bought…[Read more]

Hi again Jeant

I was just looking through the post and thought I sounded very harsh I did not mean too, and must apologies to you.you are very worried and did not need me to tell you there is no answer.
The CRD has had good results its just about finding something that does the job,all the chemo,s have side effects and because people are…[Read more]

Hi Jo And Liz

Well my grumpy old man rang me at 8am yesterday to tell me he had been discharged so off I went to collect him,but when i got there,the doctor had made a mistake on paper work,so he had to be re discharged again by 11 he was loosing the plot,so all for a mistake in the paper work,Slim discharged himself,they were desperate for his…[Read more]

Hi Jean

Once when I was in the car with Slim,he was getting very jumpy and very annoying about my driving,he use to drive most of the time,i just came in handy when he had a drink and could not drive,but on this occasion we were on are way to hospital and he was so annoying i stopped the car.

He told me not to go any further as the car was…[Read more]

Hi Everyone

Helen it is a world wide Trial but it is not in all area,s of uk. I know in the South East Dr Pocop fought to get these trials allocated here.If they were not here Slim would not be on them as the nearest place that had them was Kings in London.86 miles away and sick patients would not be able to manage it.But you have the same…[Read more]

Hi
Oncologist this is a blood cancer were is the heamotologist ??????

Hi Jeant
My name is Eve,My husband has had CTD plus Velcade them SCT,I do not know any back ground,so it is very hard to make any comments.
The question you should be asking yourself is how much do I want to know,???

The experts have to answer your questions
So you must decide what you are going to ask.
If they are treating your husband…[Read more]

Hi Jean
Here are some tips that might help you

The anxiety is fairly normal,kicks in over silly things,Dex moments they are convinced they are right,so just remind him when he has taken his dex.Ormake a chart out of tablets then tick when anxiety starts tick under it,and you will see a patten emerge.
Massage seemed to help Slim and some one…[Read more]