Hi David

People on the Myeloma trials X1.are randomised by a computer after SCT.for maintenance therapy or no treatment,so it,s the luck of the draw.Great fun it is not.Love Eve

hi Karen
If your GP did an urgent referral you should have been seen with in 10 days.
Get on to your GP tell him that you have not had appointment through.This is the procedure.

Karen your pains could be a number of things,but if you start feeling sick or are in sever pain,you could have problems,after what happened to my husband I would…[Read more]

Just a quick reply

Min i think if you are not in a hospital that is dedicated to Myeloma your chances go down,as i said he is on a good ward fit for purpose,but when he was in A&E they were going to put him on a general ward,I told them side ward or private otherwise i take him home,someone got chucked out to provide bed.
The fact is the…[Read more]

Hi Jean
Sorry I did not send you some best wishers,when hubby started chemo ,I know how much it was getting to you,its strange when the time comes,you just accept this is the way it,s going to be:-P My thoughts have been with you,just not had the time to post much with so much going on in our lives.

Same apply,s for any one else I have…[Read more]

Hello Tom and Keith
Well he is nearly out.collecting him at 10 pm.Turns out borderline,so pumped with antibiotics lots of fluid,now having bloods and platelets,Appointments have been made for Mondays and Wednesdays for the next 100 days to check bloods.

He must be getting better because he is grumpy left him watching football,
So lets hope I…[Read more]

Hi Andy
If it is any help Slim had Velcade, and found it easier than CDT.except more visits to the hospital.Twice a week and twice a day.Bloods then Velcade hrs later.
Velcade is having a remarkable effect on some people.
Good luck Eve

Hi Jen

Sorry you have joined us but you have come to the best place.

First thing tomorrow ring Ellen she will be able to give you a quick run down and send you booklets.
Stop looking for a cause and and start learning as much as you can about the treatment,you are now on a journey and it is a big learning curve.
Myeloma is Staged and there…[Read more]

Hi Alison

I am replying to your post under treatment,it shows in my e mails but not on the board.When I looked into your profile it is not showing a posting,so I have used your last posting to reply.(does that make sense!!!!!)

I think the system is having it,s own blips as 2 of the headings have not been showing on my computer screen. Love Eve.

Hi Eve and Slim

What good news that Slim is home – the other side of the SCT. After all the problems you have faced to get to this point, it is great to hear this. AS Dai says, there is a lot more hill to climb, BUT you are on the right side!

Very best wishes to you both.

Mavis x

Hi Paul

In spite of disappointing weather, I hope that you managed a break and that your legs are less jelly like!!! Knowing you, another couple of months and you will be bouncing about.

I'm also suffering with steroid round face – wouldn't mind, but people keep commenting on it – as if I didn't know!!!

Lots of love to you both.

Mavis…

Hi Andy

Just a note to say glad numbers are moving in the right direction, even if slowly. Enjoy your break, hope the weather is kind – and be encouraged that something is working for you.

Very, very best wishes.

Mavis x

Hi Eva

How is Sue getting on,although Slim is home we have spent 2 days going back and fourth to are local hospital,Slim has a problem with his platelets on Sunday they were 33 today down to 7,there is fine explanation under the Macmillan Site.Explaining some of the reasons why this does happen .

One explanation is having platelets from…[Read more]

Hi Gail
Eve again just realised I am loosing the plot called Howard,Henry,My excuse is i was up with Slim during the night and I have not caught up from all the travelling to the hospital.Sorry Eve

Hi Gail

Sorry to hear henry is having a hard time,may be a little time in a hospice is what he needs.They will be able to get his symptoms under control and help with his anxiety this is what they do and a very fine job.

You said your self Henry,was behaving so out of character,I think we look on hospices as a place to die but they do so…[Read more]

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hello all
Took the dog out of a walk yesterday and today for 1hr and my legs are starting to feel better.Seem to have put on some Dex weight on again I feel like a budha.
Inst it amazing how the sun and wind on your face just makes things better:-)
cheers Paul

Hello All
Got out of Hospital late Friday night after 5 days in hooked up with 3 IV lines.Side effects wise just the usual Dex hiccups and feeling abit tired first thing in a morning.Taking things a little easy this week as 5 days on the ward have made my legs like jelly.So its fingers crossed ! Feeling positive again about meds and…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]