Dear Jill

I'm also devastated with the news about Stephen when he has fought such a brave fight against this dreaded MM. I guess he now does need to work out his own way to assimilate this news and work his own way through these next difficult months. I can understand his wish to go to France and be damned! I hope he manages to pull it…[Read more]

Dear Michelle

May I add my sympathies to you and all the family. You have been able to support your Mum through this very difficult journey and it is good that you were able to with her at the end.

This week will be a very difficult one, but may all the good memories you have of your life together sustain you as well as the thought that…[Read more]

Hi Jo

So glad you manged your holiday in Greece and have another planned for IoW later. It is a case of making the most of the chances. I'm so glad your PP levels are keeping stable. You are a real encouragement to me.

Much love.

Mavis xxx

Hi Keith

Like everyone else I hope your readings are just a blip.

Come what may I can't see why you shouldn't get your holiday.

Bdst wishes.

Mavis

Hi Ali
Sorry for late post as I have just spent a week in hospital.
Before anyone goes for a Stem cell transplant the medical team need to check that the persons heart,lungs are in working order,so various function tests are carried out and results sent to the consultant.
Cyclo priming lasts for 12hrs and you have various bags of chemo…[Read more]

Hi Antoinette

Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to…[Read more]

Hi John

Yes it is way down the list of side effects,and as you say may be men do not like to mention
It.Slims never been shy in that department.
Once Slim had antibiotics he was fine,he started bad P&N after he came off Velcade,but when he came to Kings they upped Amitryptiline and now his legs are fine.
Doing well at Kings I am having…[Read more]

Hi Jean

I think no matter if you are expecting it,everything seems like a bit of a blow as you have said 6 years is good. Every day is a new learning curve, in time it will just seem normal. So try not to worry,we have all been there before you and will help. You on this journey.

Frank has been caught early,so he does not have much bone…[Read more]

Hi Jo

Glad to see things are going well for you,sounds if you had a lovely time.

Better get planning another holiday as you have another 2 months clear.Love Eve

Great progress, Tina!!

🙂

It is so good to read of somone's good news! I am keeping my fingers crossed for another drop next month.

Eliz
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Hi Mari

Slims on Waddington,had to change wards as beds have to be seen to be filled with bodies all about filling beds these days,after 3 hour journey made him sit round for 2hours,as you can imagine I lost the plot a little bit,it worked,next day was moved to have chemo,only given half does as kidney function not good,after not having much…[Read more]

Hi Gill So sorry about the news,can understand how angry you must both feel, Slim says if this SCT does not work he will not have any more as 6 months not being able to travel abroad and no guarantees it will work is a lot out of life,We are travelling to NZ once this is…[Read more]

Hi Sarah and Henry

So glad you are now beginning a new chapter in your lives. I do hope that your remission goes on and on.

Very best wishes.

Mavis

I am so glad to hear that Henry is doing so well, Sarah!

I wish him all the best for his return to work.

Eliz
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Hi Vicki/Colin
Yes i still feel tired but once up and about with exercise you feel much better.If i am tired i just have a snooze.I have been off work since last Aug and my employers are very supportive.
cheers Paul

Hi Vicki
AS regards managing on a day to day basis my experience has been it depends at what point in the cycle you are and what meds you are on.You and Colin should start to notice a pattern of how Colin feels taking certain meds.
I.E When I take Dexamethasone over 4 days,day 1 is ok no problems..but days 2-4 my sense of taste goes out…[Read more]

Hi Vicki and Colin
I was diagnosed in Aug 2011 after my wife and I returned from one of our regular trips to Northen Scotland,cycling,camping,hill walking sort of stuff,I am 40 years old so one of the younger end on the site.
I cant remember what my initial counts were as my head was all over the place after the diagnosis.(I…[Read more]

Hi Min
Lovely to hear from you,glad to see you back,you were missed:-(

I have watched Reiki being done,and for the life of me i do not understand what they do,but it did work for Matty,plus a friend of my daughter who,s husband died age 38 years,it has a very calming effect,so I think bring it on,if it helps.
Stress has a terrible effect on…[Read more]