Hi Mari
Did Steve have enough stem cells or will they do another harvest!!!
Rosie my husband Slim is 68 this year and is having his first SCT starting Sunday,i think it,s not so much age,it,s how fit you are,because Slim had pneumonia which left scaring on his lungs,we thought they would say no,but they have said he is fit enough.They did decide…[Read more]

Hi Gail
I think the 3 cycle was the hardest for Slim,mainly because he was ill and we just thought it was the effect of the chemo,because he did not have a temperature, it was not picked up by our doctor or A&E,he had pneumonia and the steroids masked the infection.
So this is were you have to be firm if you think he is ill make sure they listen…[Read more]

Hi Peggy
BMB are not the nicest thing to have,but they will show what is going on with your bone marrow,because some times the kappa light chain readings do not reflect what is going on in the bone marrow.

Your BP reacts to your condition,it can go up and down if your nerves or upset,so take deep breaths and keep calm,:-P
Myeloma does take…[Read more]

Hi Tina

Sorry you have had such a horrible complication. It's not easy this journey, is it. I'm glad you got such a sympathetic nurse to answer your call because you do feel alone don't you. Have they adjusted your doses? I believe you are on the 28 day cycle (I am on 21 day one).

I went to the consultant yesterday, for what should…[Read more]

Hi Dai

What is it about these infections that they can come on completely unexpectedly. I have every sympathy with you trying to deal with it with paracetamol although it is a complete no, no! If my experieince is anything to go by, being in a general ward will have not been a bundle of laughs.

Glad you are back home, if weakened, and…[Read more]

Hi Vicki
I was diagnosed in Aug 11 with MM the Bence jones type,if you have any questions i will try to help.
cheers paul

Hi Everyone

Just Looking in,This is what we need,good news,Wendy and David,lets hope we hear lots more.love Eve

Hi Dai
Glad to read you are back home and building your strength back up.
cheers Paul

Hi Helen

Thanks for the encouragement.

Mavis x

Hi All!

Yes, it is good to get some good news of these continued remissions post SCTs. Shame you have to meet these three month hurdles, but I guess your bodies must be giving you some indication that all is still OK.

I hope for all of you that the news continues to be good.

Very best wishes.

Mavis x

Hi Craig and Etta

What a difficult year you have had. So glad that, at last, you can see light at the end of the tunnel.

Do keep us informed about the SCT. Do hope it goes smoothly, something must, surely! Here's to a long, long remission.

Very best wishes to you both.

Mavis

Hi Vicki

Sorry to have to welcome you and Colin to the Site, but I am sure you will find the support, and information you gain from being part of it, the best thing you have found. It has made such a difference to me.

It is good that Colin is able to maintain a reasonably normal way of life for the time being and that he is keeping…[Read more]

Good to get an update of how Etta is doing, Craig! 😀

I hope her date for an SCT comes soon so she can be over it and well enough to make the trip down under!

Best Wishes

Eliz
XX
X

Hi Helen

Thank you for your helpful comments. Glad to say that I have felt better today and have made a more determined effort to do a bit more getting around. Well, if you can count walking round the room with my zimmer half a dozen times, doing more!!!

I know I have to focus on the good outcome I am looking for at the end of the CDT.…[Read more]

Hi Andy

Strange how this MM takes everyone differently. At least if your bloods are OK the PP levels aren't having an adverse affect on your system which is the main thing. Hope the drugs soon kick the levels into touch. How are you coping with reactions to the regime?

Yes, do keep in touch.

Best wishes.

Mavis

Hi Eve

Will be thinking of you all this week and especially Slim as at last he has his transplant.

Not an easy time for you, but at least you have good times to look forward to once the SCT is behind you. Do keep us up todate with Slim's progress.

Lots of love.

Mavis xx

Dear Gail

Sorry we have had to welcome you to the site. I do hope you find it helpful to be able to share just how you feel. I am 67 yrs and I am the one with MM. I do feel for my husband as he just has had it all dumped on him. Same as with all the caregivers. We are so fortunate to have loved ones who do care. It is a hard journey for…[Read more]

Hi Gail

Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.

I use to worry about my husband,being very confused,plus lots of…[Read more]

Hello Jerry, I am sorry to hear of your father's ill health.

There is lots of information on this website with leaflets you can download to read through that might help clarify what is possible.

Click on this link and browse the various headings.
http://www.myeloma.org.uk/patient-services/myeloma-uk-publications/

Your English is…[Read more]