Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve

Hi Tina

I'm glad I'm not the only one who has had a couple of low days! I had my worst day yesterday. Day 18 or my second round of chemo. I had a hard job breathing and lots of back pain. I felt very low. Unusual for me. First time I'd asked myself what's it all for. Very sensible words from you Dai. Thank you. I guess this is the Dex…[Read more]

Hi All

Thank you all for your kindness it has helped over the last few days,as we have found it difficult even to mention it.So this did help.

We are going to have a celebration of Matty,s life on the 8th of May My daughter from NZ has come home,so although it is a time of sadness,there is a great deal of love and happiness around us as…[Read more]

Hi Lexi

I am up at this terrible hour,so i thought I would reply to your posting.

First may I welcome you,we are usually a happy bunch on here,who have either got Myeloma or are carers.

May i say,Smouldering Myeloma may never go into Myeloma,also some people have it for many many years,Ted on here is in his eighties and although his…[Read more]

Hi Helen and everyone for your kind wishes, I didnt end up in hospital but with another course of oral anti-biotics. B I can honestly say they have only made a minmal difference so I will be taking a bag to clinic this week Most days I cant stay awake for longer than 5 minutes, waliking upstairs is very scary as I am so weak now, probably due to…[Read more]

Dear Eve and Slim

What can we say? What a dreadful thing for your family to come to terms with. It always seems the wrong way round when a grandson dies.

My love and prayers are with you and all the family especially in these next few difficult days.

Mavis x

Hi Bridget

Like Helen and many others I have been missing you and write this in case you sign on.

I gather that you have been posting to Face Book but I don't post there. But i want to send you all my love and best wishes.

God bless you.

Mavis xxxx

Hi Tina

I am just ahead of you. Day 14 of second 21 day regime. Only side effects swollem ankles, slight taste change and very sleepy, but this could also be because of new pain control. Glad my hair has stayed thick!

I haven't had any difficult effects to Dex yet. Like you I wonder why we have to take so many tablets and some of them…[Read more]

Hi Stephen

Do hope that you continue to make good progress.

Keep in good heart.

Best wishes Mavis

Hi Andy

Welcome back. Sorry you have been bowled this googly. Glad you are over it now.

All the best as your Rex/Dex treatment continues.

Mavis

Dear Jacqui

Welcome to the Site. Sorry you have had to join us. It is good that you have responded so well to treatment so far. This bodes well for your SCT later.

All best wishes.

Mavis

Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx

Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx

Andy glad to see you back on track again.
cheers Paul

Hi Duncan
Sorry for not replying.

You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.

We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
I have some problems not connected with myeloma,so will be…[Read more]

Hi Stephen

Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.

They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]

Hello Ann!

I noticed this is your first post here, so welcome to the club none of us ever imagined we would be eligible to join.

I have not yet had Velcade (had CDT then a SCT in the summer of 2010) but think I recall other members here posting about having similar problems. I am sure some of them will soon post with their own stories of…[Read more]

Great to hear your news, Wendy!!

Long may it continue! 🙂

Eliz
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Eve
I am so sorry to hear this news,my thoughts are with you and your family.
love Paul

Oh Eve, I am so sorry to hear the sad news of your family's loss.

My thoughts and prayers are with you all at this difficult time.

Eliz
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