Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]

Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Good spot, Jorge!

It certainly looks like an error to me.

Eliz
XX
X

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]

Hi Ian

I have had swollen ankles while on my first dose of CDT. Partly, because I haven't been moving much. I have found if I work my feet, while sitting down, they aren't as bad. The consultant says nothing to worry about and don't need water pills at the moment. Must say, they are very unsightly though!

Hope things go well with…[Read more]

Hi Jo

Tahnk yu for your support and prayers over the past three weeks.

Glad there was something to make the hospital visit more pleasant. It does make a difference doesn't it. We spend so long in these places. Great that some folk are able to raise money to support these intitiatives.

My daugher has just signed on to do the "Race for…[Read more]

Hi Helen

So sorry you have this to deal with on top of everything else. Thing to remember on all these interviews/questionnaires is, you must answer as to how you feel on "bad" days not "good". You do yourself no favours by being brave.

After all, what's a OH interview upto ALL you hve been through recently.

I would have thought the best…[Read more]

Hi Susie

So sorry you have had to join our "merry" band! We all know what it is to be waiting for results and dreading the outcome. I do hope that you have some time without having to procede to chemo. I was very fortunate and had 17 months between my operation to remove a tumour and progression. Thing was though, it did come as a shock…[Read more]

Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve

Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Welcopme Jorge

Sorry you are having to cope with the devastating diagnosis of MM on your own. I am sure you will find this site very supportive as you settle back in Ireland.

All good wishes.

Mavis

Hi Dai

Sorry that the pain in your shoulder is still as bad. Interestingly, I have had a lot ofpain in my left shoulder and can't take any weight on it. They have provided me with a riser to get in and poutof bed with. Mt Consultant did have an xray done on mine and it turns out it isn't broken, but is probably arthritic. If yours is, maybe…[Read more]

Hi Helen
The "right of the ostrich" love it….!:-D I may use that right at some stage myself.
keep us up dated
cheers Paul