Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]

Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

Hi Andy
I asked my consultant about alcohol and she says 2 small glasses of red wine is allowed on a weekend.(or equivalent)
Personally i think your body will tell you whats right, and going out every so often is a good thing.
I am currently on valcade,Dex,Doxorubicin and on 1 week take all three and my sense taste goes completely out of…[Read more]

Eve asked[quote]I would like to know how you do the picture bit on here [/quote]It is quite simple once you have the url of the picture.

First click on the url and copy it (press the Ctrl key and the letter C at the same time) then look above the text box that appears when you click "Reply" or "create new discussion".

Just beneath the word…[Read more]

Andy wrote[quote]Live life to the max![/quote]Great positive attitude, Andy!!

Eliz
XX
X

Helen asked[quote]And Elizabeth, how did you do that enormous smiley? [/quote]
Simples!!

I spotted yesterday that there is now an "image" button along the top of the Reply box (bneath the word "Message"), so all I needed to do once I had googled a suitable smiley was to copy its URL into the text box that appeared when I clicked the image…[Read more]

Thanks Eliza

I have one,but I would like to know how you do the picture bit on here the smiley face was great and now the gadget????Love Eve

Hi Everyone
Nice to see you all in a good spirited mood on this beautiful day 1 st of April,it always gives me the feeling that spring is here although its a bit cold outside.Should be a glorious month for the spring flowers.
Hi Jo nice to hear from you,have you been off on holidays again!! will not be long before Helen,s off to NZ should be…[Read more]

Hi Dai I am not at all surprised that you and Janet have such a lovely kind ,caring daughter as your compassion and giving nature shine off theses pages You must be so proud . I have never had lofty materialistic ambitions for my children , I raised them to be good people and I am also very proud of their care for others If they had made a forune…[Read more]

WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]

Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x

Thanks Tom Eliz and Dai
It did take 2 days Tom as the first bloods came in at only 19%,the man next to Slim came in with88%,the first day they got 1.9,so Slim injected him self at 7pm and 7am,that seem to do the trick.4.02 overall .They rang up the same night each time to let us know.which I though was very thoughtful of them.

I have been…[Read more]

Well done, Slim on getting all those little cells out!
[img]http://jacksoncooper.com/wp-content/uploads/2012/01/thumbs_up_smiley.gif.jpeg[/img]
I only managed just over 2 million in 3 days. 🙁

I am glad you have persuaded them to organise your appointments better. Though it will be a long tiring day for both of you so try and get some rest…[Read more]

I was sorry to read you were back in hospital, Mavis.

I hope it won't be too long till you are able to move around more easily and that things are organised to help you manage at home soon.

Eliz
XX
X

Hi Steph!

I am glad you are posting here as well as Andy.

AS the others have said, anything you want to ask or moan about is fine with us, as someone here will be able to at least emphathise if not suggest ways around difficulties.

Eliz
X
X

Great news, David!

I hope you continue the same for many months to come.

Eliz
XX
X