Hi David

All good news,must admit was getting a bit worried as you seem to be putting your house in order,I suppose this Myeloma lives with us all the time,and its presents is felt when the time comes to see the consultants.!!!

So what have you planned another cruise,or just a good summer in good old blighty.???
What ever is just enjoy.love Eve

Hi Steph

Welcome as a carer you will have different concerns so i hope this site gives you some in sight,any time your worried or just need a bit of a boost it is worth coming on,so do not be a stranger,this myeloma affects people in different ways this is why they say its such an individual illness.

It is hard at first because you are…[Read more]

Hi Mavis
The things you do,to land your self in hospital,I hope they are waiting on you hand and foot,LOL only joking it,s a scary time for you,but the good news no compression on the spine,that must be a huge relief for you,you are in the best place as the main thing is to get you a good pain relieve,plus get you on your pins.

It amazes me…[Read more]

Hi Andy
Sorry to here your news,this just might be some help to you!!!!

In the under fifty ,s there is a chap called Mike Barker who,if i am correct has SCT when his PP were high,again if i read about it correctly,he decided with his consultant to go ahead with SCT.
It might be worth checking his post!!! I do not think he has posted for some…[Read more]

Dear Dai, Jean, Gill, Helen, Tom, Jo and Paul,

I knew, once I could get on line I would get some nice re-assuring feed-back from "them that know!" Getting over the shock of a;ll this bone damage and trying to put the threat of stress factors to the back of my mind. Like you Dai, I have problems with my shoulders, but they are keeping me in…[Read more]

Dear Jill and Stephen

Can't tell you how much it cheered me up to come in on the end of these postings to hear that you are off to France and it was bu__er all! Scary days some are, aren't they.

Go and have some really chill out times, but hopefully not chilly!

Lots of love.

Mavis

Hi Andy

Sorry things aren't going as hoped with treatment. I can understand just how frustrated you must have been to have spent all that time in Hospitasl hooked up on infusion for it not to have the desired result. Might it have a delayed efffect? I am sending many positive thoughts and prayers that things can move towards a SCT soon.…[Read more]

So pleased for you David.

Keep on being positive – I'm sure you can have lots of years of remission.

Much love.

Mavis

Hi Steve and Andy.

Welcome from me too. It is good that you are now both on site as I am sure that both of you, with your differering support needs will find the help and information you need.

Wonder what treatment Andy is having? Hope things are moving in a good direction.

Very best wishes.

Mavis

Hi Mavis
My consultant told me last week after my PET scan that my left ribs and sternum were were weaker(lesions).My consultant is great and she knows that I ride a mountain bike (when meds allow me!) which inst often enough.She now tells me "stay off the bike till after SCT"
All these things can come out of the blue abit and change…[Read more]

Hello Steph and Andy
Glad you finding the site both informative and supportive,your right its a whole new ball game but there's lots of people on here who can give good advice.:-D

Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x

Dear Dai

AS you say in another post, it isn't a walk in the park, but if this maintainance regime keeps MM at bay while you waith fornthe next best thing, it must be good. More time with your lovely family.

Lots of love.

Mavis

Hi Ian

Glad this exceptional procedure seems to be doing the job for you. I am so proud of those of yo who try these new ideas out.

Very best wishes.

Mavis

Hi terry

I think it is marvellous that you felt able to text so soon with the additional problems you have had to deal with. It feels so terrible when folk seem to ignore you because of their defficiencies, not yours. They should know better.

Glad others were ablt to give you advice about the coldness. One thing I'd say is, if yopu start…[Read more]

Hi Kirsty

Soory I missed welcomimg you earlier, for reasons I will be writing about in a minute. Still, as always, everyone else has done a good job of saying hello from the site none of us wanted to join! I find it so helpful and supportive and learn so much.

Of course you will be finding all this hard to take on boeard – who wouldn't!…[Read more]

Hi Kirsty
I was diagnosed last Aug at 39 and it was abit of a bomb shell as well,but the people on this site a great and always happy to support where can.I turned 40 in December and currently on valcade injections and awaiting stem cell transplant.You will come across medical jargon….if unsure just ask we are all on a learning…[Read more]