Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x

Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]

Thanks for the info Bridget,I will give that a shot.Hope you enjoying the lovely sunshine.Just for your info on the Benefits issues i managed to claim Employment support allowance so i have entered the system!!!thanks for the support.
Love outdoors Paul
PS Rachel and I off to Scotland next week to small Island called Cumbrae for 4…[Read more]

Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x

Hi Kirsty!

Welcome to the club you never asked to join.

I was turned 60 and like you I took a while to accept that I could be diagnosed with a disease that I had never even heard of, as I had thought I was suffering from "just" a bad back and was actually expecting to be offered back surgery, but my consultant soon got things in…[Read more]

What great news for you both, Gill!!

I wish you a wonderful trip.

Eliz
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Hi Eve
Unsure if I have read your e-mail right but here goes.I have received my letter for SCT.The process explained to me is as follows.
I had tests for heart,lungs and CT and MRI and only one still to do is a dental check.That should be fine as i go often.
My cyclo priming is on 14th May with harvest due 23rd/24th/25th May at St James…[Read more]

Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]

Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x

Dear Jean I am so sorry your brother has gone From your description he sounds like a lovely man Hang on to a lifetimes memories Jean he will always be a part of you . I hope Alex is able to celebrate her birthday too I hope you can take some comfort that you were able to be with him Jean . lots of love Bridget x

Dear Gill what a bugger!! I really hope it turns out to a minor blip ! Gill having been at the point Stephen is on more than one occasion my advice is dont panic yet ! Stephens doctors will be actively looking for the best possible trerment for him There is radiotherapy as one possible option , longer term there is Bendamustine which although it…[Read more]

Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]

Hi Dai you are so right the lack of information to people who could be eligible for benefits is a disgrace Especially when there are politically engineered media campaigns to shop benefit cheats, the latest being anyone claiming DLA It makes my blood boil that they think we are all so gullible and stupid and could be conned by these manipulations…[Read more]

Hi Tom sorry didnt see your post this morning, mind I dont see much in the morning I am a bit like a zombie before 10 am !! Thats the trouble with Thalidomide it totally knocks me out at night and I am useless when I first wake up!! You wouldnt believe the times I have dozed off with a cuppa in my hand If I shut my eyes my grandson usually…[Read more]

Hi Carol sorry to hear you are having pain trouble it can really get you down cant it Still great news that the mri ruled out anything nasty though Hopefully this spell of warm weather will help a little If nothing else the sun makes us all feel a bit more cheerful Keep smiling your lovely smile love Bridget x

Thanks Dai it never hurts to be reminded how important it is to eat healthily love Bridget x