Hi Dai

Sorry i have missed your post.Rearly good to hear new treatment is working,and you have some releave from the pain.

Finding i cannot keep up with the post,think its because as things improved with Slim,my middle of the night,being wide awake has faded and now sleeping well myself,
It is lovely to hear the old Dai back again,Love Eve

Hi Andy

Great! By the time you read this your drastic treatment round will be over. Do hope that the recovery time isn't as bad as feared and that you keep free of infection. We will all look forward to hearing that those PP levels have shrunk beyond imagining.

Sending you lots of positive thoughts.

Mavis

I am another yellow liner, here! A year or so ago our hospital car park started to charge Blue Badgers but there are still a few spots with double yellows which are fairly near the entrances, so most times we don't have to pay.

Hi Tom
Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine…[Read more]

Hi Nicole I am so sorry you didnt have longer with your dad but take some comfort that he is no longer in pain . He was with the people he loved and that must have meant a lot to him .He will always be with you try and remember all the good times to get you through As Helen said live your life well that will be the best tribute to your dad Stay…[Read more]

Hello to another Mavis

So sorry you have had to join us, but do take some comfort from what everyone is saying, that there are lots of options – more all the time. Of course you will all be in shock, but you will be surprised how much courage you find you have.

Best wishes to all the family.

Mavis N

Hi Dai

Like everyone else I am delighted that the Rev and Dex are doing the trick. Long may it last. So glad the pain is already coming under control – that will make life so much better. You sound much more like your old self.

Very best wishes and prayers.

Mavis.

Hello David
Are you on Dex? a side effect of Dex can be hiccups (i get them)I have found that metaclopramide (anti sickness tab)helps to ease or stop them.
otherwise hope you are well and enjoying spring weather.
cheers Paul

Dai
Just scanning through posts and its good to see your early indications are that the meds are working.
enjoy the spring weather
cheers Paul

Hi Dai I am so pleased for you It is such a boost when test results are good and as you said now you know Rev and Dex are getting on with the business of getting the beast back in its lair!! I hope it gets rid of your shoulder pain quickly , no wonder you were feeling down pain like that is so unrelenting Heres to the future Dai its looking good…[Read more]

Hi Viv

Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.

You have had Cancer yourself so you know the problems,We live in this world of…[Read more]

Hi Joe

Well done for going back to Uni. Very brave of you and bound to be difficult. Do be kind to yourself. Of course you will have times when you feel tearful – it shows how much you cared for your Dad. You can't just airbrush him out of your thinking. Expect this to go on for a good while. Iy is quite usual. It would be a very very…[Read more]

Hi Janet

Like everyone else, I am sorry that your remission seems to be fading. One thing about "forgetting" to ask "what next?" is that you aren't being rushed into a new decision but have time to think about the kind of treatment you might prefer.

All best wishes.

Mavis

Hi Eve
Thanks for the post-I have just been entitled to ESA which is helpful.I have applied for others so we will see.I to have never claimed and always find myself saying i,ll manage.But I now tend to agree that I am entitled to claim where able.Hope you and Slim well and thank you for the support.
cheers Paul

Hi David hope you start to feel better very soon love Bridget x

Hi Janet no wonder you are devastated five years is a long time to be in remission As Nettie said though there are so many new treatments available now and more in the pipeline which look promising Remember your doctors can suggest a treatment but the choice is yours! If you really dont want to go through an sct again they will suggest other…[Read more]

Hi Dai I second that the world is definitely a nicer place for all of us if the sun shines!! Like you I dont miss alcohol To be honest I only drank on rare occasions , mainly because it acted like poison and caused 2 day hangovers from hell !! No problem when I was young and out all the time but my consumption dropped when I had children and it…[Read more]

Thank you everyone for your good wishes,

Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!

Next appointment next…[Read more]

Hi Tom I am not too bad thanks You are so right about the warmer weather nothing makes me more miserable than being cold!! A little sunshine makes everyone happier , even getting served in a shop is nicer cos the staff smile back at you on a sunny day!! Unfortunately wine is a no-go for me , I havent had a drink since I was diagnosed 5 years ago ,…[Read more]

Hi Bridget

You sound as if you have had more fun and games. As if you don't spend enough time at Hospitals! Glad to hear your grandson seems to have saved his teeth. It is a big thing.

Glad it sounds as if you are keeping the pain at bay. I know it would be a bit uncomfortable but couldn't they give you some modern version of a back…[Read more]