Hi Dave

Interested by your reply. Someone else on the site said their Consultant said PP of 30 before any treatment, if no other problems with blood and kidneys, but when I asked my Consultant, she said she'd rather go by how the PP was rising, i.e. whether steeply or slowly.

Aim of all other treatments is to get PP down to zero for full…[Read more]

Hi Alan sorry you didnt get enough cells today try not to worry though the little blighters will be fighting to get out by Wednesday!! I had a similiar situation , the first two days I hardly produced any but on the last day they got more than enough Good luck Bridget

Hello Alan and Dave
Welcome to the site.

Dave pp levels at 6,it just might be a blip,Jo on here had food poisoning and her levels went up,only to go down again when she was better,its going to be a hard 6 weeks waiting for next blood test.As to new treatments as Gill said lots in the pipe line,

Alan there are lots of people who had SCT on…[Read more]

Hi Glenn!

I was wondering how your kyphoplasty operation went and how you are feeling now.

Eliz
XX
X

Fantastic News, Tom!! 😀

Long may you stay treatment-free!!

Eliz
XX
X

Hi Tina
No,no break,if your on intensive pathway,if you have bad side effects they can reduce dose,4 days of dex is very full on.If you have problems please mention them .At least you will only go to hospital for bloods,tablets and Zometa,if you hospital is well organised should be able to do it in 1 trip.

Try not to worry everything will fall…[Read more]

Hi Everyone

Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL

Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]

Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.

I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]

Hi Dave welcome sorry but I havent got any useful information for you about second scts at your age It seems each hospital has its own protocol and cut off point. If your pps are rising slowly and there are no other symptoms then maybe the drugs available now would be a safer option Good luck in making your decision Bridget

Hi Dave

Welcome! It will be encouraging to folk reading your post that you have managed to dance with this dreaded MM successfully for so long.

As your PP levels are so low and you have no other symptoms, why would you be thinking of any treatment at the moment?

I haven't had a SCT. My current PP is 13 and I have no inclination to go…[Read more]

Hi Sylvia the gremlins manage to hide a few posts on here just like they hide things in my house!! I cant remember where I posted it either ! Its good to hear from you though Stay well love Bridget x

Hi Dai

Maybe things will work out for you for once. When you have the screenings you might be accepted on the Trial without the "p" results!!!!!

Sending lots of positive vibes for Monday.

Mavis

Dear, dear Bridget.

Will pray that this one dose of radiotherepy does have a good effect on the pain, also that they will agree to another MRI. So sorry you need one as I know you find them so painful, but at least it will be able to give you peace of mind. I'm glad that NHS money is being spent on you – it couldn't go to a better…[Read more]

Hi Tina

I can see that thinking about the Trial is daunting, but at least you know that you will be monitored very, very closely and doses will be adjusted if side effects are too bad.

All best wishes.

Mavis x

Hi Tom

Like everyone else I am delighted at your news. Fancy, nothing at all! I think once monthly zometa is good, but nothing, that's amazing! Couldn't happen to a nicer person!

Also hope we still hear from you from time to time.

Very best wishes for a long, long, phase of nothing.

Mavis x

Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(

We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.

Love Eve

Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]

Whooppee!! Thats the sort of news that cheers us all up Tom !! Enjoy yourself love Bridgetx

Hi Kerry
Sounds like like you guys are are really strong, stick with it as people have said the medical team will have treatment options so just ask them thats really important.The more you ask the better informed you are.
take care:-D
Paul