Thank you Bridget,

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

Hi Mavis…Sorry for late reply.

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

Dear Sue thank you for thinking of me when you and Michael have so much on your plate too. I know how Michael feels about not knowing being the worst it is making me nervous too Today is the third day my dex pulse 40 mg a day for 4 days to try and stop the tumour from getting any bigger and crushing the spinal nerves Trouble is dex is just awful…[Read more]

Hi Liz thankyou I feel very lucky to have the support from you and all my cyber friends on here its what makes this site so special Take care and hope you have a good weekend love Bridget x

Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the…[Read more]

Hi Nikki
Your Auntie maggie seems to be one tough cookie to not realise she had a broken jaw, lesions are often there in advanced myeloma they should respond to treatment sounds if Maggie is on CTD which which is first line treatment.

The issue seems more to do with your aunties lung situation,swelling when people are bed ridden is usually…[Read more]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy…[Read more]

Hi Pilgrim
Well lets start as we mean to go on,plasma cells,every person has up to 5% in there bone marrow,this is normal,I wish that my husband had that.
Who needs a left arm,any person that does not have the use of one.
I hope you are breaking open the champagne as I type,or may I suggest walking a mile in some ones shoes who has a disability…[Read more]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no…[Read more]

Dear Ros

Sorry for the loss of your friend on top of everything else. You were very brave to be going on your own today. I do hope you coped well and thast the service brought some comfort. At least your friend, like Michael is now free from pain.

I'm sure your counsellor is right – you it is as if you have lost three people. I can't…[Read more]

Hi Dai

It really does seem one step forward, one back for you. Oh the frustration of not having enough pp! Sounds crazy doesn't it. Do hope you make the Trial. Something must work out for you soon. As you say, at least you respond well while on the therepy – trouble is the limitations it places on your life.

Sending all good wishes and…[Read more]

Dear Bridget

My dear cyber friend, I could have wept when I read your post which I have just caught up with. I have been thinking about you and thinking I might post to see how you are. Now I know – what a downer. I shall put you on our daily prayer list so I send you positive thoughts each day! We all love your positive attitude on here.…[Read more]

Hi Bridget
Sorry to hear your news,lets hope they can treat the area with Radiotherapy again,lets hope you can go on one of the new trials coming out.

Hope you are enjoying your new computer,and enjoying your days .Eve

Hi Tina
As Mavis says there are lots of trials and treatments.
my husband is on MX1 trial,but trial or no trial some were along the treatment you will get the offer of SCT if you are fit,but that is usually way down the line.

You need to find out all the information about the trial offered and if you need some answers from the patient or…[Read more]

Hi Kerry
Welcome to this site,i will not even try to tell you not to worry,but advise you to learn all you can and things will not seem so scary,ask for booklets at the hospital or phone Ellen who will send you some.

Blood clots not very nice but once treated and on going treatment for them during Chemo solves the problem.they can be part of…[Read more]

Hi Sue

So sorry to hear that you and Michael are having such a hard time. Do hope you both turn the corner soon.

Lots of love.

Mavis x

Hi Tina

Welcome to you too! Sorry you've had to join us. Do hope your shoulder is healing well and you are getting movement back. Was this because of MM or because of arthritis? I have both!

I haven't had a SCT but there are lots of folk on here who can give you advice.

All best wishes.

Mavis x

Hi Geri

Welcome to the Site. Sorry you have had to join us after evading it for four years. You have a lot to cope with with Crohns and your impending operation. You need all your positive thinking to help you thorugh. I know it does make a difference.

Sorry you are having all this bone involvement. Have you been on Zometa infusions? I…[Read more]

Hi Tina

A welcome to the Site from me too – sorry you have had to join us. Perhaps you could give us a bit more information on how you got to the point of diagnosis: there are so many routes, as you will find out!

Lots of folk on here have has SCT and can give advice. Also, Trials give access to the latest thinking and very close…[Read more]

Hi Kerry no wonder you are scaredits so bewildering and frightening at first but it will get better The plasmacytoma can be treated with steroids initially to reduce it and then radiotherapy is amazing at getting rid of tumours , I dont know if thats appropriate for your partner but I am sure his doctors will be looking at the best and quickest…[Read more]