mhnevill replied to the topic Scared…everything is happening! in the forum Newcomers 13 years, 8 months ago
Hi Kerry
Sorry to have to welcome you to this special Site where we are all fighting the dreaded MM. You will find lots of support here.
No wonder you feel phased – you both have so much to handle at the moment.
First things first. If Melvin is still in lots of pain tell him to ask to see the Hospital's Pain Team, if he hasn't already.…[Read more]
keznmel started the topic Scared…everything is happening!. in the forum Newcomers 13 years, 8 months ago
Hi there…
My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 8 months ago
Evening all I have now ordered the laptop from PC World who say I am saving £220 , well dont believe that but I am saving a £100 so very chuffed !! And it will arrive on Thursday yippee !What a difference a day makes love Bridget x
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 8 months ago
Hi Roberta lovely to hear from you and thankyou for your kind words. Sorry you have been unwell I hopethings start to get better for you very soonStay in touch when you are up to it love Bridget x
brocho replied to the topic Same old same old (ish)… in the forum Treatment 13 years, 8 months ago
Hi Dai sorry I havent got round to answering you yet Revlimid , Velcade and Bendamustine failed to make any impact over periods of more than 3 months Each time a new tumour developed the latest is not the most painfulbut seems to have become very large in a short space of time so a bit scary especially the risk of paralysis I will certainly enjoy…[Read more]
brocho replied to the topic Same old same old (ish)… in the forum Treatment 13 years, 8 months ago
Hi Dai it is such a nuisance when you cant get the results when you need them! Like you I used to be very responsive to blood tests until after my first relapse , since then I have become a non-secretor This is likely to excludeme from some trials as they will be unable to measure performance It is so frustrating so I know how you feel although…[Read more]
mhnevill replied to the topic My GP asked if I'd heard of myeloma in the forum Newcomers 13 years, 8 months ago
Graham, All the best for Thursday.
Mavis
And Hi Tom
Thanks for that info. very interesting.
Keep battling on!
Best wishes Mavis
brocho replied to the topic Worth watching and reading in the forum Off topic 13 years, 8 months ago
Hi Jean I got a bad fit of the giggles reading your post I could just picture it!! The other thing that struck me is how innocent people were in the fifties, so different from now Roll on Sunday evening ! love Bridget x
brocho started the topic Worth watching and reading. in the forum Off topic 13 years, 8 months ago
Hi everyone I have been watching Call the Midwife on BBC1, Sunday evenings and its brilliant mainly because it brought back so many childhood memories. I am amazed how much the way we live has changed in such a relatively short time , its set in 1957. I bought the books which are memoirs written by Jennifer Worth who was a nurse for over 20 years…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 8 months ago
Thankyou John, David and Min how good it is to have friends who care I am as calm as can be really Had to tell the kids in a very matter of fact way so that they dont panic which helps me get a grip As you say Min tomorrow is another day and there is no choice but to get on with it! Mind you there might be a bit of whinging after 4 days of the…[Read more]
brocho replied to the topic LUMBAR KYPHOPLASTY in the forum General 13 years, 8 months ago
Hi Glenn great news about your tumour Heres hoping you get your sct very soon and have a very lng remission love Bridget x
brocho started the topic HERE WE GO AGAIN !!. in the forum Treatment 13 years, 8 months ago
Hi everyone hope you are having a good day. I thought I would give you an up date of my myeloma saga. I had an mri on Saturday , which was very painful lying flat is not kind to my back Today I had a call from one of my doctors, who informed me they had reviewed my mri in their mdt meeting this morning To cut a long story short Bendamustine…[Read more]
brocho replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 8 months ago
Hi Mal and Bruce good luck for tomorrow hope all goes well love Bridget x
brocho replied to the topic newly diagnosed. in the forum Newcomers 13 years, 8 months ago
Hi Tina and Geraldine welcome to the best support site there is!! Its good to hear you have faith in your doctors it makes such a difference Although you are probably feeling overwhemed at the thought of chemo and stem cell transplant at the moment it will gradually all make sense and become less scary Lots of people on here have had a stem cell…[Read more]
brocho replied to the topic week of firsts in the forum End of Life and Grief 13 years, 8 months ago
Hi Min I am so glad you had a good week even if it was exhausting !! I did worry about you on your birthday as it must be very hrd without Peter there but I am glad it wasnt as bad as you thought it would be . Hope you have lots of fun with your grandaughter even if you need earplugs !! My grandson is exactly the same never stops chattering but I…[Read more]
Elizellen replied to the topic New person to the group in the forum General 13 years, 8 months ago
Hi Terry, I think my post was one of the missing ones, so here I am again.
Apart from welcoming you to the club none of us asked to join, I think I suggested in that post that you should mention to your consultant and medical team the problems that you experienced the last time you were in hospital.
If you tell them plainly how if felt to…[Read more]
Elizellen replied to the topic snow or not to snow?? in the forum Off topic 13 years, 8 months ago
Here in Bournemouth our snow was a bit of a "damp squib" as though it fell in the night (I noticed a covering on the cars outside when on one of my "loo trips") it had completly vanished this morning.
brocho replied to the topic snow or not to snow?? in the forum Off topic 13 years, 8 months ago
Well the forcasters got it right again today and we have had more snow tonight . Its very light but as its falling onto ice and compacted snow it will make driving and walkng tricky tomorrow. I am not looking forward to my trip to London for chemo tomorrow followed by another journey there on Saturday for an mri Hope you are all safe and warm love…[Read more]
brocho replied to the topic New Carer saying Hello in the forum Carers 13 years, 8 months ago
Hi L yn its so good to hear that Peter has improved , it must be a huge relef for you . The stem cell transplant is scary but try not to get too anxious , there are lots of us on here who have gone through it and although its not the most pleasant time it will get better The benefit of having a long period of remission without the need for…[Read more]
brocho replied to the topic Coming off CDT in the forum Side-effects 13 years, 8 months ago
Hi Peter and welcome I hope we can reassure you both As Eve said the build up to treatment and the anxiety that goes with it can often leave you feeling a little depressed as well as the physical symptoms once you stop treatment. I am sure your wifes specialist nurse or gp would be able to help, sleeping tablets would help in raising energy levels…[Read more]