Hi Chris welcome to the best supporters club there is !! You have had a tough couple of years but good to hear things are going well I am sure your positive attitude has helped a lot . I am a positive person who puts mm on the back burner most of the time, an optician once asked if I had any illness and my automatic answer was no , very…[Read more]

Hi Dai I know waiting for action is unbearable but try not to get to down about it .If your results showed you needed drastic action in a hurry I am sure your docs woud have got you on some treatment asap I hope you get some answers on Monday love to you and Janet Bridget x

Hi Dai

I was thinking this too. Hope all is well.

Best wishes.

Mavis

Hi Mal and Bruce

All best wishes for 14th and afterwards. A neighbour with home dialysis used to go on holiday and get the requirements delivered at the hotel so the world will be your oyster! Well, maybe not the world, but … !

I do hope you get the hang of all the machinery very quickly.

Love Mavis

Hi Val

You must be relieved to have got rid of the night cramps. Hope you get good results from the tests soon so you can restart your maintainence.

Very best wishes.

Mavis

Dear Terry

Welcome. Sorry you've had to join this select fighting band. No wonder you are feeling nervous with so much to contend with. Others will help specifically on SCT side – I haven't had one, but just wanted to say Hi and send my best wishes.

Mavis

Hi Graham

sory the saga is continuing. All the best with the tests.

And Hi Tom!

Very interested in the symptoms you describe with your rib pain. It is very like something I have (especially the rolled up dish cloth bit!). I haven't mentioned it to my Consultant as it does somewhat come and go in severity. What did they do for yours…[Read more]

Hi Peter
You do not mention Diana,s age or back ground of MM,and this is important because the symptoms could be connected to her general health,I think when you come off Chemo you think you will feel better,and it comes as a surprise to find you have all these symptoms,you start thinking,are you in remission.

CTD the dreaded DEX also gives…[Read more]

Hi David
I think it,s great,it does get rid of the elephant too,must ask you??? is that a garden with a lovely lake at the bottom?????

Slim and I talk very openly about his illness,with grandchildren around,so if they have any questions,it can be talked about as a family.
Lets see some more pictures as you go on,must say you look if your many…[Read more]

What great news!

I hope it won't be long till everything is in place to allow you to have more control over your schedule!

Eliz
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Hi Craig

Well I am shocked,sorry you have to get people on board and start ruffling a few feathers,if you cannot get help from macmillan nurses go to local papers specially now as the lords have just thrown out a bill concerning disabled people.

No one gets Myeloma over night,you have to get your doctor on board,to put it bluntly this is out…[Read more]

Hi Min that sounds wonderful I can just picture it! I bet the children loved you joining in and dogs are hilarious in the snow My hairy grandson has been here for 2 weeks and he loves the snow , had me in stitches this morning his face was saying woohoo!! love Bridget x

Hi Craig your post really shocked me !! How the heck can they treat you like that it beggars belief . I strongly recommend getting a Macmillan benefit advisor on board , you need someone who knows the system If there is not Mac advisor try the hospital who usually have a benefits advice dept Dont give up you are entitled to help during the most…[Read more]

Hi Craig and Etta

Sounds if you have been through the mill a bit,I can only tell you Slim was in this position,in may last year,in a wheelchair,at this present moment he is out walking the dog.!!!!!

As you say with food a little and often,as much as you can Slim has now put on 1st 8ib,after loosing 4 st.so getting there.I found buying small…[Read more]

Hi Everyone
Well the garden of England has become a white garden over night.

Woke up and the ground is white and the sky dark grey plenty more on the way.Hard to say how much has fallen as its drifted and looks lots in some places.Eve

Hi Min glad you made it before the white stuff!! We have a smattering of snow now my grandson managed to make small snowball. I will try not to moan for Dais sake but brrr!!! Stay warm love Bridget x

Hi James
Welcome to the site.
It,s my husband with Myeloma,he is in remission after ctd then vcd,and going to Kings this month to see if sct is possible,because he is on Myeloma X1 trials,he will be randomised either for treatment or no treatment.

At the moment we do not think SCT will be the solution,as his lungs were damaged with pneumonia…[Read more]

Hi James sorry sct is stem cell transplant too lazy to write the whole thing!! I chose not to have maintenance – Thalidomide, because I felt I needed a break from all the drugs I was diagnosed in August 06, before I could have any chemo I had to have surgical reconstruction on my spine as 3 vertebrae had been destroyed before Iwas diagnosed By…[Read more]

Hi Min safe journey put your foot down so that you beat the snow!! Apparently this evening it will creep into this part of the world and carry on all night Brrrr! love Bridget x

Hi James welcome to the ste I am sure you will get lots of replies Sorry I cant help much with the maintenance issue as I chose not to have any after my sct 4 years ago . Bridget