Hi Jet so sorry to hear you didnt get any time from your sct Hang in there good luck with the allo love Bridget

Hi Bridget

Well it is the 4th and snow warnings are out,very cold with wind,but no snow,it would not surprise me,if this little corner misses it. Eve

HI jet
You have hit the 3 F???,see if you can work it out with out my help????

before you hit 50 the 3 F was something different.

Eve

Thank you all for replying

Slim has finished Velcade,but the complaint went in before we new he had remission,but that does not matter I am concerned for people who come after us.I wish I could put the hospitals reply on here,but I cannot not,but reading between the lines,it does not pay to go on trials,you will spend more time in the…[Read more]

Hi Eve I was on Velcade a couple of years ago whilst on the Myeloma X Trial The first treatment of each cycle took the longest , questionaires etc then blood test and a wait of about an hour and a half or two hours for drugs to be made up From the second treatment onwards they used the previous blood results to make the infusion although there…[Read more]

Dear Roisin I am so sad to hear your father-in-law has died My condolences to you and yoyr family love Bridget x

Hi Marion

The reason I mentioned cc club,is lots of there places have lodges now,so no roughing it.We have a motor home and there sites are good.Follow you own needs,do not worry about your drugs,I am sure any place will help you.

Have a good holiday Eve.

Hi Tom thanks I am checking out web sites and local shops too but I am still a bit nervous about buying a second hand one Maybe I will just have to save very hard, trouble is I am not a very patient person and I hate being without a computer !! Tell Elaine I am so impressed with her DIY skills , she puts me to shame Hope you are having a good…[Read more]

Hi Sarah I am very impressed by Henrys stem cell production!! I am one of the people who struggled to produce the minimum needed too Good luck with the next step please keep in touch love Bridget

Hi Cinzia and welcome to our group you will find lots of support here but what a shame you couldnt find anything closerto home . You had such a long hard haul to get a diagnosis it must have been a relief to find out the cause, and a huge shock at the same time Good to hear the CDT is getting good results , just dont overdo things as it does takes…[Read more]

Hi Marion

Just to answer your query ,I use to have a B&B,and have had all sought from guest in my fridge and freezer,most will help you out just ask on booking,if they say no,you would not stay anyway.
What is Aranesp EPO!!!!!!

If you like the Camping,have you thought about,booking through the Camping and Caravan Club,I would look at there…[Read more]

Hi Cinzia from Australia

I found you post in the middle of old post,so people might miss it.If I was you I would post on related illnesses more people will see it,start your own posting:-)

Any way welcome to the site,every one on here will help you all they can,there are people from different countries,so do not feel like an outsider.

I…[Read more]

Wow, Henry did really well to get enough cells in one go!
It took me three days and still I only just yielded enough for one procedure. 🙁

Feel free to post a link for the fundraising your daughter is going to do and thank you to her for her support for myeloma uk.

Hi Everyone
I know what your talking about Bridget with computers,hated them when I was at work now I could not survive with out one.my daughters use to give me there old ones,bit slow but worked last year got my own lap top,this year I Pad,Slim uses that more because it,s not heavy and good for games.

I am decorating the bedroom at the…[Read more]

Hi Min thankyou for those ideas, I knew there would be someone with good ideas! I have a secret vice though ( I play the Sims on my laptop) which means fairly poerful laptop , mind you perhaps I could look for a support group to cure my Sims addiction , it would be much cheaper!! I got a local firm I trust to make sure my laptop was beyond repair…[Read more]

Dear Gill

What great news. I am so pleased for you and Stephen. Do hope this phase lasts and lasts, and gets better and better.

Very best wishes.

Mavis

Hi Gill
Such good news you both must be very pleased,Stephen should be a little bit better on the lower dose of Dex,and this might be the time to have those conversations :-)I believe the kidneys can regenerate,so any damage can repair.One day at a time Gill and you will soon be in France again.8-)

Slim was trying to reduce his dose of pain…[Read more]