Hi Gill what wonderful news after all the stress you have had recently Guess you will be off to France soon? Go and have fun, relax and enjoy life, put mm to the back of your minds Love to you and Stephen Bridget x

Hi Christine and welcome I am sure you will find this site as invaluable as I do. Sorry I cant be much help re collapsed vertebrae though. In my case I had 3 vertebrae completely dstroyed before being diagnosed, the doctors used to shake their heads in amazement because I was walking around , mind you the year of absolute agony was no fun Before I…[Read more]

Hi Jo

Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .

One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]

In case you missed it, Lin, I just noticed some posts towards the end of this thread
http://www.myeloma.org.uk/patient-services/discussion-board/general/catching-up/

which mention various insurance companies and members' experiences with getting the right insurance

Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]

Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.

I am finding this remission is Like a new ball…[Read more]

Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]

Hi Mandy

Welcome to the site,it must be worrying for you being so far away.One of my own daughters is in NZ,so have some knowledge of how helpless she felt although my husband,has me and our other 2 daughters.

I do not think anyone going through Chemo treatment has a good quality of life and many of the side effects,can bring you down to a…[Read more]

Hi Chris

Thank you so much for posting,it does give us some in sight,knowing we have to make this big decision ,it is early days for us concerning SCT,just trying to get any information concerning SCT,its almost like having to take a couple of steps backward to advance, with not knowing if it will be worth the effort
(if that makes…[Read more]

Hi Wendy sorry I cant help with the itchy eyes Its great to hear you got a good result and are feeling well Heres to a very long remission!! Stay well love Bridget x

Hi Dai what a bugger!! It is so frustrating when you are relying on results like that and have no control over it!! I hope you can get a result next time and get on that trial. It sounds like your consultant is on the ball and I am sure she will come up with another plan if needed Love to you and Janet Bridget x

Hi Carol good to hear from you and even better to hear you are doing well . I was only on Revlimid for a short while and the fatigue was the worst side effect for me Have a good time in the sun that will recharge your batteries love Bridget x

Hi Ray welcome from me too . As Min has said there are lots of people on here who have had a transplant so you are in the right place to find answers to any queries you may have It isnt a picnic , although some get through it relatively easily but it is well worth doing! Hopefully you will sail through and have a very long remission afterwards Do…[Read more]

Dai

You are not going to like me for saying this,but in the big picture of things,it does not matter what you would like,because at the end of the day ,Janet will continue to live,how she chooses to do it, it will be a measure of her self being!!!!!,Sorry DAi.
Find your fighting spirit , if you cannot get on trials,ask to have the drug any…[Read more]

Dai I wish I could give you some sound advice,but the only thing I can think of,is if you reduce your water intake it must have an effect on your kidneys.

It is so wrong that you have to comply to a criteria ,were does that leave people like Slim,nothing shows in bloods or urine,I just know when things are not right,luckly I now have a GP who…[Read more]

Hi Jo welcome glad you have joined us . It sounds as if your partner is coping well and I am sure your support makes that possible. We all need an outlet though and there are so many lovely people on here to offer you support Good luck and keep posting Bridget

Hi sorry you have been feeling rotten hope it doesnt last long. Have you asked for sedation when you have your bone marrow biopsy? I would definitely advise sedation no point putting up with pain when there is a choice Good luck Bridget

Hi Only Me
good to hear the good news about your mum,it is amazing the way things turn round from someone being so ill,and then responding to treatment,its just finding the right treatment.:-)

I think it,s very important to be positive,and to try to lead a normal life as possible,every one has there down days,and as you say there is only one…[Read more]

Hi Carol

Do hope your time in Spain builds you up for the next round in your fight.
Hope you are managing to do a little ridng in spite of everything.

Very best wishes.

Mavis x