Congrats! That's wonderful. 😀

Hiya,
I would also ask about Thalidamide to see if it's an option..
All the best of luck..
Chelle xx

Hi Mike,
So wonderful to hear from you! You are more than welcome to come. The next meeting is 7 Dec @ 14:00. It's on thev1st floor Jubilee Wing Seminar Room. It's right behind reception. Where are you possibly aving you SCT. Hope to see you on the 7th, if you need anything before please don't hesitate to contact me: burtonmyelomasg@ahoo.co.uk or…[Read more]

Hi,
I am so sorry for your loss. My husband passed 10 March. There are good days, bad days and days I still feel lost. Have you thought of bereavement counsiling? I had my 1st one on Monday & found it very helpful. I wish I knew the magic words to help but unfortunatly they're different for everyone. Just know there is always support on here.…[Read more]

I would just like to say a huge thank you for all the kind words. We are managing day by day and tear by tear. My 1st concern is the 2 oldest kids. I have spoke with both their schools and am sorting bereavement counsiling for them. The baby is doing better. Getting to be more of herself. Hopefully they will cope OK on Friday. It's tough to be…[Read more]

Hi Gary, First off.. Don't be embarrassed!! It is wonderful that you want to help your sister. I am the carer for my husband who is 37 (DX 2004). I wish I could say the magic words to solve the situation but unfortunately… Cancer sucks.. And there is no easy way. Phil had SCT and different chemos over the past 7yrs (including Thalidomide) and…[Read more]

Hi and welcome. I have to agree with the others, the support you will get here is wonderful. I am a carer to my husband Phil. He was DX 2004 at 30. He has done well but the past year MM has been taking a toll. The feelings you have are so normal. You will have good and bad days just like he will. Phil was just admitted into hospital for the 2nd…[Read more]

Welcome to the forum, sorry it's under this situation. I am 37 and the carer of my husband (also 37). You're levels are very low which actually is a good time to av a SCT. I wasn't with my husband when he had his in 2005 but I do know you will need a lot of support. It is a difficult recovery, in some aspects more emotional. It's the only time he…[Read more]

Hi,
Just wanted to wish you both good luck on the op. I'm sure everything will go fine. I'd love to say don't worry but as a carer myself I know that's not possible. 🙂
Last year my husband got his flu jab so hopefully he is on the list this year. My GP's front desk can be awful. If you don't get a letter they won't do anything and don't want…[Read more]

Hi,
Was nice to meet you as well. Yes our 1st meeting is a few weeks away! Getting excited & nervous.. Thank you for the support!
Chelle

Hi,
My husband is on Zometa and touch wood had had no problems. He has had about 3-4 infusions. I'm not sure if he can be switched but it is worth asking the consultant or even calling Ellen on the info line here as she might know or be able to point you in the right direction.
Best of luck,
Chelle

Hi,
My husband has been off since late March. He was told when his levels were steady for +4weeks he could go back (mainly his neutrophils). They went a whole 4 weeks but that's it. He's still home. As much as he is waiting to go back it is for the best and it had taken his SO long to come to terms with that. He would go to work if his eyes were…[Read more]