[ChrispParticipant]

Thank you Eve for your advice

Am finding that even remembering what life was like before mm is difficult.
Diagnosis put the whole family in a tailspin, but it has been so wonderful to discover how kind and thoughtful our friends are.

But none of them would have known about the taste alteration problem! Am glad I have a few recipe books, because most of our usual staple diet seems too bland. What did you try for drinks? Nick only really likes sharp things like orange juice. Our cappuccino habit has completely disappeared.

It must be very difficult for you with such a long journey to and from Kings. Does your husband have treatment at another hospital nearer home?

And gosh you are right about needing new clothes!

Thanks so much to you and everyone for their support.

Chris x

[ChrispParticipant]

Hello David

The neck thing is Nick's major problem too. Waiting to see whether he needs surgery to stabilise where the fracture happened. I'm guessing he isn't the only one who found out he had mm by getting out of bed and breaking his neck!

Still didn't stop him going to work that day though…

He is getting very bored with the collar he has been wearing for the past two months. Loves it when I wash the padding because it comes off for a couple of hours.

Chris x

[ChrispParticipant]

Hello David

My understanding is that the IV bisphosphonates are heavy duty and they are used where there is more damage, as they are taken up by the cells that break down bones more quickly.

The oral ones seem to be favoured for prevention, they do the same job, but with less side effects. They are used for treating osteoporosis as well as mm.

I think Nick might have been feeling unwell the day he had the treatment anyway – we'll soon see, as he has to go back for another lot next month. Great view from the haemoatology ward at the Royal Liverpool!

BW
Chris x

[ChrispParticipant]

Thank you all – it is so encouraging to hear your experiences. It can get a bit lonely in mm world!

I don't mind that Nick gets grumpy on the dex, he normally has the patience of a saint, though it was a bit of a shock to start with. Thanks Eve for suggesting dividing the final dose. Will ask the consultant about that at next clinic. The sleep disturbance just means he gets up and does some work, or watches tv. He seems to catch up again courtesy of the thalidomide.

The only thing that made him really ill was the IV bisphosphonates and that only lasted 24 hours.

Thanks again – hope you all have a great long weekend (and it stops raining so I can mow the grass)

Chris x

[ChrispParticipant]

Thank you all for making me feel welcome and for your advice.

Unfortunately, my husband was diagnosed late and has already had radiotherapy for a collapsed vertebra. He has had several short courses of dex already and was hoping to get onto myeloma XI, but it would have meant retesting everything and the consent process would have delayed treatment further.

Am just glad he is having some treatment.

Chris

[Author]

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