[DMCParticipant]

Dear Sarah, so sorry to hear of Gordons passing.He put up a great fight and now will be sorely missed by you all. Loved by many.
He has now gone to a better place, no more to wander in a strange land.
Thank you for your contribution to this wonderful site, with all your help and words of support for us all.
Love to you and all your family. May God bless you all.
DMC.

[DMCParticipant]

Hi Sarah, Very sorry to hear Gordons not doing to well.
I finished my 1st SCT in May and up to now appear to be responding ok.
Been feeling quite good and getting round and about, so not been posting lately.
Lynne and I will keep you both in our prayers.
DMC.

[DMCParticipant]

Hi Ali & Guy,
Just wanted to welcome you to our band of wonderful friends and say hello.
We are all here for you both and will try to help and give what support we can in way of information and advice from what experience we ourselves have been through.
We are all at different stages with our condition, but yes remaining very positive is the only way forward. Your feelings matter and we all vary in those too at different times, so feel free to share because you matter too!
We are all here for you.
Hugs and best wishes,
DMC.

[DMCParticipant]

Hey Great News David. Glad it turned out well for you. >:-)
I am doing fine up to now after SCT, blood count levels improving week by week. :-D. Keep going onward and upward as we say. Stay with the bike, don't let the sore bum put you off, it won't last.
Best Regards
DMC.

[DMCParticipant]

Hi Angelina, good to have you back, although I am a relative newcomer to the site I am sure you have been a great support and source of insparation to many.
I was diagnosed with Plasmacytoma and MM in 2009 – 2010 and have had 6 months CDT and just resently SCT which seems to have gone well.
Keep your chin up and look forward positivly :-)We are all here for you and you and John are in my personal prayers.
Love & Hugs to you too!

DMC.

[DMCParticipant]

Hi Kay, just came home from hospital Sunday from my SCT. The only hair loss I have had is from my head. Feeling quite tired and having trouble sleeping but apart from that I'm doing ok. Blood levels still lowish but am told should climb steadily over the next few months. Back to hospital clinic today for blood tests. Good luck with your SCT, it will be worth it. Kind Regards DMC.

[DMCParticipant]

Hi Gill, yes ok PP levels can have quite a range. Mine has varied from 42 at its highest to 1.6 at its lowest, just last month. I am now starting SCT for the first time today. will let you know how I go on. Best wishes.
DMC. Dave.

[DMCParticipant]

Hi Nigel, welcome to the Forum and our great little band of friends.
Yes MM is an individualistic complaint and we do all react differently to it and the treatment. No one can give any definitive answers, we all travel our own roads with it, but we can support and boulster each other as we travel these roads.This is what the forum is about. Information and Knowledge when wanted and shared is powerful. I believe when we are prepared we have no need to fear! Keep logging on Nigel, let us Know your progress.May the Lord bless you with what ever you stand in need of in the times ahead.
Kind Regards
Dave (DMC)

[DMCParticipant]

Hi Andy hope you are doing ok under the circumstances. While I was on Chemo I found it wise to take one day at a time because I found it easier to cope emotionaly that way, not being disapointed if one day I wasn't up to doing a lot when in fact I may have wanted to, if you can follow what i'm trying to say! I was cirtainly very glad when I came to the end of the 6 months course which was just 2 weeks before Christmas Yes!Bringing your PP level down is the prime objective so hang in there my friend grit your teeth and stay positive.
Kind Regards
Dave (DMC)

[DMCParticipant]

Hi Andy, well it seems so,i try to go out and about as much as possible to walk and exercise my legs, i also go swimming which is of course good for all of the body.Trying to keep our muscles toned is the least we can do to maintain some semblance of fitness. Just doing what we can keeps us fighting.We just have to see what suits best.Keeping active and enjoying what we do!So onward and upward don't you think?
Kind Regards Dave. DMC

[DMCParticipant]

Hi Andy I would also agree with the jury being out on the SCT procedure. I also agree that MM is such a personal condition ( I don't like useing the word disease).Different people react in different ways to the condition and the treatment. I was diagnosed with MM May last year and have had 6 months Chemo June to December with relativaly few side effects.PP now down to 1.6. Prior to that I had Radiotherapy for Single Bone Plasmacytoma in my lower spine (Sacrum).Which has left me with slight Neuropathy in both legs and feet with partial loss of power in walking due to the tumour pressure and damage to the root nerves.I have now been refered to the Royal Liverpool University Hospital for SCT.I was in last week Monday and Tuesday for Stem Cell harvesting and await a date for transplant,but I am now in two minds as to wheather to go for it. Well I wish you well keep taking the tablets if its tablets your taking. Keep in touch on site, quite a bunch we have here.

Regards Dave. DMC.

[DMCParticipant]

Hi H Mason,welcome to the forum. I am 10 years older,diagnosed October 09, first with Single Bone Plasmacytoma tumour in lower spine following accute back and leg pain. MRI,CT scan and full skelletal x-ray. 10 fractions of Radiotherapy to lower spine eradicated the pain. Unfortunatly never received any chemo along with it,being newly diagnosed, not being any the wiser,this left me with some partial root nerve damage effecting my legs and feet resulting in some loss of power and stability in walking.

By May 2010 Paraprotiens up to 42 now developed into Multiple Myeloma. 6 Months chemo from June to Mid December, CTD. Cyclophosamide, Thalidomide and Dex.
Paraprotiens now down to 1.6 Good news. Have now started Stem Cell Transplant, attended Liverpool Royal University Hospital 1st & 2nd Feb for harvesting procedure successful count on day two. Start Transplant April.
Well thats my story so far. Have found it beneficial for me to be positivly pro-actively involved in all aspects of treatment, lets me know what I'm up against and what to maybe expect in the future. So stay positive H and good luck may God be with you.
Regards
Dave (DMC)

[DMCParticipant]

Hi David,I'm new to the forum, just read about your great progress glad to see its going very well for you. How long have you now been receiving treatment?
I am just starting STC this week. Would love to keep in touch.

Regards Dave.

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