Dear Sarah, so sorry to hear of Gordons passing.He put up a great fight and now will be sorely missed by you all. Loved by many.
He has now gone to a better place, no more to wander in a strange land.
Thank you for your contribution to this wonderful site, with all your help and words of support for us all.
Love to you and all your family. May…[Read more]

Hi Sarah, Very sorry to hear Gordons not doing to well.
I finished my 1st SCT in May and up to now appear to be responding ok.
Been feeling quite good and getting round and about, so not been posting lately.
Lynne and I will keep you both in our prayers.
DMC.

Hi Ali & Guy,
Just wanted to welcome you to our band of wonderful friends and say hello.
We are all here for you both and will try to help and give what support we can in way of information and advice from what experience we ourselves have been through.
We are all at different stages with our condition, but yes remaining very positive is the…[Read more]

Hey Great News David. Glad it turned out well for you. >:-)
I am doing fine up to now after SCT, blood count levels improving week by week. :-D. Keep going onward and upward as we say. Stay with the bike, don't let the sore bum put you off, it won't last.
Best Regards
DMC.

Hi Angelina, good to have you back, although I am a relative newcomer to the site I am sure you have been a great support and source of insparation to many.
I was diagnosed with Plasmacytoma and MM in 2009 – 2010 and have had 6 months CDT and just resently SCT which seems to have gone well.
Keep your chin up and look forward positivly :-)We are…[Read more]

Hi Kay, just came home from hospital Sunday from my SCT. The only hair loss I have had is from my head. Feeling quite tired and having trouble sleeping but apart from that I'm doing ok. Blood levels still lowish but am told should climb steadily over the next few months. Back to hospital clinic today for blood tests. Good luck with your SCT, it…[Read more]

Hi Gill, yes ok PP levels can have quite a range. Mine has varied from 42 at its highest to 1.6 at its lowest, just last month. I am now starting SCT for the first time today. will let you know how I go on. Best wishes.
DMC. Dave.

Hi Nigel, welcome to the Forum and our great little band of friends.
Yes MM is an individualistic complaint and we do all react differently to it and the treatment. No one can give any definitive answers, we all travel our own roads with it, but we can support and boulster each other as we travel these roads.This is what the forum is about.…[Read more]

Hi Andy hope you are doing ok under the circumstances. While I was on Chemo I found it wise to take one day at a time because I found it easier to cope emotionaly that way, not being disapointed if one day I wasn't up to doing a lot when in fact I may have wanted to, if you can follow what i'm trying to say! I was cirtainly very glad when I came…[Read more]

Hi Andy, well it seems so,i try to go out and about as much as possible to walk and exercise my legs, i also go swimming which is of course good for all of the body.Trying to keep our muscles toned is the least we can do to maintain some semblance of fitness. Just doing what we can keeps us fighting.We just have to see what suits best.Keeping…[Read more]

Hi Andy I would also agree with the jury being out on the SCT procedure. I also agree that MM is such a personal condition ( I don't like useing the word disease).Different people react in different ways to the condition and the treatment. I was diagnosed with MM May last year and have had 6 months Chemo June to December with relativaly few side…[Read more]

Hi H Mason,welcome to the forum. I am 10 years older,diagnosed October 09, first with Single Bone Plasmacytoma tumour in lower spine following accute back and leg pain. MRI,CT scan and full skelletal x-ray. 10 fractions of Radiotherapy to lower spine eradicated the pain. Unfortunatly never received any chemo along with it,being newly diagnosed,…[Read more]

Hi David,I'm new to the forum, just read about your great progress glad to see its going very well for you. How long have you now been receiving treatment?
I am just starting STC this week. Would love to keep in touch.

Regards Dave.