Excellent news Mavis… and I hope that your remission is both long and successful… but make sure you help it along by lving as healthy a life as possible.:-D

The best of luck andplease stay in touch.8-)

Dai.

Hi Keith,

I was in for a consult today… my Light Chains are at 435… up from 325 in September… creeping up but nothing drastic as yet and anyway, I am told there is nothing else for me at the moment…no trials, no novel agents (such as Bendamustine etc.,) so it's Rev & Dex or nothing.:-/

The Vancomycin treatment for my C:Diff seems…[Read more]

Hi Sue,

I am so sorry that Michael has reached the end of effective treatments. It is pointless saying that he had a good run because regardless of the timescale he has now reached the end of his fight against MM.

It seems that by recommending your local hospital for palliative care your consultant has confirmed that Haematology can offer…[Read more]

Just a 'Best Wishes' for as smooth a SCT as is possible and to reiterate Davids advice about post recovery.:-D

It's taken a long time to get here… now see it through and enjoy the results.8-)

Dai.

Hi Sarah,

I assume its your GP that you have been seeing… if so you need yo get Henry to your Haematology team. They will be far more knowledgeable about how MM and chest infections go together… even if it means going in far a far more powerful anti-biotic through an IV drip. 😎

The longer this goes on without the proper treatment,…[Read more]

December 21st? Well… knowing you it won't ruin your Christmas.

If the PP's have decided to rise above the accepted parameters I imagine your consultant will put you on a 'watch and wait' brief for four weeks anyway but if your instincts are right about the muscle via bone pain in your side then what a wonderful Christmas present a…[Read more]

As far as I understand it the medics look at the ratios for overall guidance and if the PPs or Kappa Light Chains are acceptable they will press ahead with the SCT process . 🙂

There are parameters of which 0, Nil, Zilch, Zero, nothing… are the ultimate base camp aim…. with an upward level which has been set as the acceptable level of…[Read more]

Hi Eve,

In a previous lifetime, while doing my stint as a full-time union official for the NUM, I was put in touch with a TV producer who 'collected' people who could provide resources in the way of interesting human beings for TV programmes. I considered myself 'interesting' (especially when the daily rate plus expenses for travel and…[Read more]

Thanks Scott…

As I see it you are leading the pack… with me and Keith treading on your heels.;-)

The problem is that Rev & Dex might settle down and give me 18 months to 2 years… perhaps more if Kyprolis (Carfilzomib) is licensed while Rev & Dex are still working… my consultant was quite bullish about the efficacy of Kyprolis…[Read more]

Hi Peggy,

I suppose you have got your answers now but just a note to say that I have never heard of a harvest process that didn't include chemo-priming and GCSF injections… if I am wrong on this I would like to know what process was followed.:-|

Best of luck any which way (Look… me using an Americanisation… whatever next???):-D :-0…[Read more]

Hi Eve,

Thanks for replying… 🙂 I thought I had frightened people into submission… :-0 which was not my intent. 🙁

[i][b]I am writing this through you, not necessarily for you E[/i]ve.[/b]8-)

What I had noted was that the majority of the angry, stressed and disturbed contributors were nearly all in the early stages of the MM…[Read more]

Hi Jean,

Keep an eye on Frank's legs, it could be down to several things and a DVT (Deep Vein Thrombosis) is one not mentioned in your posts.:-0

Last year (the summer of 2011) I had a badly swollen leg and wondered if it could possibly be a DVT. (I reported all on here and in a nutshell it turned out to be a DVT after several weeks of…[Read more]

Hi All,

I'm still around…. popping in 2 or 3 times a day to see what's occurring. 🙂

The wedding day was as sweet as a nut… everything went absolutely fine, with excellent weather, excellent service and a truly lovely reception. I manage to walk Becky down (up?) the aisle and, after saying that I was glad to give her away, I was…[Read more]

Hi All.

I have had friends and acquaintances who have come along behind me since my diagnosis and they have died without ever having the chance to acclimatise to the fact that they had a life threatening illness . One particular friend found out that she had advanced cancer and died within three weeks… and another who had a heart attack and…[Read more]

Wishing Colin the very best of luck in getting a smooth a ride as possible through his SCT. There's not a lot you can do from this point now Vicki, apart from keeping him company (there will be lots of silent watching, reading, dozing etcetera from the both of you) and making him as comfortable as possible. From about four days in until he…[Read more]

Hi Chris,

Once the Stem Cells are back in it is only a matter of waiting to zero out and watch the daily bloods for that magic number of 0.1. In between times it may get a little rough but it is worth bearing for what it brings.8-)

I wouldn't worry about the eating side of things, get down what you can but drinking is important……[Read more]

Hi Andy,

Your bloods look quite good except for your Nuetrofils… got to get them up sharpish.:-)

HGB 10.4 is a luxury to me… I normally have to settle for 8.4 to 10.0.:-| But my Plates are usually around the 140 mark, so no trouble from them.

I would love to have a go at an allo… risks allowed for and accepted… but I doubt that…[Read more]

Vicky,

I have followed your Dad's progress and grew concerned that they took him off all treatment until they got his infections under control… that didn't sound good from all that I have seen, heard and learned during my 4 years on this board.

I feel for you and all your family, especially your Mum. I am sure there will be others along…[Read more]

Hi Lorna,

I don't feel cheated, just immensely saddened that our time together has come to be a countdown through the various stages of a terminal disease, rather than a slow but happy decline through old age. But then again I know of so many people only a few years older than me (59 on Xmas Eve) who have suffered from heart disease or other…[Read more]