hiya Tom, only found out about it yesterday at my chest clinic appointment apparently it showed up on a ct scan that I had when I had pneumonia. Ive got to have another scan in April to see if its grown and then I have to have them repeated every 3 months for at least the next 2 years. Did the old googling thing and fright meself as you do – but…[Read more]

Hello there – I haven't been on here for a while but as a cat owner I just wanted to say that when I came home from my SCT in September 2010 my cat Kiwi was a god send. As visitors were very restricted she was my only company most of the day and sat by my side throughout. I am still (fingers crossed) in remission and yes I get endless infections…[Read more]

hello gill
its been along time since ive been here.i feel for you & your family.my name is stephen to.my dawn passed away 29/01/12.i must have cried every day for six months,i still have my moments now.people said to me it will get easier.those words dont help you at the time.all i wanted to do was go to sleep & never wake up.theres not aday goes…[Read more]

Morning David,

Not been on here for a while – glad your paraproteins are still low and hope they stay that way. I had my 3 month check a couple of weeks ago and the pps are still too low to quatify. Do you ever suffer from leg pain I find they keep me awake at night – I sweat a lot aswell but don't no if thats just coz I'm a laydeee!! Hope…[Read more]

hello dai
such sad news,the loss of bridget.you both have helped so many people with your replys to our messages.like nicola i havent been on for a long time.i try & keep myself busy every day.my thoughts are with you dai.

best wishes
stephen

hello min
thankyou for your message.ive had my mum telling me not to forget my kids too.i am trying to keep it all together & trying to look after joe & jade.joe is 24 & jade is nearly 18.they seem to be coping better than me.im still taking one day at a time.thankyou for your advice.i have read a bit about you.you have had very hard times to.my…[Read more]

hello sarah
im so sorry i havent answered your message.i havent visited this site for a while.im so sorry for the loss of your husband.my kids joe & jade say i dont talk to them.what do i say to them.its so difficult. like you say ,people say it does get better,not for me either im still so bloody angry.all i want to do is go to bed and sleep my…[Read more]

Dear Bridget I'm crying as I write this I really, really hope you are ok. I will never forget your kindness when you came to see me at UCH on the day of my SCT – I haven't been on here much -too busy trying to do normal things and forget I've got this bloody illness. You are such a kind person and you knitted me my hats !!! Please keep fighting…[Read more]

Hello I haven't been on here for a while but was just reading other posts and thought how sad it is so many of us are living our lives with para proteins (I hate the word) wish I had never heard of it – sorry – I'm so glad that yours are coming down – Ive got my check up next week to find out if the little devils are creeping up again and if one…[Read more]

hello nicola

my thoughts are with you & you family. like everyone says take baby steps
best wishes
stephen

hello eve

it is horrible going to bed & getting up in the mornings.i will try & take some of your advice.your right the kids do worry about saying or doing the wrong thing.my daughter comes in to my bedroom all night checking to see if im all right.bless her.i have been emailing dai aswell.
look after yourself

best wishes…[Read more]

thankyou tom

im trying to be strong,very difficult though

best wishes

stephen

hello bridget

we are all suffering on this site. i find it comforting being here. dawn was my life. dawn was loved by so many people.over 200 at her funeral.her wake lasted 8 hours.i hired a social club & over 100 turned up there.still about 50 people there at 7pm.me & dawn are so proud of what joe & his friends & spar raised for m.m.u.k.i…[Read more]

hello jean
my name is stephen.thankyou for contacting me.i was caring for dawn normally from 1300hrs on work days, thats when i normally finished work.my place of work worked round me for 18 months & im very gratefull for that.my mother inlaw looked after dawn until i got home from work.i was on the go for most days for 18 hrs aday.i didnt mind…[Read more]

hello michelle.im so sorry to hear that your husband passed away.my name is stephen im 47.sadly my wife dawn passed away 29/01/12.she had al amyloidosis myeloma (heart).im new to the myeloma site.just like yourself my dawn was everything to me & my best friend.im getting very upset writing this email.i think i will leave it like this for now.i…[Read more]

I feel utterly shocked at what some people have had to endure before they get a diagnosis, it is truly a scary thought that GP's will now be in control of their own money.

Fingers crossed that this wonderful charity and its supporters will be able to raise awareness to enable others to get a speedier diagnosis.

Xx

Hi, I'm in Mansfield (Nottinghamshire), my dads name is John, and he is being treated at Kings Mill Hospital, with a possible referral to Notts.

xxx

WOW! 😀

Thank you to all of you for your kind words,
It's amazing how reading your replies have helped me to see things in another light.

I've always strived to make others happy, give advise, or a listening ear, and it was kind of embarrassing for me now to be the one needing somebody to help me out and give me a ray of light, but you…[Read more]