Congratulations Wendy,

It is so good to see positive milestones show up on the board and especially by such a regular contributor with a positive attitude and such a helpful demeanour. 🙂

Let's look forward to September 1st, 2013 and your second anniversary… with a wonderful, infection free and healthy twelve months in-between. 8-)…[Read more]

Thank you Theresa,

The a-b's are working at the moment but I am still feeling washed out. I have had to put off a visit from my little sister and nephew at the last moment (tomorrow – Monday) because she is taking a-b's for a viral infection caused by a tooth access… I just dare not risk it with my Neutrofils down to 1.6 from 2.5. 🙁

I…[Read more]

Hi Andy,

It's a matter of slow, slow, drip, drip, slow for you at the moment but as folks have pointed out it's in the right direction. Your frustration levels must be extremely high but much better than the alternative.8-)

I am sure that Prof. Jackson will come up with something to get you onto the SCT programme but in the meantime enjoy…[Read more]

Hi Mari,

Post code lottery at work again? What heath board area are you in? But anger put aside for the moment I am glad that Stephen's got a date that you can work towards. A week on Sunday will soon roll along so don't leave the packing too late. Get your checklist drawn up this weekend and slowly put it together.

A quiet Sunday for the…[Read more]

My Dear Gill & Stephen,

May God bless you both with the strength to see this through to the end. Whether it is mobility or a little more time I hope that it is enough to say goodbyes and to let go with grace.

All us MM'ers know that our time is finite, that we will be claimed and moved on. Some, like Stephen, will just run out of options…[Read more]

Hi Sandra,

I had an extraction of one tooth before my SCT… my consultant did not want me going through the SCT with a dodgy tooth which was actively giving me trouble.:-P

I had the extraction done by a Doctor/Dentist at the Queen's Medical Centre, Nottingham under theatre conditions, with two nurses in attendance. It was the most…[Read more]

Hi Gill,

I had extensive RT when I was first diagnosed with 'secondary bone cancer, primary unknown'.

I had seven days @ 2 hours per session to destroy a tumour + 2 vertebrae that had crumbled onto my spine and were threatening my spinal cord. It left an area of skin that looked (and felt) as if it had burnt. I still have it today and that…[Read more]

I have watched, listened and sometimes felt your pain, concerns and confusions. There is no doubt that Slim and yourself have had a very rough journey up to Slim's SCT. But here is the conclusion of that journey and the outcome is worth its weight in gold. 😎

Well done! 😀

Enjoy. 🙂

Go out into the world with confidence and take…[Read more]

Min, Eva and Mavis,

Thank you for your messages of support.

I attended the DayCase Unit this am. for a 'clinical follow up'. They took my vital signs and bloods and then I was visited by the same Doctor who was with me throughout my two DayCase visits last week and my weekend sojourn on the ward. She has been a star… showing concern…[Read more]

Hi Theresa,

I agree with Andy, your post is very brave… I too like the idea that Peter can wander through your mind as he chooses… I certainly like the idea of visiting Janet in moments of need and the idea that I can have a choice in those moments is both comforting and inspiring.

I am sure that you will find the right balance between…[Read more]

Hi Keith,

I know where you are at… I am just coming to the last week of Cycle 7 of Rev & Dex and I have had to contend with this series of gut infections which allow little to no quality of life… although the cause has nothing to do with Myeloma. I have been referred to the Gastro-Intestinal Clinic and I am hopeful that there is nothing…[Read more]

Hi Vicki & Colin,

GCSF time is with you I see… good luck and here's to a local ache or two. I was told to take paracetamol if the pain got too bad… but it was never more than a constant dull ache… with constant being the key word.:-)

Wishing you the very best of luck and a smooth journey up and into the SCT process.8-)

Regards…[Read more]

Michele said:

[quote]My taste buds definitely changed too. I preferred savoury things and even gave away my Christmas tin of Quality Street because I went off chocolate!! [/quote]

:-0 :-0 :'-( :-0 :-0 Say it isn't so! Chocolate bars and inferior boxes perhaps… but Quality Street… for a sausage roll? How can this be?:-S

If I were…[Read more]

Hi Tina,

Not just CDT… I have often lost my appetite following treatments, infections and other causes. Myeloma doesn't cause appetite loss, that is firmly down to the side-effects of medicines… especially chemo.:-P

It does wear off and one morning you will wake up feeling hungry with your taste buds refreshed and ready for food. Six…[Read more]

Hi Gill & Stephen,

I truly hope that the medics do their utmost to alleviate Stephen's discomforts and pain and that the radiotherapy stops the current problems in their tracks. I realise how far Stephen has deteriorated in the past few months but I do hope they can bring some balance and control into his life.:-|

My thoughts are with you…[Read more]

Thank you Mavis and you too Tom,:-)

I have decided to write to the ward manager of the ward. Usually I would put my experience down to weekend/bank holiday staffing and let it go but this is a purpose built ward for haematology with, I was assured, normal staffing… so I should expect better.:-(

I was admitted as a 'C-Diff' Isolation'…[Read more]

Hi Helen…

We will see on Thursday… I could have gone in on Tuesday or Wednesday but I chose recovery at home… where I am sure all bloods will pick up on their own.:-)

Dai.

David, I am so saddened to read your news. You have been doing so fantastically well with your SCT remission, with your daily walks, holidays and visiting and home chores I have been cheering you on while being more than a little envious… and now this.

I really hope that the treatment, be it primary, secondary or surgery catches hold of it…[Read more]

Hello All,

Thank you very much, its so good to see so many supportive messages.:-D

I had a very nasty and messy week and ended up inside on Friday morning. I managed the DayCase on Tuesday but felt terrible all day… I was bled etc., and the Doctor came to see me when the results came back and said it had been decided to refer me to the…[Read more]

Well I've tried to fight this infection off but it has got the upper hand… again. SoI am on my way into the Day Case where I will throw myself at their feet and say 'sort this out please'. 😛

I real have had enough… the 5th bout since the end of May… not much fun and I could do with some fun right now.

I'll get in touch when I…[Read more]