Woke up this am feeling very good… then out of nowhere, at 1210.pm my temperature shot up to 38.2.:-P

Of course it's the weekend… :-S

I'm fighting it in my usual way… Movicol, plenty of liquids and a couple of paracetamol… but the paracetamol has only managed to 'hold' the temperature, whereas it usully breaks tit. The decision…[Read more]

😀 Armchair rowing, swimming and cycling… this week and a whole range of Armchair athletics from tomorrow onwards… its a good way to keep fit.:-D 😎

Dai.

Hi Wendy,

I am currently on Rev & Dex and my readings since starting treatment have read:

300-225-125-212-175-128-200… i was slightly concerned with the last reading but my consultant's response was 'not to panic' as the yo-yoing might well see a reduction on the next test.;-)

I appreciate yours is a different kettle of fish but at my…[Read more]

Theresa,

I had no idea that you had lost Peter and was glibly answering your posts in ignorance of your loss. I am so very sorry to hear that you have lost your Peter… There is very little that I can say other than my thoughts are with you and you too Judy, at this time. I hope that you find support and love enough from your respective…[Read more]

Tom, Mavis, Tina , Liz and all,

Thank you for your support.:-)

Well it really does seem that the problem has sorted itself out…. At least for now but I am a believer in self healing and perhaps my tactical use of paracetamol and my usual regime of eating little (although my appetite has been more than fine) and drinking fluids for Wales…[Read more]

Hi Vicki,

The South West seems to have funding problems in certain areas. I would love to know what their funding criterias are. It is interesting that your consultant says that Periaxafor is 'not available' in the South West…That can only be due to funding decisions and not because of availability… It means that it is not an option due…[Read more]

Hi Andy,

At least events are moving upwards and onwards, to coin Tom's phrase. I cannot see Prof Jackson not coming up with a positive action plan and your PP's dropping is a very positive stsrting point.

I wish you the very best for your appointment. You deserve a good break, a break that leads to the next step… then hopefully it will…[Read more]

Ummm…

I had the alarm set for 7am to ensure we were up and at the Day Case by 8.30am.

I fell asleep approx: 10.30pm. I woke at 1.15am with really bad stomach gripes. I tried to ease the pain by stretching and eventually the pain subsided but left me with the usual sore tummy. I stayed awake until 6am ish.:-(

Here's the Ummm bit.…[Read more]

Thank you Tom & Gina, much appreciated.:-)

Not to worry Gina… this is common and garden side effects… more a result of my medication than MM so while I am complaining I'm still on my treatment. This time something seems to have taken up residence in my gut and needs a specific anti-biotic to clear it up. 😎

I am sure the medics will…[Read more]

Hi Chris,

I'm spitting feathers. This is an obvious example of the postcode lottery at work right here.

To get to 7 is good… it means you need a boost and Pleriaxafor may well have done the trick… it did for me and several others here but there was no-one with enough political or financial clout to make the decision to give it to…[Read more]

Thanks for listening to my gripes and responding David & Jo.:-D

This current Boomerang/Yo-Yo complaint started at the end of June and is still here… we worked it out that of the pat 36 days I have had 8 days that I could call my own… free from gripes and associated grumbles… it's wearing, that's all.:-/

You may well be right Jo……[Read more]

Hi Eve,

Two months already… it may seem slow to you but I think time is flying.

Slim's whole system has had a reboot and kickstart and he is bound to develop aches and pains… some old, some new but there will be other changes as well. My hair (what I have left) went back to the tight curls of my youth and twenties… I was having…[Read more]

Hi Chris,

I hope all has gone well with a bumper crop to be getting on with. The setting of dates will follow so good luck and keep in touch.

Dai.

Hi Jean & Frank,

Congratulations to you for the forthcoming event. I have never been close for the actual birth of any of our grandchildren, although Janet has been there for two of the four having moved in with a week or so to go. We too are celebrating the same good news with my daughter-in-law and son expecting their second in February.…[Read more]

Hi Charlie,

Welcome to the forum but I wish you were not here.

This is a confusing time… and frightening, with no option but to climb on board the treatment wagon and move forward to a better place.:-)

Yes, there is a better place but you have to be treated to get there. This is an excellent forum with people way ahead of you, just in…[Read more]

Hi Kevin,

CDT worked very well for me bringing my light chains from 3,500 to 0 in 3 Cycles… I completed the 4th to make sure and then had my SCT 4 months later.

I have regretted that decision ever since as I was still in full remission with excellent BMB results when I started my SCT. I wanted to wait until the first sings of upward…[Read more]

Hi Tina,

Plateau reached, SCT to bring it home and remission served… hopefully a very long and healthy remission at that.:-)

Enjoy your break and relax as much as you can.8-)

Regards

Dai.

Hi Paul,

Like many here I believe that your age, general fitness and most importantly your positivity will help you through the process with room to touch the sides.8-)

4.2 means enough in cold storage for SCT 2 at a later date…. is this what they have planned?

The very best of good fortune and try to stay in touch if you are able.:-)…[Read more]