Thank you all… your support is very much appreciated.:-)

Apart from my CDT my other processes and treatments – SCT and Velcade – relapsed very quickly… [b]but[/b] I have always done well while actually on treatment… so therein lies my hope… the American way will be my guide and I am going to request another 3 cycles of Rev & Dex before…[Read more]

[quote]'My PP's have been hovering around the 5 mark then 2,months ago doubled to 10.26 and then 10.98 at the last check 2 weeks ago'[/quote]

Fingers crossed indeed Keith… let's hope that this is a blip… the doubling must have been a shock but the next movement is very small so it could well be just a bit of movement within normal…[Read more]

Gail,

You need to get Howard to talk… negative thought begets negative results… plain simple truth.

He has to find positivity and positive actions, especially so early in the illness…. there are treatments and therapies that can knock back MM for years and years… so why not him?

I have had a succession of relative quick failures…[Read more]

Hi Gill & Stephen,

I am so sorry to hear that Rev & Dex failed to take… I might be heading the same way, next Monday will determine that… but they have lined up a Benamustine trial 'just in case'… which was put more like 'it looks pretty certain'. Have they not offered Stephen anything else? If the Rev has caused secondary cancers and I…[Read more]

Tom, Paul & Mavis, thank you very much.

Janet has had a stinker of a cold all week, just beginning to clear up today… so thank goodness for the anti-b's. I think I must have caught her cold as it was coming on and was unlucky enough to get the lung infection.

Dr Happy, saw me on Monday am and told me that I most likely had either…[Read more]

Hi Eve,

I hope that you are both coping as well as can be expected. Slim's SCT coming on top of Matty must be hard to bear… but while it is a rough, tough love process it is also a period of hope. Visualise Slim coming home and ready for recovery and hopefully a long remission where you can get away in the van at your pleasure… that can…[Read more]

Thank you all, your support is truly appreciated. 🙂

Janet brought in my Dex yesterday but a nurse spotted them and locked them away until the pharmacist wrote them up… so I didn't get them until 4.30pm… which left me with 2 hours sleep last night.

I have just had a couple of hours and I feel a bit more human. I didn't take any…[Read more]

Hi Bridget,

Just a quick hello in case you look in…. I hope that you are feeling a little better today. As Helen said, infections are so draining… on the body and on the spirit. If they can find an anti-biotic to clear the dreaded lurgy's up then you will feel much more like facing up to the medics and their search for some sort of…[Read more]

[quote]Many thanks to all of you for the warm welcome. I am afraid all the terminology is still quite new to me but I will attempt to tell you where I am with my journey.

I was diagnosed with stage 2 IgA MM and multiple lytic lesions. I had been limping around all summer having been told I had mild osteo-arthritis. In fact, I had a fractured…[Read more]

Hi Tina,

Dex will certainly energise you, as well as doing its job of killing off the cancer cells, it does its fair share of the donkey work but you have to remember that the 'energy' supplied by the Dex is a forced energy and while it might boost your energy levels it will not boost your spirit.

Engendering a positive attitude is the only…[Read more]

Hi Bridget,

Sounds like its been tough for you recently… hang on in there, and may every day see you get some strength and with it positivity and hope.8-)

Much love petal.:-)

Dai.

Hi Terry,

Two things. 🙂

One in common with you re: the pulmonary embolism… I had one quite early in my journey, only four weeks or so after receiving high dose radiotherapy for a tumour on my spine (directly related or so I am told) of which I too was lucky to survive and received enoxaparin for 6 months, followed by Warfarin for 12…[Read more]

Hi Andy,

I am sorry that Revlimid has not had the required effect but surely they will give it at least three cycles before calling a day with it? I am on Cycle 3 of Revlimid & Dex… my light chains started at 311… went down to 156 and then a fortnight later went back up to 206… I was ready to be devastated but my lead nurse said that…[Read more]

Hi Andy,

Glad to see you back and viral free.. I have had my share of these culture shy infections that refuse to be named… about four or five in the past two years… I have been told that the causes are very rarely found.;-)

I am on Cycle 3 of Rev & Dex and hoping for a long-term relationship… I hope it works for you in the short-term…[Read more]

Hi Tina,

Welcome to the wonderful world of Dex [b]TM[/b]. Its the 'D' of your CDT… Dexamethasone.. a small but very powerful steroid that has a bit of a reputation for causing all sorts of small problems… from 'Moonface' to flushes and bad attitude to excessive sweating. But… it is also an excellent drug because it works. It boosts…[Read more]