Hi Lynda,

As I have said elsewhere, I see Velcade as a bit of a terrier… set upon the MM to bring it to heel… a couple of cycles might not seem much but as I understand it that is where the biggest drop occurs… in the first two cycles… it certainly did for me, dropping my kappa light chains (Bence Jones Myeloma) from 196 to 13 in a 6…[Read more]

Hi Tony,

I am sorry that you are here… but now that you are you might as well make the best of it.:-|

Looking forward to getting to know you.:-)

Regards

Dai.

Hi David,

I was thinking aloud because I couldn't sleep (too excited about my Dex dose this morning no doubt).

You said: [b]'At the end of the day I cling to the hope that the person sitting opposite me in the consulting room has my best interest at heart AND knows what he/she is talking about '.[/b]

I must say that I have no doubt about…[Read more]

Hi Eve,

While I would still like to go abroad I must admit that the idea of a motor-home, and the freedom to go where the mood or weather takes me, is exactly what I need right now. Every time we go to the hospital we have to pass a large caravan and motor-home retailer. We haven't stopped for a look yet (and I can't afford it anyway) but the…[Read more]

Hi Mavis,

Great news that you have managed to get home.. now just stay there.8-) 😀

Dai.

Hi Mavis,

It turns out that I do have two fractures.. one in the top of my arm and one in my shoulder blade. I have been given a sling to force rest but I have been told to use it normally for the rest of the time, including driving. I have to avoid stretching up and out but apart from that I believe its just a matter of time and natural…[Read more]

Hi Jet,

I think you may be right concerning this treatment, I can't see it being licensed for at least three years, what with trials results to be collected and collated and approved, plus the licensing process which will mean America then Europe… it is more likely to stretch to five. Unless of course they hand their findings and research…[Read more]

I can't begin to imagine what it must be like to lose a true love. I have been so fixed on the idea that I will be going first that all my emotional energy has been directed on my going and those I leave behind… but Janet has often said that she could go quite suddenly, through illness or accident… we have had five friends go in just those…[Read more]

Hi David,

There's a large part of me that wants to say yes, hopefully.;-)

Not that I'm wishing you ills but if you can cope with the usual, expected winter and summer coughs, colds and chills then it shows that your immune system is working as normally as it is possible to be normal with MM. If these ailments were making your neutrofils…[Read more]

Hi jean.

I've made a full report under treatments – but I have two fractures… finally getting my request for an x-ray. But they are dealing with it now including referrals and a flexible sling.

Janet likes Angels too but she only likes to display those items which are useful or beautiful…After (William Morris).

Dai.

Hi jean,

They are real poppets and at that age I am sure that they would be really happy that they had the same dress. 😀 😎

I have got to say that I love your art-deco lady in the fire place… Janet adores art-deco and I love statuettes.:-D

Dai.

Hi Jill,

I am so glad that your Mum is receiving her Velcade by subcut.:-D

The procedure is so simple with no battling for entry for a cannula which can be both painful and stressful… also the side-efects are lessened by up to 50% or so I am told.:-) 😎

I wish her well and you peace of mind.:-)

Dai.

Hi Tom,

No bads about it… I thought the same at first… I am angry that no one was listening to me at the beginning… if a simple x-ray had been offered when I first flagged my problem the second fracture would not have occurred… because the strain of one begot the other (so I was informed today).
🙁
Still, now I know I am happy.…[Read more]

I have been called in this morning for a collar and cuff fitting.. the doctors are concerned that the fracture might move… it did! Nine weeks ago it was just my arm.

I do know that my arm and shoulder are getting much better… but I'll go along with them… as I push for a shot of radiotherapy.

Dai.

I have received a form about my ESA… I have got to prove that I'm not fit for work or they will stop my benefits… Hey Ho and here we go.;-)

[b][i]'I have a terminal illness, I'm now in the later stages and I understand from my consultant (all referrals and contacts attached) that I will never be fit again to go out to…[Read more]

Thanks Helen… but as I said, my shoulder felt better today than it has for weeks, despite all my physical exertions, driving both ways etc.. stupid, I know. but it still feels good now.

Dai.

Hi Teresa and all,

Ah so… Janet took a few spare shirts and I was forced into quick changes when I got to the Haematology Centre and again after bloods. The phlebotomist was concerned because I was literally dripping with sweat throughout and a nurse stopped me on my way out and asked if I was okay… to which I said, 'Dex'… she looked…[Read more]

Well my day has been like the curate's egg… good in parts. The good part was that I woke feeling quite alert and with it. The foggy 'out of this world' feeling had been lifted after a decent, tablet free, night.

I got up and decided to shave… having had a very neat and tidy 'goatee' for a few weeks I went with the flow and had a clean…[Read more]