Just a quick Hi to all the youngsters – I hope you are all doing reasonably well and finding life bearable with joy in the morning and a quick smile as you fall asleep. 😎

Regards to all.:-)

Dai.

Hi Viv,

Recalling my CDT experience I was very similar to your Dad. All I can advise is to tell your Dad not to despair… its early days and the CDT is very actively fighting and killing off the cancer cells… but its also killing more than a good few ordinary but vital life cells… so its no surprise he is feeling absolutely drained of…[Read more]

Hi Eva

I am putting so much down to 'Chemo Brain' these days… Tom tries to convince me its just old age but I like to have an excuse. Thanks for the info… its been noted and stored away safely for as or when needed.:-)

Regards

Dai.

Hi Tom…

I had a 3:15 moment… and stayed awake for an hour or so, just catching up… but the good news is I had 4 hours before and 5 after… not bad for the night following a 'DEXDAY TM' and without any form of sleeping draughts (I don't bother because I know it won't do any good)… so I left it to nature and nature obliged.8-)

With…[Read more]

Hi Eve,

That's a very interesting point, conformity.

Once mm enters our lives everything changes, forever. After we have come to some sort of terms with the illness and its treatments etc., we try to fashion some sort of new reality, some sort of new 'normality'.

We have to conform to this new normality and then what? In with new and…[Read more]

Hi Eve,

When I think of some of the hoops you two have had to jump through and the barriers, administrative, medical and staff related, that you had to take on, address and beat down… all of which should never have been put in place or, on a couple of occasions deliberately erected… well, suffice to say I am delighted that at such a…[Read more]

Hi Paul,

When I had Dex as part of my frontline CDT I was wired – during the Velcade adventure I felt foggy… early indications (Week 4 Cycle 1) of Rev & Dex seem to be pointing to wired – I'm writing an album's worth of songs for February/March (9 of 14 completed) as well as getting on with my 2nd novel. My problem is trying to get some…[Read more]

Carol, thank you… I only take Dex once a week, so I have to make it stretch.:-D I am keeping notes of its effects during the week to see if any patterns develop. Tuesday is my nominated 'DEXDAY TM' so I imagine that Tues/Weds/Thurs will see the strongest effects with a tapering off towards Monday… but I will not be surprised in the least if…[Read more]

Hi Carol,

Everything seems to be in place so all you can do now is to try and enjoy the ride..

… well, perhaps 'enjoy' is stretching it a bit but you sound like the sort of person who will take and make note of the experience.8-)

In the meantime enjoy your break in Spain… and while you are there try and mentally bottle some of the…[Read more]

Thank you all for reporting in. I am curious about what drug causes what… but moreover I want to work with my specialist nurse to try and find remedies for those side-effects that cause misery (rather than treatment threatening withdrawal).:-(

I suppose I want to find out the cause and effects of Dex because I hope to be on it for a long…[Read more]

Michelle,

All I can say is how sorry I am for you and your children… I hope that the love you shared with Phil will live on in you and yours… providing you with the strength to carry on together.

Dai.

You are out… now stay out… and get stronger under your own steam.:-D

BUT… don't hesitate to call for help if you think something is wrong… there have been too many cases here of people (ahem) who think they should [b]'hang on for a while longer before I call in with this' [/b]etcetera.;-)

Good luck and good health Andy.:-)…[Read more]

Hi Nicola,

MM being what it is my wife, children and grandchildren have been slowly saying goodbye to me for the last 3 years. I have been hospitalised with infections 5 times in the past 18 months of which 2 stays had hairy moments… but thanks to the medications and the luck of the draw I am still here with chance of a couple of more years…[Read more]

Thank you Tom & David… it's good to know that you are behind me and I hope it stays that way for all of us for a good while to come.:-)

My shoulder is easing each day… I'd say it is about 70% better than at its worst point last week. Continual pain is wearing, it drains you physically and mentally… but knowing that the pain has settled…[Read more]

From the beginning I had a mantra that carried me through my frontline treatment, harvest and SCT… [b]'Whatever It Takes'[/b]… I still hold fast to that mantra although these days it is more than often a softly spoken reminder, rather than a defiance spat through gritted teeth.

Tom's has been [b]'Onwards And Upwards'[/b], David's South…[Read more]

Hi Pete,

Thank you for the excellent breakdown of your Dad's disease… but unfortunately this site is concerned with Multiple Myeloma and its related diseases and procedures. I do know of your Dad;s disease but I have never seen anything related on here in the past three years. I would ring the site admin – clinical nurses included for best…[Read more]