I lost 1.5 stones initially but nothing since. It was good to be able to fit into trousers and shirts comfortably but since starting CDT 2 years ago I have put a stone back on… >:-( :-0

We eat healthily, with lots of fruit and vegetables and although we enjoy the occasional take-away and some of Janet's wonderful home baking it is always in…[Read more]

Thank you to all,

I am feeling considerably better today, the one fly in the ointment being the PN in my left leg which is affecting my walking… I don't believe I could drive at the moment and I'm not having that! I have managed without a stick since I finished CDT and I don't want to start now… not through side-effects from treatment I…[Read more]

'Haha to Dai – "quite often" – LOL! I think we've seen each other at the hospital once! And once at the Info Day.' 😀

Well I have only known of you a few months… 🙂 and actually its the Info day, plus twice at the hospital… we came out from our consultancy meeting and you were in the large waiting room… but you were head down, deep in…[Read more]

Thank you Jo and Sarah,

All three of my children are great singers, my eldest Becky has a wonderful resonance and tone to her voice but saves it for karaoke while Ross is happy to play guitar and sing for his wife and son.

Amy is the professional. I have been extraordinarily proud of how she conducts herself as a professional singer.. and…[Read more]

[b][i]'Sorry to hear that Gordon's second SCT has not done the trick. Stephen is seeing his specialist on Friday to find out if his second SCT has helped.

He is feeling quite unwell at the moment so I am worried that the news will not be good. I hope Gordon's new drugs help and wish you both luck
Gill x[/b]xx'[/i]

I make that today. I will…[Read more]

Sarah,

I can empathise… but not much that anyone says, thinks or does is going to make a lot of difference right now.

You and Gordon have got to regroup and find out what is next and best in terms of treatment… at least there seems to be more choices AND there also seems to be a willingness to revisit regimes that have worked…[Read more]

Good news Keith, great news in fact, seeing what you have been through to get there. 🙂

As you say, relax and bring it on.

Dai.

I quite often see her at City Hospital, Nottingham but not for about 4/6 weeks come to think about it. I have been attending the day case unit, yards away from the consultation rooms and where the Stem Cell Harvests are carried out… but I haven't seen her in there either. I'll keep an eye out on Monday.

Dai.

BTW folks… feeling much better today… the PN is still on the edge and I am feeling shattered… but generally feeling much better than yesterday… the idea of 10 rest days is a misnomer… you do have a rest from the treatment… but not from the side-effects. 🙂

After all this you just end up hoping that the way you feel is down to the…[Read more]

That's fine Gill, I apologise if you think I was having a go – furthest thing from my mind. 😀 :-0

We have what we have an we have to deal with it… I would just like to see a bit of humanity thrown in to the mix. The medical staff have to be so careful… they can be damned for saying too little as much as saying too much… and we know…[Read more]

Hi Gill,

I realise and appreciate that the medical staff cant tell you how you are going to react to treatment, everyone, as you say, reacts differently but that is the content of treatment, whereas I am talking about the procedures.

If someone had said 'this is the procedure for each cycle: a,b,c,d,e' and if you react:

i) positively…[Read more]

Hi Min & Kay,

Thanks for replying an supporting… I am sat at my desk recording and mixing and it has brought me out of myself.8-) I have my laptop on my bedside swing-over table and my desk in the corner of the room… so I haven't got far to go but it does make the difference mentally… even lying on top of the bed makes me feel less…[Read more]

Thank you Mavis… just letting loose a little but yes, my points are valid and it would not take much. BTW, thinking back I can honestly say that I have only seen one Doctor in our very, very busy Day Case Unit in the last four visits… its totally run by the nurses who ratify and conduct all medical procedures without any recourse to people…[Read more]

Hi Angelina,

Your project has made me more mindful of the book my children gave me to fill in… 'No hurry, when you feel like it'… well I haven't felt like it… I'm not sure why not but I haven't. Truth be told I haven't given it much thought… or at least when I have thought about it I have been content to think that there is plenty of…[Read more]

Ah, sarah…

Now that is a sleep pattern and way of life that I understand and relate to.:-| Life is full of gaps in the middle at the moment. :-/

Dai.

Thank you Sylvia… its good to know that the procedure has finally broken ranks in the UK.

I have mentioned elsethread that I requested subcut from my consultant at Nottingham and she said I may well get it during my treatment but nothing as yet. I have just finished Cycle 3 with a consultancy a week tomorrow followed by Cycle 4… I will…[Read more]