tom replied to the topic getting ready for stem cell tranceplant in the forum Newcomers 12 years, 3 months ago
Hi Angela
And a warm welcome to you.
I havn't had a hip replaced but had a SCT in 2009 and doing great now so am sure you will get through it 😀
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Worst week ever in the forum Side-effects 12 years, 3 months ago
Hi Keith
Sorry you have had a bad time, its a shame that what makes us better also makes us ill :-S the sooner the side effects can be sorted out the better.
Stay Well and Fit enjoy the days before dex
Tom "Onwards and Upwards"
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Kerrie
Your Mum will be Ok when all is sorted out its just a one day at a time 🙂
and seeing how the hugs were good am sending more for you all
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Peter and Welcome to our merry band (Yep we have drinkers here)
keep throwing those pills down yer throat as its working
Tom "Onwards and Upwards"
tom replied to the topic Dad's SCT in the forum Treatment 12 years, 3 months ago
Hi Chloe And Dad
No problems re you posting thats what this group is for BUT this is one I cant help with but just wanted to welcome you in so to speak, am sure some one will pop in soon and give you the help and advice you need
Tom "Onwards and Upwards" x
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 3 months ago
Hi Dai
Well I bet your well pleased with the respite you have had 😀
Day Unit is a must for you and a stay in also as you say that liitle problem needs sorting out.
Tom "Onwards and Upwards"
tom replied to the topic Update on kev in the forum Treatment 12 years, 3 months ago
Hi Liz and Kev
Sorry to hear you two have struggled to get rid of the bloomin chest infection:-( I think its something us MM'ers have to suffer dont you think?
Stay strong am sure it will all work out soon
Love
Tom "Onwards and Upwards" x
tom replied to the topic Myeloma Support Group….. in the forum Off topic 12 years, 3 months ago
Hi Peter
Sorry you closed the support group down as i think its a great help.
I believe you dont need many to go to a support group all you need is a few willing folk and hope that (and we are getting them) new members spot the posters at your local hospital.
Whatever way it runs Peter at least you tried 😀
Tom "Onwards and…[Read more]
tom replied to the topic Bendamustine next in the forum Treatment 12 years, 3 months ago
Hi Scott now I am afraid to say so I cant add any advice just wanted to wish you well in the new treatment and sorry the lats one failed.
Keep strong Scott
Tom "Onwards and Upwards"
tom replied to the topic "Is this the best news in years" in the forum General 12 years, 3 months ago
Great Read John thanks for the link.
Its bloomin sad that even when you are near deaths door you have to beg to try this or that I swear if and when it comes to me they could use bloomin bleach poured down my throat if they "Thought" it could help and bugger the costs 😎
Tom "Onwards and Upwards"
tom replied to the topic My Mum – outcome of Velcade treatment in the forum Treatment 12 years, 3 months ago
Hi Jill
Yes another great story I bet you are all over the moon as your Mum is doing great.
I bet you love the sound of that word 'plateaued' I cant get enough of it give me 'plateaued' any time 😎
Love to you all
Tom "Onwards and Upwards" xxx
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 3 months ago
Hi Charlie
Well it looks like ur feeling a wee bit rough and scared ?
Well I was on CTD in 2009 leading up to my SCT in December 2009 and I have to say it wasn't a walk in the Park but it is a "Doable" I started in feb 09 with CTD and went on sick May 09 and that was untill may 2010 so just about a year when I was "getting Better" and…[Read more]
tom replied to the topic Colin the sequel SCT in the forum Treatment 12 years, 3 months ago
Hi Vicki and Colin
Its a shame you have no news on the funding but having a date for the 20th is good then you can ask why?
I was treatment free for about 3 months prior to my transplant starting, and yes i was worried that having No treatment was bad for me but am pleased all went as they told me 🙂 (am just a doubting Thomas 😉 )…[Read more]
tom replied to the topic Revlimid in the forum Treatment 12 years, 3 months ago
Hi Pennie and Andy
Well done on the "Win" and getting the AA am sure you would prefer it wasn't needed but am pleased you have it.
He he and am sure you will be better if Andy took dex in the morning 😀
Have a great week end (my young bride and i are babysitting on sat cant wait)
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Kerrie
Welcome am sory to hear your Mum has got MM and had a bad time with CTD I was on that in 2009 it was a struggle to be honest I did 5 sessions that put me into remissin then Stemm Transplant also in 2009 doing good now 😀 I wish your Mum well with the the new treatment but that also might make Mum ill and weary am afraid.
hugs to…[Read more]
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Folks
Well all went well, I got through to the 2 nd Audition and that was done the same day(yesterday) now I have to wait and see if the 2 nd one went as well and more importanly better than the others that have and are due to go. Am Going to see if I can add a couple of photo's from the week end.
We had to pay our own hotel and stuff Helen…[Read more]
tom replied to the topic Kappa Light Chains on the Up in the forum General 12 years, 3 months ago
Great news all round me thinks, And Happy Birthday Stems you have a great host so look after her xxx
tom replied to the topic Has any one been on EPO in the forum Treatment 12 years, 3 months ago
Aww bless Jo I hope it works and with not too many side effects 🙂
Love iccle ole me xxx;-)
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Thats great news Alison, give her plenty of Hugs from us all as we know what your Mum has and is going through, but honest it is well worth it Alison.
Is you Mum still taking the anti sickness pills? I was taking them for a few months after My SCT it was worth it.
Love and Loads of Hugs to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief 12 years, 3 months ago
Dear Lynne
Am sure John was laid back and am sure all of us with the MM are grumps at times of stress so your John wasn't on his own.
And Lynne Dai's posts always gets to my tear ducks dont ask me why they just do.
Stay strong Lynne and always remember the good times as am sure their were plenty.
Love and Hugs
Tom xxx