Hi Jean and Frank

Sorry I cant add to any of this only to send you both a CyBer (HUG). I know its scary when they tell you to come off something and have to wait for a few days before something else is sorted they might give Frank a reduced dose?

Keep strong they will soon find something that "Fits" Frank's set up.

Love and Hugs Sent…[Read more]

Hi Eve and Slim
Am pleased it was caught fast enough the sooner the better 😀 and am afraid to tell you you will have more of these down the line 🙁 but if you are all on top of it as soon as it "Feels just not right" then am sure it wont last long, jump on the bugger as soon as 😎 and tell Slim its our sense of humour that helps us cope I…[Read more]

Hi Karen

Welcome to the group and i am sorry you had to join.

I hope you are soon seen I know its a worry we can do without.
I was fortunate enough to be seen pretty fast and started my treatmen within two months, and i hope this helps "I am now in remission and drug free" 😀

Good Luck in your road to remission

Love
Tom "Onwards…[Read more]

Hi Wendy

Yes I still drink at least three Litre a day.
I put mine in 500 mil Bottles and fill up from the tap, we have a water filter in the tap pull forward for normal cold and push back and it comes through the filter and I put three bottles in fridge and are refilled when empty its better to count?? but I drink more than the three ltr, I…[Read more]

Hi Sue
I am pleased you found out am sure its all too much to take in at the moment and a worry when we read things that differ from our Dr advice.

Hope all goes well

Tom "Onwards and Upwards" xx

Hi Ann and Peter

Yes I lost it but it comes back after treatment has stoped 🙂

Tom "Onwards and Upwards" xxx

Hello Jeant
Just wanted to say Welcome and sorry I cant add to this but am sure some one wil pop along soon to answer it.

Good Luck to your Husband on his new treatment.

Love Tom"Onwards and Upwards" xx

Hi Sue

I would phone the Nurse up on here and ask or phone the Hospital where your partner is being treated.

Sorry I cant be of more use in your Q

Tom xx

Hi Jen

Welcome to the forum but also sorry you had to join:-( well I cant add anything to what has already been said apart from take one day at a time and go with the flow watch out for raised temp and infection's (gosh av said a lot) and get your Dad to rest when he feels tired.

Good Luck to you and your Dad in the MM Journey.

Tom…[Read more]

Hey Keith well what to say?? you know I feeel for us all when it fails such a darned illness this bloomin MM but am sure you are strong enough to fight it off and get back into remission 🙂

Get yourself off on your Holls and if you can push the MM into the background for a time.

Tom "Onwards and Upwards"

Hi Andy well I am sorry the SCT hasn#t worked for you, this MM is a devil to work out everybody differant with the outcome to the treatment?.

I hope the new treatment works for you with no or little side effects.
Keep strong and well plus dont let the drought wet you hair 🙂

Tom "Onwards and Upwards"

Hi Eve and Slim

Yes its a bugger these infections, I have lost count of how many I have had.
As for the nurse even my grandchildren know the rule Blow Wipe and wash 🙂 and she should know better.

Good Luck and hope the biotics kick in sooner than later

Love and Hugs to you both

Tom "Onwards and Upwards" xx

Well Thats great news dai, Its bad driving on moterways these days without the rain. I bet your both as proud as punch with each other for doing it together.

Good Luck on your next trip and I dont think the next one will be too far away.

Love to you Both

Tom "Onwards and Upwards"

Na then Tery

I love the way you cope with it all I also feel that its a head as well as a body challenge kepp them both strong and you are on to a winner.

Keep strong and well

Tom "Onwards and Upwards"

Ps great photo. I must take my young Bride to Scotland one day soon x

And A Good Morning to you also jacqui, what great news to read today well done Girl and long may it continue 😀

I know itsa a little bit of a rough crossing but the more folk that say its worth the trip the more will take that trip with more ease and less uncertainty.

As for your low levels of energy mine came back to an acceptable level…[Read more]

Hi Paul

Pleased your doing better M8

The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.

Good…[Read more]

Hello Jane

A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.

I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.

Hope to hear more from you soon

Love
Tom "Onwards and Upwards" xx

A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.

And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]

Dear Happy Chappy 🙂

If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.

Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem

Keep up the good work Dai

Tom "Onwards and Upwards"

Hi Liz and Kev

Well am sorry to read about Kev's results, I hope and am sure they will soon sort it out and Kev is back to strenth, am sure you will but I have to say it so "Stay strong" and Fit hope its a short blip in the road of MM

Love
Tom "Onwards and Upwards" xx