Deedee started the topic Good morning in the forum General 8 years, 2 months ago
Hi all, it says I’m a newcomer but I’m certainly not, although I have not used the forum for 18 months.
My husband was diagnosed August 2011 with MM and has done very well on clinical trial of Lenalidomide, then Velcade (not so well) but has just done an amazing 27 months on Revlimid. This has given us 2 extra unexpected years…[Read more]
Deedee started the topic Good morning in the forum General 8 years, 2 months ago
Hi all, it says I’m a newcomer but I’m certainly not, although I have not used the forum for 18 months.
My husband was diagnosed August 2011 with MM and has done very well on clinical trial of Lenalidomide, then Velcade (not so well) but has just done an amazing 2 months on Revlimid. This has given us 2 unexpected years together.
Unfortunately…[Read more]
Deedee replied to the topic New and Help needed in the forum Newcomers 12 years, 7 months ago
Hi again, and thanks to Bridget and Eve for great replies.
I am getting some great advice here, I think my biggest lesson is not to panic. When I had my cancer I never panicked, but looking after Mike I tend to, is it this feeling of being a carer, and responsible for someone else, in my case I think it might well be ???
Anyway, he is doing…[Read more]
Deedee replied to the topic New and Help needed in the forum Newcomers 12 years, 7 months ago
Min
I have just read some of your posts and are humbled. I am so sorry to read your news and do wish you some time to find some peace and space.
I welcome any help from you as you have been there before me, I know I might tread in your footsteps but will not give in, will always support my lovely husband while I have him with me which I hope…[Read more]
Deedee replied to the topic New and Help needed in the forum Newcomers 12 years, 7 months ago
Thanks to Min, Helen and Tom for the replies.
I do realise I am on a massive learning curve, been back into hospital today, Mike now has Oral Thrush and found that he is allergic to one of the antibiotics.
Bless him on a diet of yogourt and jelly until he feels a bit better.
Thanks for the help and advice, appreciate it.
Dee
Deedee started the topic New and Help needed. in the forum Newcomers 12 years, 7 months ago
Hi
My husband was diagnosed 10 weeks ago, he is on the Myeloma IX trial with revlimid. He has been very poorly for last 6 days, had a urine infection and ended up back in hospital again last night (but bought him home) as had an allergic reaction to Allopurinol, not good again today.
I am really struggling to get my head round this and…[Read more]
