Derek Debuse

  • DerekDebuse replied to the topic Side Effects in the forum Side-effects 13 years, 2 months ago

    Hi, ChrisB
    Yes, I have had profuse sweats. Not for a while though and I wasn't able to identify what was causing it. It just comes on….unexpected and uninvited.
    The PN is significant and I have it quite badly now. Not painful, but means that a stick is helpful to stop me overbalancing! It also causes those cold feet. Sometimes my feet and…[Read more]

  • DerekDebuse replied to the topic Side Effects in the forum Side-effects 13 years, 3 months ago

    Peripheral neuropathy is generally in feet and hands. I haven't heard of it in the the spine or back. Mine is still mainly on feet, but at least I have not got the "restless legs" aby more. I have changed from Amitryptilline to Gabapentin. That may have had a good effect.
    the neuropathy does not trouble me during the day, but gets worse during…[Read more]

  • I have had Thalidomide and am now on Revlimid. I have neurophy on both feet which is manageable. Recently I have been getting "restless leg syndrome" accompanied by similar symptoms covering the whole body. It doesn't trouble me during the day but makes it very difficult to get off to sleep. Has anyone had any similar symptons@ I am assuming that…[Read more]