Dizzyliz replied to the topic Just checking in. in the forum General 13 years, 6 months ago
Hello Nicki,
Just read your post my hubby kev is now in his 7th week post sct, had a few hiccups (didn't seem it at the time)
But after reading how well Sam is doing it's just loverly to hear and gives us the boost we need, hope you have a great holiday! That's what we looking forward to.
Love liz…
Dizzyliz replied to the topic Pain after sct: in the forum Side-effects 13 years, 6 months ago
Hello everyone, thank you all for your input, I did ring the hospital and you are all right in that I should not have worried about ringing them and also it does seem to be bone pain from the GCSF which he did have for a couple of weeks after sct
Just up't his painkillers and it seems to be settling down.
Again thank you all what a lovely bunch…[Read more]
Dizzyliz replied to the topic Pain after sct: in the forum Side-effects 13 years, 6 months ago
Hello jet
Thankyou for your reply I hear what you are saying and will certainly ring the number we were given, I think the reason hubby was delaying it seems that's all we do and I know that's what they there for only last week I rang myeloma nurse because of his really bad rash every where which we were told a reaction to drugs…[Read more]
Dizzyliz started the topic Pain after sct:. in the forum Side-effects 13 years, 6 months ago
Hi! Everyone just wondering if anyone as experienced bone pain after having sct 6 weeks ago hubby had the usual side affects but this week started getting really bad pains in his thigh bone affecting his walking, bit worried having already cracked his ribs and breastbone at the beginning of diagnoses, or could it be just another side effect of…[Read more]
Dizzyliz replied to the topic Starting a discussion… in the forum Newcomers 13 years, 6 months ago
Thanks Jean I will do that, let's hope someone can help?
Love liz xx
Dizzyliz replied to the topic Starting a discussion… in the forum Newcomers 13 years, 6 months ago
Hi Jean, just read your post dated the 5/5/11 not had much time to post anything lately kev's had a few hiccups the past couple of weeks, trying to get to the bottom of this awful rash that's after his sct, think it's reaction to drugs he's been on and the treatment, and now since Thursday he's been having pain all over ie bones and really bad in…[Read more]
Dizzyliz started the topic Update on hubby. in the forum Newcomers 13 years, 6 months ago
Hello everyone, it's been a while since I've posted anything, thought I'd update you on kev I think fatigue is a major thing to get over his blood counts are doing well! After his sct but since the weekend a itchy rash as appeared on his face docs say it's probably the antibiotics which he will stop today and will see what the prof says on Monday…[Read more]
Dizzyliz replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Hello David, do understand what your saying about being in the garden, and whatever he does he knows
I'll be watching his every move he wouldn't want it any other way.
The docs have told kev they won't let him home till he starts drinking which bless him he's really trying,
He is on iv and today they gave him salts and another transfusion ( his…[Read more]
Dizzyliz replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Hi:-/ Tom, won't have to rush to play catchup iv'e probably drank enough in the past to last a while lol!
Think that goes for kev too, :-/
Liz xx
Dizzyliz replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Thanks for that bridget, I can remember reading an article about being out in the sun after sct so it will be factor 50
Soon as he ventures out into the garden, and he will probably say it didn't take long for the nagging to start! Lol:-D
Take care liz xx
Dizzyliz replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Hello tinker bell, I think kev was hoping he might be home today nurse said while ur still not drinking they won't let him home, he as been complaining of violent stomach pains when he eats or drinks, the nurse felt his tummy and said it's his bowels so are now going to give him something for it. Had to take a picture of his garden (his pride…[Read more]
Dizzyliz replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Thanx Tom I will pass the message on and the bit where you said one day at a time,
Regards liz xx
Dizzyliz started the topic Quick update on kev. in the forum Newcomers 13 years, 7 months ago
Morning everyone, rang kev this morning, says he's not had much sleep nurses poking & prodding all night temp: a bit high
Nothing major but. Put on medication? I think he sounds better and started thinking this is a good sign! So we'll see what today brings.
Everybody enjoy this sunny day!:-D
Regards liz xx
Dizzyliz replied to the topic new to discussion in the forum Newcomers 13 years, 7 months ago
Hello min, thanx for your kind words this forum has been a godsend just spoke to kev and he's now having
Platelets & bloods so fingers crossed! As for the retail therapy already done it! Bought the new ipad2 told kev
But not sunk in yet! 2 months down the line when he says how long have you had that? ( well I'll say no more)
This old thing!!…[Read more]
Dizzyliz replied to the topic new to discussion in the forum Newcomers 13 years, 7 months ago
hi all thankyou so much for your kind words, been with kevin all afternoon
he's having quite bad nose bleeds and they are talking of giving plalets
so just waiting to hear how things are.
hope it's something & nothing. still sleeping alot but that cant be bad,
ringing him first thing hoping to hear a stronger voice and as tom says onwards and…[Read more]
Dizzyliz replied to the topic new to discussion in the forum Newcomers 13 years, 7 months ago
hello bridget, thankyou for your reply was just going to close down when i saw your msg: gonna do my cleaning and get ready to visit kev one thing is they let me go in anytime within reason, it's been a long night for us both
when your never really apart so this is all new.
i will keep coming back and let you know how kevs getting on.
kind…[Read more]
Dizzyliz started the topic new to discussion. in the forum Newcomers 13 years, 7 months ago
hello everyone i'm a carer for my hubby who was diagnosed august 2010
he is now in hospital having had his sct last week, was day 8 when i got to hospital he was poorly could'nt do anything to help felt useless
just wanted to take it all away for him. joined as anewcomer last night
but think did it wrong realised got to join discussion,
was a…[Read more]
Dizzyliz replied to the topic Starting a discussion… in the forum Newcomers 13 years, 7 months ago
My hubby kev had his sct last week it's day 8 today he's not very well at all
Felt so useless today wanted to take it all away for him! New this was coming but it still
Upsetting for kev and me and you wonder is there a light at the end of the tunnel?
Kev was diagnosed august 2010 but had the symptoms best part of 2010
Been such a shock I…[Read more]