Dizzyliz replied to the topic All Systems Go! in the forum Treatment 11 years, 11 months ago
Hello Dai,
Brilliant news! But I agree with you about the rev: being there to try again, I also hope the bendamustine works for you, good luck and take care Dai
Love liz & kev xx
Dizzyliz replied to the topic Kevs hospital dash! in the forum General 11 years, 11 months ago
Hi Ali,
There is an appt: on the 17th to see prof: so if we don't hear anything
It will be at the clinic , upto now we've not heard so is that a good sign?
As for the snow missing us I was disapointed ! But it's feeling a bit like
Xmas been doing the tree and trimming the house up I love this time
Of year. Kevs had a better night last…[Read more]
Dizzyliz replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Tom, cold is an understatement, but as I type it is chucking it down me duck! And dare I say it's warmed up abit?
Take care Tom and you might want to keep hold of your hair all this frosty weather!
Liz & kev xx
Dizzyliz replied to the topic Kevs hospital dash! in the forum General 11 years, 11 months ago
Thanks for your reply vicki & Colin,
The ABs seem to be doing there magic and he's chilling very nicely at the moment.
Hope Colin's continuing to get stronger and you take care too!
Love liz & kev xx
Dizzyliz started the topic Kevs hospital dash!. in the forum General 11 years, 11 months ago
Decided to start a new thread, didn't want to rain on toms parade:-(
Hi Ali, hope the radiotherapy will be quick, the pain as eased a little with all the pain killers he's on Tramadol, gabapentin, and the hospital gave some morphine but he didn't like how it made him feel so refused after the first day.
With the spinal problems , ribs and…[Read more]
Dizzyliz replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Hello Ali
Kevs been in hospital early Sunday morning till Tuesday, he had a fractured sternum when he was first diagnosed in 2010
At the weekend he had a coughing fit and felt it go again, sat/sun early hours he was in agony so rang 999 his breathing was not good, once admitted discovered chest infection aswell! He is now home with ABs and…[Read more]
Dizzyliz replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Hi Tom,
LOL! Other brands available indeed, anyway Tom just wanted to know have got snow where you are?
As you know we're in Nottingham it seems to have missed us last night, think I was a bit disappointed all we got was Jack Frost!
Liz &kev xx
Dizzyliz replied to the topic Out with The Rev… in with Ben in the forum Treatment 11 years, 11 months ago
Hello Dai,
Sorry to hear that revlimid didn't get to work on the MM or get the chance to see if it could've now that c-diff is under control!
Kevs only on the third week of rev/dex and so far seems ok, I do hope and am sure they will get funding for the bendamustine,
Hope the next couple of weeks pass quickly for ( just for the go ahead) you…[Read more]
Dizzyliz replied to the topic Vemurafenib Clinical Trial in the forum Treatment 11 years, 11 months ago
Hi Keith,
Not read about it yet but will look it up, good luck for Thursday, you can but try! Fingers crossed.
Thinking of you liz & kev xx
Dizzyliz replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Hello Tom,
Well what can I say, happy birthday stem cells and well done you for keeping well!
Long may it continue:-)
Love liz & kev xx
Dizzyliz replied to the topic Postcard from New Zealand in the forum Off topic 11 years, 12 months ago
Hello eve,
Glad you and slim arrived safely and can I say wish we were there! 😎 hope you both have a wonderful time.
Enjoy! Love liz & kev xx
Dizzyliz replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 11 years, 12 months ago
Hello vicki & Colin,
Wonderful news vicki having Colin home it's just the best, I know when kev came home it was a bit scary for him and you both
But there's nowhere better than your own home comforts it did kev the world of good.
Long may Colin continue getting stronger keep well both of you.
Love liz & kev xx
Dizzyliz replied to the topic Rain, Floods and the Professor in the forum Treatment 11 years, 12 months ago
Hi Andy,
What rotten news but fingers crossed that one of the new donors added to the list every month will be THE ONE!
And until then thr rev/ dex continues doing the job keeping the PPs down.
Take care Andy & Steph, love liz & kev xx
Dizzyliz replied to the topic Fridays blood test results. in the forum General 12 years ago
Hi Andy,
Great news on your bloods, bananas and a drop of the dark stuff! ( not together though!) sounds good kevs nodding.
Hope Monday goes well
Love liz & kev xx
Dizzyliz replied to the topic Calling David in the forum Off topic 12 years ago
Hi David, congratulations! What a lovely photo looks like you are all having the best time, long may it continue,
Cheers to you both love liz & kev xx
Dizzyliz replied to the topic Coming to terms in the forum Newcomers 12 years ago
Just thought I'd pop in and say hello Karen,
I'm my hubby's carer (kev) he was diagnosed with MM August 2010 had stem cell transplant April 2011 at the nottm city hospital under prof: Russell the whole team there are brilliant! Sadly kev relapsed may this year and just finished velcade/ dex
And now on revlimid/dex hopefully get those pesky…[Read more]
Dizzyliz replied to the topic Bendamustine Here We Go in the forum Treatment 12 years ago
Hello David,
Just seen you post thought I'd say hi and how are you keeping? Well I hope.
Regards liz & kev xx
Dizzyliz replied to the topic Treatment update in the forum Treatment 12 years ago
Hello Tom
Lovely to hear from you, Thankyou for your kind words, it's great that your keeping well and so encouraging to everyone!
Keep up with your upbeat attitude Tom it makes a good read.
Keep well love liz & kev xx
Dizzyliz replied to the topic Treatment update in the forum Treatment 12 years ago
Hi Keith,
Thankyou for your reply especially when your busy with your new treatment , can I ask how long inbetween treatments was the first and second sct? Because they seem reluctant to go for the second saying its too soon, his first was April 2011 relapse 8 months after remission.
Love liz & kev xx
Dizzyliz replied to the topic Bendamustine Here We Go in the forum Treatment 12 years ago
Hi Keith
All the best with this next stage of treatment, I'll pop in to see how you are doing.
Keep well love liz & kev xx