Dizzyliz replied to the topic Lost in the forum End of Life and Grief 12 years, 3 months ago
Hello Teresa, Judy
Sorry to hear of the passing of both your husbands, my condolences to you both and your families.
Love liz & kev xxxx
Dizzyliz replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 3 months ago
Hello Dai,
Sorry to hear you've not been to well and hope you are on the mend and enjoying the Olympics!
Love liz & kev xx
Dizzyliz replied to the topic Vaccinations in the forum General 12 years, 4 months ago
Hi trish,
When kev had his sct April 2011 he was started on his vaccines in August 2011 I think one them was tetanus and then in oct: flu jab and in may of this year he had a jab for meningitis and was told he's up to date, hope that helps also this was all done through our GPs practice nurse,
Regards liz xx
Dizzyliz replied to the topic John's 2nd sct in the forum General 12 years, 4 months ago
Hi Amelie,
Glad to johns doing well on his second sct, kev had his first sct April 2011, achieved CR in the sept 2011, and the end April this felt unwell and it was confirmed in may that he had relapsed. He's now on velcade/ dex and hopefully second sct? He also managed enough stem cells for two so wouldn't have to go through harvest…[Read more]
Dizzyliz replied to the topic A little bit of good news! in the forum Off topic 12 years, 4 months ago
Ah Thankyou everybody!
We walked into daycase today for kevs velcade we took a bag of goodies for the nurses and shared our news with friends also having treatment there, and showing of the photos, so you can imagine the talk quickly turned to grandchildren and for a while we all forgot why we were there! Even kev looking a bit like a cheshire…[Read more]
Dizzyliz started the topic A little bit of good news!. in the forum Off topic 12 years, 4 months ago
Hi everyone,
Can I just share our lovely news, at the weekend our youngest daughter delivered our second granddaughter Amelia Kate,
8lb.80z Kev and I both thought we'd only ever have one grandchild so this is such a blessing for us it's cheered kev up no end! Aimee who is 6 yrs old is the apple of kevs eye and now can't wipe the smile of…[Read more]
Dizzyliz replied to the topic Wish Me Luck as I have in the forum Off topic 12 years, 4 months ago
Tom
That's great news! I for one will be watching if you get picked? As for Elaine I don't know how she puts up with your cheeky remarks it's something kev would say, what you like. I'm keeping my fingers crossed and hope you get picked, and Elaine you insist on the front row! Good luck:-D
Love liz & kev xx
Dizzyliz replied to the topic Lastest News in the forum General 12 years, 4 months ago
Hi Keith,
Glad it's looking good with the results, it sounds like your symptoms are a lot like kevs going through but he's on vel/ dex
He's just about got over his chest infection, yesterday and today he's off the dex and the fatigue as set in big style, he's also noticed that all the pains in his bones reappear. Went for MRI scan yesterday…[Read more]
Dizzyliz replied to the topic Revlimid in the forum Treatment 12 years, 4 months ago
Hi pennie & andy,
My hubby kev has mm and is currently on velcade/dex after relapsing in may this year, he was first diagnosed August 2010 with a broken sternum and a few cracked ribs he had radiotherapy on his sternum everyday for two weeks, helped with the pain quite a lot and at the same time help heal it, he cracked it stepping of a…[Read more]
Dizzyliz replied to the topic Time for a laugh in the forum Off topic 12 years, 4 months ago
Hi min,
Ah Ah that was good! 🙂 🙂 🙂
Liz xx
Dizzyliz replied to the topic Update on kev's treatment in the forum Treatment 12 years, 4 months ago
Hi Tom
You make me giggle, I've passed on your wise words to kev he's half asleep but managed a smile and said " anything for a quiet life " I wasn't giving him the eye honest, you have to laugh.
Thanx Tom you always put a smile on our faces
Take care liz & kev xx 🙂
Dizzyliz replied to the topic Proper fed up… in the forum Side-effects 12 years, 4 months ago
Hello Dai
I'm glad you got yourself sorted at the GPs the clinic toady was very very busy! I've had to go back to pick up kevs ABs over a two hour wait was not good, after being in clinic for nearly 3 hours kev had had enough, hope the ABs will do the trick Dai and you are feeling better soon!
Take care liz xx
Dizzyliz started the topic Update on kev's treatment. in the forum Treatment 12 years, 4 months ago
Hi all,
Just thought I'd give the latest on kevs velcade/ dex, he is on cycle 3 starting tomorrow after attending clinic this morning kevs light- chains have gone from 4,800 to 1,400 which is good news, although thie last couple of weeks he's not been well, coming down of the drugs don't help, he as a chest infection so on antibiotics, he also…[Read more]
Dizzyliz replied to the topic Plasma cell leukeamia in the forum General 12 years, 4 months ago
So sorry to hear the sad loss of your dear mum, condolences to you Angie and your family.
Thinking of you all love & hugs liz & kev xx
Dizzyliz replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 12 years, 4 months ago
Dear Dai,
I'm reading your post with a little smile and yes I could hear Bridget say exactly that!
Liz& kev xx
Dizzyliz replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 12 years, 4 months ago
Hello Dai,
I was thinking about my sister who passed away just over a year ago, (she would have been celebrating her ruby wedding anniversary today) and at that point I thought about Bridget and felt the need to come onto the forum,
It's so sad to think this lovely lady as gone but I know will not be forgotten! Lovely thread Dai and a nice…[Read more]
Dizzyliz replied to the topic Hickman Line in the forum Treatment 12 years, 4 months ago
Hello Alison,
Just seen your post I'm a carer for my hubby kev we also attend Nottingham and see prof Russell ,
When kev had his Hickman line he was only there for the morning starting on the daycase and taken down to X-ray where they do the procedure and then back to the unit where after an hour or so were able to return home, the staff were…[Read more]
Dizzyliz replied to the topic Some good news in the forum General 12 years, 4 months ago
Hello Mavis,
Great news about your PPs and that you got rid of the infection! As for the withdrawal after cdt can't remember what happened with kev only that he went straight onto sct so no time to have any as I can recall?
So pleased for you Mavis and you soon get mobile again
Thinking about you love liz & kev xx
Dizzyliz replied to the topic Back home in the forum General 12 years, 4 months ago
Hi andy,
Sorry to hear PPs have risen but hopefully this next cycle will kick start there retreat!
Glad you were able to enjoy your trip to the lakes me and kev were there in April also staying in bowness beautiful place!
Thinking about you fingers crossed for better results
Love liz & kev xxx
Dizzyliz replied to the topic And yet another 3 months! in the forum General 12 years, 4 months ago
Hello David,
Coming on here This morning to some fab news really pleased for you, kevs a bit up and down at the moment with his val/dex
So all this good news I will pass on to him, Enjoy your up coming holiday.
Love liz & kev xx