Hi Andy

Glad to hear you are getting stronger everyday, as with everyone on this forum
I would look in as much as I could for a snippet of news on you’re hospital stay,
And am glad to see you back writing on the forum. I was keeping kev upto date during his five week stay as he would ask if I’d heard how you were doing? And am pleased to say…[Read more]

Please except my sincere condolences cupcake after reading you’re husband passed away,
Thinking of you.

Love Liz & kev xx

Hi all, a quick update on kev, he finally got out of hospital last week 2days shy of 5 weeks!
SCT all done and coped reasonably well😏 Got infection that wouldn’t budge until they changed antibiotics which did the trick! When they told kev he could go home you couldn’t see him for dust! And he’s getting stronger by the day, lost a lot of weight but…[Read more]

Hi Maureen,

Great to hear you had a lovely holiday and here’s to many more!

Keep well love Liz & kev xx

Hello Andy, it’s good to know that you’re over the worse, what a time you’ve had, I know it’ll take time to get back to pre pneumonia so take easy, im just nursing kev after 5 weeks in hospital SCT and numerous infections! But been home a week now and taking it easy. I will certainly give kev the good news that you’re doing ok take care Andy keep…[Read more]

Update on kevs SCT,

It’s day 12 and kevs been poorly this week, his mouth right down to his stomach have took a battering which has caused him to have infections and high temps: not eating or drinking, he’s been on morphine pump for two days and the usual transfusions, of blood, platelets and antibiotics! Thought he was turning the corner…[Read more]

Wonder how many of us are doing the exact same thing? Made me chuckle! I’m on Twitter don’t do FB and found Andy on there! Tom too! The news is the same so fingers crossed Andy you’re feeling better real soon!

Love Liz & kev xxxx☺️

It’s good to read your lovely post, long may you continue with normal para’s and no detectable FLC’s, those long walks and golfing too! Brilliant
Keep well Stanley.

Liz & kev xx

Hello Maureen,

Wow! What fab news for you both, I hope I’ll be posting the same news about kev in 3 months time? Have a fantastic holiday and Ian continues to get stronger! Kevs on day 3 from SCT showing signs of all the niggles creeping in but he’s coping well!

Keep well both of you and go enjoy your hols!! Love Liz & kev xx

Haha! Kev never understood the chocolate & wine thingy,
But just raiding the kitchen draw now.
Thanks for reminding me jes1965🍷cheers

Keep well liz xx

Hello eve, lovely to hear from you and that you
Are living your life as slim would want you to,
I too have not been on for a while and felt the
Need to return after kev relapsed! He has today
Had his stem cell transplant no.2 this very day!
It’s been a bit daunting coming back on and not
Seeing the familier names on the forum but the
All the…[Read more]

Thank you, annlynn, jes1965, & Maureen,

Been at kevs bedside all day he’s had his Stemcells today, melphalin has upset his stomach and he’s not eaten since yesterday morning but other than that he’s coping well.
I’m now home knackered on the settee chilling! Might even have a glass of wine?

Early night I think and try to sleep?

Thank you all Liz xx

Thank you, annlynn, jess1965, & Maureen,

Been at kevs bedside all day he’s had his Stemcells today, melphalin has upset his stomach and he’s not eaten since yesterday morning but other than that he’s coping well.
I’m now home knackered on the settee chilling! Might even have a glass of wine?

Early night I think and try to sleep?

Thank you all Liz xx

Well where do I start! Kev had his second DTPACE which hit him a bit harder than the first cycle most of August was spent in the hospital trying to get his neutrophils back up and low HB, infection in his blood, then finally home to some normality what ever that is? Kevs appt to get his FLC results 27th August was overtaken with kev taking ill and…[Read more]

Morning Andy,

Sorry to hear you’ve been unwell and hospitalised, as for keeping vigilant on temperatures I was doing the same thing last Thursday with kev prior to his clinic appt: that afternoon he suddenly felt unwell with temp: rising by the min, we got to clinic and was seen straight away! And kev was admitted with infection in his pic line,…[Read more]

Dear Vicky

So sorry to hear Colin has passed away, my sincere condolences to you and the family
Thinking of you.

Love Liz & kev xx

Update on kev,

In clinic seeing the consultant with blood results HB up to 9.0 from the previous week 7.5 so a little better, FLC went down from 1400 to 1150 they were hoping at least half! So not as much has they’d liked so kev was admitted last night to begin cycle 2 of DTPACE, hoping it gives MM a good kick up the backside! In readiness for…[Read more]

Update on kev,

In clinic seeing the consultant with blood results HB up to 9.0 from the previous week 7.5 so a little better, FLC went down from 1400 to 1150 they were hoping at least half! So not as much has they’d liked so kev was admitted last night to begin cycle 2 of DTPACE, hoping it gives MM a good kick up the backside! In readiness for…[Read more]

Hi Andy,

I agree definitely a bit of a contrast! 😀 are you attending the Nottingham beer fes? Or has it already happened?

Liz & Kev xx

Hello Andy,

I’m not on dex and I’m awake all hours with stuff going round in my head so decided to get up at 5.30 this morning and leave Kevin sound asleep due to the 200mg thalidomide and the very low HB 7.5 so today it’s blood transfusion. Kev had his 5 days in hospital having dtpace then home for 5 days till immune system went to zero, back…[Read more]